AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by PJSuss 7 hours ago. 9160 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Apple Jan 29, 2020. 42 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

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Latest Activity

PJSuss replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I would go to a different dermatologist. if you post where you are from I am sure someone on this board would be able to share a name. Xeljanz is not a cure since you will have to take it for ever just like a heart medication may need to be taken…"
7 hours ago
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Silly answer from your dermatologist. There is no cure for most problems you take medication for.That’s why you take medication from over the counter to prescription.My husband takes several asthma medications a day there is no cure but if you…"
17 hours ago
Djp replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have received both vaccines and have not had any increase in shedding. I’m 3 weeks post the second one"
21 hours ago
outforawalk replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I asked a dermatologist about Xeljanz.   He said there is not cure for Alopecia.  I asked him if Xeljanz would actually be safe to use during a pandemic.   From what I've heard, it does shut down your immune system…"
yesterday
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Has anyone got the Covid shot yet? Not sure what to do.I did get a flu shot and never stopped taking Xeljanz and was fine.Any ideas?"
yesterday
Mike replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am also Canadian and am thinking of ordering from Beacon pharmaceuticals. I understood you need to get a box in the US and have your order mailed to it. I believe you can cross the US border if you have a Canadian prescription.I think you can not…"
Tuesday
SaugaD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello Everyone, Was wondering if someone could help. I live in Canada and have just tried to place an order with Beacon. They said they have had issues with Canadian customs and I should try to have it sent to U.S. instead and pick it up there. Has…"
Sunday
Noaki replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello,  Is there someone who know if Tofacent of emergency drug is  as good as tofacitinix of beacon pharma? I had problems 2 times with customs and beacon pharma doesn t want to give me box anymore! Thanks you "
Jan 20
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat, if it's not too much trouble, could you also send me a pic of your screen shot from Transferwise.  My cell is 443-416-2314.  Thanks."
Jan 9
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You can always e-mail someone else from Beacon from here https://www.beaconmedicare.com.bd/medicare-team.php and wish someone replies soon. "
Jan 8
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You can always e-mail someone else from Beacon from here https://www.beaconmedicare.com.bd/medicare-team.php and wish someone replies soon. "
Jan 8
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"All the vaccines (Pfizer/Biotech, Moderna, AstraZeneca/Oxford, Jansen) till now are not live. They aim to trigger the creation of antibodies and t-cells against Covid-19. I am confident that the vaccine is the way out of the pandemic, and I do…"
Jan 8
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello, I have too hashimoto and it's a great question. Afaik, they are fully aware of which pathways each JAK inhibitor blocks and essentially which T-cells are reduced.  I guess it's a financial matter to prioritize the…"
Jan 8
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Recipient address: Flat 204, 20F Neel House, block A. 525-543 Nathan Rd, Yay Ma Tei, Kowloon, Hong Kong Bank account country - HONG Kong.  Swift: HSVCHKHHKH. Account number: 023-497712-838"
Jan 7
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi DJP,I just sent you a text with a picture of my transfer."
Jan 7
Djp replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Also is the correct bank address 1 Queens Road Central but the City is Kowloon? And an HSBC HongKong only comes up that includes Singapore- is that the one to use? I promise once I do this one time I will pay it forward!!"
Jan 7

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (14 comments)

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At 9:51am on September 28, 2019, LJBMD said…

To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz? 

At 2:04pm on August 21, 2018, MindOverMatter said…

Hi AlopeciaDestroyedMyLife,  I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!

At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, Toxicmosquitoaf gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
 
 
 

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