AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by Shad 2 hours ago. 8881 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Apple Jan 29. 42 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

AlopeciaDestroyedMyLife's Page

Latest Activity

Shad replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi friends  just wanted to let you guys know after I stopped taking Xeljanz I’m losing my lashes in my 10 years alopecia I always had lashes but I’m thinking because stopped medicine now this happening to my lashes which is so…"
2 hours ago
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Sahel,  Have you seen any patches? There are people who do have relapses, most of these seem to pass with dose adjustment or just riding it out. I’ve had a few “sheds”, not noticeable to anyone but me, and I increased dose…"
15 hours ago
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Looks great Carlie, and the minoxidil is working a treat!  I’m so excited for you. I’m not entirely sure what treatments are being used for the Covid 19 though I have read articles regarding the use of baricitinib in Europe and also…"
15 hours ago
nzahir replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Am I allowed to use a pill cutter for the 10mg pills? My derm says I can even though the instructions say not to. I just want to double check with those who many have done it before."
18 hours ago
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I too, haven't posted for a while either but I do read the posts once in awhile.  We're hearing quite a bit about some of the medications that treat autoimmune diseases that are possibly preventing the virus in those who take them,…"
19 hours ago
Sahel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"@frida"
19 hours ago
Djp replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Merry, sorry to bother you again but I am ready to pace my order through TransferWise but There is no where to add the invoice number. How did you do it? Thanks. "
19 hours ago
Jayc2112 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"How does beacon give Xeljanz without prescription?"
20 hours ago
gatesm replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone, I haven't posted in a really long time. After years of being AT (fairly sudden onset in my mid-thirties), I started Xeljanz finally around winter 2018. I wanted to post my experience for those of you taking a long time for growth…"
Wednesday
Sahel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Aa... Been talikg togacinix for a year 15 mgs a day been my lashes started to grow. suddenly about 10 daya ago it started rk fall down. And started taking 20 mgs in the last 2 days. Any idea why it started falling and what can I do?  Ps I used…"
Monday
Djp replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok, I am all set to pay through Transfer Wise. However, I have not been able to enter my invoice number anywhere. After I select "pay" will it first "pop up" with an option for me to enter an invoice number? Thanks!"
Sunday
Lori replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Frida I put a call into my dr to see if he would up my mgs!"
Mar 26
Lori replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Anna for the advice!"
Mar 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Lori, I think patience is the hardest thing with this treatment - I needed 5 months, on 20 mg and a steriod pulse before it started happening for me. I now have full growth and have had full growth for almost 3 years. I always advise giving the…"
Mar 26
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Lori - it can take up to and beyond 6 months for the JAKs to kick in for sure. I would absolutely stick with it, and if you can work with your doctor to increase the dose now would be a good time to do it. Do not despair - it can take many many…"
Mar 26
Lori replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I’m not new to this site but I don’t post much. I have a question for everyone I’m currently on Zeljanz 10 mg once a day for about 2 months. I’m taking hair skin nail vitamins. I’ve done steroid shots since December. I…"
Mar 25

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (14 comments)

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At 9:51am on September 28, 2019, LJBMD said…

To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz? 

At 2:04pm on August 21, 2018, MindOverMatter said…

Hi AlopeciaDestroyedMyLife,  I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!

At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, Toxicmosquitoaf gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
 
 
 

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