Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Friends

  • Halfbakedwho
  • Helen M
  • Jacqui
  • Terri
  • Liz

Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19, 2017. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Airam-FFA's Page

Latest Activity

Airam-FFA replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
Feb 14
Airam-FFA replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"This is presently half price in Holland and Barrett £9.99 rather than £19.99. "
Feb 14
Airam-FFA replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Thank you "
Feb 13
Airam-FFA replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"http://www.hollandandbarrett.com/shop/product/jacob-hooy-cbd-oil-60008899 I have just found this in the UK - would you know if this is the same quality / specification that you get in the US?"
Feb 13
Airam-FFA replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"Sadly, no improvement since stopping using SPF creams! I think the once FFA is ‘triggered’ you need to wait until it ‘burns’ itself out! Oh, that they can find something else to ‘trigger’ a reversal of hair loss!!!"
Feb 12
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Thank you Liz L, I have had a quick look at the Shepperton Wigs site.  Do you know if our condition (FFA) is exempt from VAT? xOx"
Jan 26
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi illustr8r  Thank you for sharing the video clip. It makes it very clear that you have to make sure your Microblading Technician is properly trained and experienced.  That is what has been putting me off - What if they do a…"
Jan 26
Airam-FFA replied to akb's discussion Plaquenil? in the group Frontal Fibrosing Alopecia
"Hi akb  Thank you for sharing the info about the 3D system, it does seem similar to the Lucinda Ellery system, and the info about being suitable for sensitive scalps is useful to know.  At the moment I am ‘coping’ with this…"
Jan 21
Jacqui and Airam-FFA are now friends
Jan 21
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Liz Is the Genomes Project the one that they were doing at Guy’s? I didn’t see the BBC News about it. Do they hope to have the results by the end of 2018? If it is the research project at Guy’s, I was hoping for the feed back at…"
Jan 11
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Halfbakedwho Like you, I thought that my hair loss was caused by stress, and that it would return once I left my stressful job and found something less stressy! I had spoken to my Dr in the Autumn of 2014 after noticing more and more hair loss…"
Jan 11
Helen M left a comment for Airam-FFA
"Hi Airam - thank you for your kind words. I have replied to your questions on the post. Keep smiling, it is a great tonic and no one can take that away from you. Cheers Helen"
Jan 10
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Helen Thank you for sharing your story. It is good to hear about different options, and how people get on with them. I have been thinking about ‘the Lucinda Ellery’ option, but don’t like the idea of the cost and…"
Jan 9
Airam-FFA liked Cheryl, Co-founder's discussion Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoot
Jan 8
Airam-FFA replied to smiletome's discussion FFA burns itself out - has anybody reached this stage? in the group Frontal Fibrosing Alopecia
"Hi Lynda I hadn’t heard about Graham Little Piccardi Lasseur Syndrome with FFA - so I looked it up. Interesting that they are prescribing Thalidomide for it (New Zealand Website)- I thought that that drug had been abandoned following the Law…"
Jan 8
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi All I have just had a look at the head gear on the two sites you mentioned - definitely a great variety to choose from. Thank you for sharing these sites.  xOx"
Jan 7

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 3:47am on January 10, 2018, Helen M said…

Hi Airam - thank you for your kind words. I have replied to your questions on the post. Keep smiling, it is a great tonic and no one can take that away from you. Cheers Helen

 
 
 

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