Thank you, thank you Yash, Helen M, AnnieMay, Jules and Minter for your warm and comforting response to my whining. Sometimes I feel so ashamed of myself, but now and then I have to get it out of me as I have no one to speak to and I feel…"
I must say that I admire all of your tremendously, you are so brave when it comes to confront this awful disease.
Ohh ...how different we are. When I was diagnosed 2 years ago I and my husband was devastated. I did have so many panic…"
I started with PRP injections 18 months ago because I was so extremely desparate. It is extremely costly to do this and IT DID NOT HELP ME AT ALL so it was really a waste of money.
Thanks for your long and very personal answer. I do admire your for your brave decision not to use any medication. When I was diagnosed I googled on this condition and saw so many women with practial no hair at all on the front, just some…"
"Agneta...you are in the right place here in AW. I am recently new to the website but have found much comfort in reading the trials and tribulations of other who suffer with various forms of Alopecia. I have AA and have had it for years. Am dealing…"
My name is Agneta Ryden and I live in Sweden. born 1947. Nine month ago I was diagnosed with Frontal Fibrosing Alopecia (a variant of Scarring Alopecia).I was devastated and got deeply depressed. However, as the progression is very slow I gradually felt calmer. I´m on medication for a long period (tetracyclin and Plaquenil). The medicaation will not cure the desease but hopefully halt the progression.
I would like to come in contact with other members who are suffering from FFA.
As FFA is very rare, it is difficult to find people who suffer from this disease in Sweden, as population is to small.
Do you have alopecia?
Are you age 18 or older?
Yes - I am 18 or older
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Agneta...you are in the right place here in AW. I am recently new to the website but have found much comfort in reading the trials and tribulations of other who suffer with various forms of Alopecia. I have AA and have had it for years. Am dealing with it and still searching for the cure. There is lots of ind
Information on AW about FFA. You just need to search frontal fibrosing alopecia. You will find many others who suffer with this condition. All the best to you :)
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