559Courtney
  • Female
  • Fresno, CA
  • United States
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559Courtney's Discussions

California Support Group Website

Started Aug 18 0 Replies

Hello, my name is Courtney and I’ve had Alopecia on and off for 12 years. I know how difficult it is to live with this autoimmune disease and would love to help support others with this disease.…Continue

Mixed Feelings about my Alopecia

Started this discussion. Last reply by Alo-mom Aug 17. 1 Reply

The first time I got Alopecia was when I was 21 years old. I lost the entire lower portion of my hair and eventually had to shave my entire head. I was completely overwhelmed, stressed, embarrassed…Continue

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559Courtney posted a discussion

California Support Group Website

Hello, my name is Courtney and I’ve had Alopecia on and off for 12 years. I know how difficult it is to live with this autoimmune disease and would love to help support others with this disease. Therefore I created a website for fellow Alopecians To discuss story’s and questions... please check out my website and become a member to stay up to date with new blogs and forum discussions:…See More
Aug 19
Alo-mom replied to 559Courtney's discussion Mixed Feelings about my Alopecia
"Hello from a mom whose daughter has Alopecia Universalis. I am not a psychologist, but here are my thoughts. I believe that the growing and losing of your hair over time causes you to not totally accept it. It is like being on a roller coaster. My…"
Aug 17
559Courtney posted a discussion

Mixed Feelings about my Alopecia

The first time I got Alopecia was when I was 21 years old. I lost the entire lower portion of my hair and eventually had to shave my entire head. I was completely overwhelmed, stressed, embarrassed and did not even know what Alopecia was! Once researching Alopecia and finding out what it was, I went to a dermatologist and as a treatment they gave me steroid injections in my scalp. The injections did not help, and it seemed like nothing was going to work. I wore wigs to hide my shaved head and…See More
Aug 17
559Courtney updated their profile
Aug 7
559Courtney joined JayB's group
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California World

Discussion forum for the land of sunshine andavocados..See More
Aug 7
559Courtney joined Sisterslivinwithalopecia's group
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Sisters Living With Alopecia

If you or someone you love has Alopecia, don’t go through this experience alone. There may not be a medical cure for the condition but there is healing for your heart and mind and friends nearby who care.http://sisterslivinwithalopecia-com.webs.com/See More
Aug 7
559Courtney joined Jasmine and mommy's group
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Alopecia with Anger

If you have alopecia, young or old, and experience anger.please come and share your story
Aug 7
559Courtney joined Dominique Cleopatra's group
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Women Who Never Want to be Bald in Public

A group for those who are too "wigged-out" by the idea of personally walking around bald, but support those who do.
Aug 7

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Relationship Status:
Married
About Me:
The first time I got Alopecia was when I was 21 years old. I lost the entire lower portion of my hair and eventually had to shave my entire head. I was completely overwhelmed, stressed, embarrassed and did not even know what Alopecia was! Once researching Alopecia and finding out what it was, I went to a dermatologist and as a treatment they gave me steroid injections in my scalp. The injections did not help, and it seemed like nothing was going to work. I wore wigs to hide my shaved head and to hide my embarrassment. Finally, after almost 2 years my hair slowly started to grow back fully. I had all my hair for about 6 years until I lost the entire top portion of my hair and eventually had to shave my head again. This time I decided to embrace my shaved head and even started an Alopecia Support Group to help support others with this immune disease. I did not wear wigs; I rocked a shaved head in public and was eager to explain my Alopecia to people who were unaware of what it was. After about a year and a half my hair slowly started to fully grow back. I had all my hair for the next 3 years until I lost my hair in patches all over my head and again had to eventually shave my head about 2 months ago. This third time through me for a loop. Rather than embracing my Alopecia as I did the second time, this third time has been rather difficult for me. I have a ton of mixed feelings and am constantly worried about the way other people see me. I cant figure out why I am feeling this way with myself after having such a positive experience with it my second time having it? Why could this be?
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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