Kimberly's Comments

Comment Wall (71 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 7:22am on April 19, 2011, Sara said…
Just saw this...can't remember if I ever responded! Anthralin side effects are mainly sore scalp and irritation really. Itchy itchy and some dandruff :)

Injections didn't work for me but anthralin usually does, If I keep doing it.
At 10:54am on August 30, 2010, Robbi said…
Hey, that's great that you got your gripper and so fast! Do you have to get it styled? The vacuum wigs come in all in one length, so usually you have to go to the salon for the actual style. Too bad about the workout thing....I generally don't workout with my vacuum on, however I do sometimes take long walks in the humid weather. I find that they stay secure for the most part, like they won't fall of, but they do loose suction a bit. They also can be terribly hot on such occassions; accumulating an insane amount of seat that pours down your head when you take it off. Obviously, most days are not quite that hot, so I don't normally encounter this problem--plus I don't do my aerobic workouts in my wig. Anyway, I hope you love your new gripper, and would love to see pics, if you feel like posting. Take care:)
At 9:41pm on August 29, 2010, Tallgirl said…
Thanks! People at church and work like it, too. I guess making a total change doesn't shake people up that much after all!
At 8:17pm on August 18, 2010, Heather L said…
Hey!

The gripper sounds awesome!! I'm excited for you -- can't wait for you to get it! a secure fit would be the most important to me --- gosh what a nightmare thought thinking about a wig blowing off your head! Sounds like you wouldn't ever have to worry about that! :) Keep me posted!
At 10:13pm on August 16, 2010, Robbi said…
Thanks, Kimberly, I'll have to check out that video. I would be interested in seeing the actual cap up close out of curiousity. I am not currently in the market for another wig yet, but I think it's so important to keep up on all of the options we have. It seems that each type of wig offers it's own set of attributes , as well as it's negatives. The gripper sounds like it has some nice features, though. All the best! :)
At 7:57pm on August 16, 2010, Robbi said…
That's really great, Kimberly! You'll have to post some pics when you get the chance; I'd love to see it. I've heard of the gripper, but haven't actually seen one in person. I'm curious about how the caps look & work. I wear a vacuum wig, & I know how important that sense of security is. Good luck! I bet it'll be awesome. :)
At 7:21pm on August 16, 2010, Heather L said…
Hello!!

WOW-- great news. So happy you found something you love! I am not familiar with the gripper? What type of wig is that?

All your hair is now gone! omg! Sorry Kimberly! Did you give in and shave or did it all fall out?

All is well here -- just a typical Monday! :) Which all things considering isn't so bad!

Heather
At 10:36pm on August 12, 2010, Robbi said…
Hi, Kimberly, just wanted to say hi; how are you doing? :)
At 12:12pm on August 2, 2010, Heather L said…
Hey- awesome news the wig turned out to be so great! I had that same impression just the few times I spoke to them on the phone. Have you made any decisions yet? So much to think about!

Do you think you will make the trip to NY if you decide to buy or check out the Joseph Paris? I remember they said they offered free consultations. If you do there is also a vacuum wig company not far from there that looks very interesting! I'll see if I can find the name for you...
At 11:03pm on August 1, 2010, Jennifer Krahn said…
Hey Kimberly,
The hairpiece in my profile pic is a lace-type wig that did not require tape or glue as it seemed to fit perfectly. I wore that piece for a year and this past June just got my freedom wig (sorry haven't posted pics yet). I love the FW for it's versatility and it looks and feels like me. I also liked my previous hairpiece but the FW really is not intruding in my active lifestyle and is super comfortable. My profile also has pics of me in a shorter synthetic hairpiece I bought online. Inevitably I think it comes down to what you feel good in. Alopecia is really a head-game and part of that head-game is starting to feel good about our new appearance. It takes time, but once you find the right hairpiece (and it may take a few tries) and make-up tricks you'll find yourself coming out of the funk that really can suck us in. I was there and will never go there again. I appreciate normalcy more than I ever did and I feel good doing it. Hope this helps. All the best
Jenn
At 10:05pm on August 1, 2010, Natalie said…
Hi Kimberly,
In the waiting time until I received my Freedom wig, I got a full lace wig. It takes about 3-4 months for the Freedom wig to get manufactured. It is a very difficult decision to decide to stop treatment and just accept the hair loss; I knew it was time for me to move on when my hair loss started to control my life. I was afraid to join in the normal day-to-day activities of life because I didn't want anyone to see my bald spots. I also started having panic attacks and sunk in to a depression when my hair really started falling out. So after about 4 months of being miserable, I thought "You know what, I'm done being the victim to my hair loss. I'm ready to take control." And when I shaved it all off and got my first wig, it was the happiest I had been in a very long time. I finally could LIVE again! It felt like a hundred pounds taken off of my shoulders. When you feel like your hair loss if preventing you from leading a full life, that is when you will know what to do and if you should shave your head. I hope that helped! It really is a very personal decision and people take different amounts of time coming to terms with their alopecia (I was in denial of my alopecia for 9 years before I accepted it). Lots of luck! And please know you're not alone :) Let me know if there is anything else I can do to help!
-Natalie
At 3:31pm on August 1, 2010, Natalie said…
Hi Kimberly,
I hope that the prendisone works out for you! I think that the hardest part for me was deciding to stop all treatment and just let go. Once I was able to accept that my hair was falling out and once I shaved my remaining hair off, I felt like a new me! The Freedom wig has definitely changed my life. In the past, I was so afraid to go swimming or go out on a windy day because my bald spots would show. And when I had a lace wig, I couldn't swim or work out in it and I was always afraid it would blow off in the wind. But with my Freedom wig, I can literally live my life like I did before my alopecia (I can work out in it, swim in it, go out on a boat on a windy day in it). However, deciding to shave off your remaining hair and get the Freedom wig is a big step, so definitely take your time :) Let me know if you have any other questions - I would love to help!
-Natalie
At 10:03am on July 29, 2010, Shannon said…
Hi Kimberly,
I hope your search for a wig is going well. I was like you too where I could hide it for some time, but eventually, I gave in and shaved it off! I don't wear a wig at home, but I do for work, etc. Good luck, you'll find lots of support online here!
At 10:19am on July 28, 2010, porcelinh said…
Hi, Kimberly. Yes, I do love wearing my FW. I have not have any issues wearing them. I've been wearing these vacuum wigs since 2002 and was stationed in the dry dessert heat wearing them and had no issues of them being too hot to wear in that climate. The downfall however is that it does take awhile for them to gather the type and length of hair to make these wigs. High quality virgin European hair is hard to come by these day especially now that celebrities and others are into hair extentions. Its worth the wait and I don't see myself wearing anything else that will make me any happier than wearing these wigs.
At 6:54pm on July 26, 2010, porcelinh said…
Hi, Kimberly! I wear a FW vacuum wig. ~Holly
At 1:20am on July 26, 2010, Tallgirl said…
Maybe because you, like any of us, have trouble being in that different world that comes with loss of a body part. It will bring grieving, like any loss...but it is not a loss anyone in our normal life understands, so we have to trust our AW friends, supportive friends and relatives ONLY, God, wig stylists. Seek the methods and strength of strong, outspoken women in history, who didn't give a damn about others' opinions and kept on marching despite breast removal, embarrassment (Sandra Bullock?), etc. The quicker you find the "cover" you need while getting over the loss, the better. You can always deal with other questions later.
At 1:05am on July 26, 2010, Tallgirl said…
Okay. Let's tackle this head-on, as Sisters in Alopecia. Get a family member or church to help you pay for the cutest wig you can find, pronto. Have a relative or kindly person you trust go with you to the wigs shop(s) to try them on. Take your time to pick a style that you will enjoy, even if different from your birth hair. You may want to take time to order a certain color from the swatches. Make it a day you can also get treated to a cool lunch and movie at a friend's house. Listen to some of the songs I just put on my Music Therapy blog. You can do this! Chin up, girl!
At 12:47am on July 26, 2010, Tallgirl said…
I only buy synthetic, low-cost wigs, which I wear in public. At home, I go bare-headed. I wanted to ask you why you added those words on your page today at the top. Are you okay?
At 1:22pm on July 23, 2010, Heather L said…
Hey -- how is it going today? Have you had a chance to really check out and play around with the sample wig yet? I hope you like it!!
At 10:13am on July 22, 2010, Natalie said…
Hi Kimberly,

I am LOOOVING my Freedom wig! It gets so hot in the summers here in DC, but it remains comfortable no matter what. It's so nice because I can put it in a ponytail or half-up if I want to when it's really hot out. I would recommend the Freedom wig if you are completely bald and have little or no hair growth; the Freedom wig has to suction onto your head, so your head has to be silky smooth. If you do have some hair left and don't want to shave the remaining hair off, then I recommend a lace wig. My lace wig was okay, but it certainly is not as comfortable or as real-looking as the Freedom wig. Let me know if you have any other questions - I love helping :)
-Natalie

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service