Susan Innes's Comments

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At 2:17pm on July 3, 2015, Cinzie said…

Thank you for the welcome, Susan!  You must keep an eye out for new WI members.  :-)

I admit, I might not join a get-together, since I feel much more comfortable hiding behind my keyboard.  I've always been a socially anxious person, even before I developed Frontal Fibrosing Alopecia / Lichen Planopilaris in the past few years.  As if I wasn't already scared to be around people, this has given me even more of an excuse!

Still, I'm looking forward to lurking here and perhaps contributing now and then.  It really does help knowing that this community is there.   Thanks again, and take good care.

At 4:45pm on June 22, 2015, Miranda_m said…

Thank you for your encouraging words! I will look into that group!

At 2:46pm on April 26, 2015, Heidi said…

I would love to join the Wisconsin group!  Just got back from Vegas with my husband and one of our sons and his wife. Always good to get away. Keep thinking I'll see someone else with AU, but never do.

At 12:49pm on September 26, 2014, Chris said…

I would love to join the group from Wisconsin.  It would be great to talk to other people who have AU.

At 12:29am on October 13, 2013, Nuruzzaman Rana said…

You're welcome!

At 11:33pm on August 16, 2013, Mary said…
Susan, I am having a bit of trouble navigating the site. Thanks for your post...I will join the WI group as soon as I figure out how to
At 11:05pm on August 16, 2013, Mary said…
Susan, Thank you. I am having some trouble figuring out how to navigate around the website, leave comments, or join groups. It probably doesn't help that right now I am out of town & on a slow internet connection. I will join the WI group when I figure out how to do so.
At 4:56pm on May 23, 2013, Michelle said…

Thank you so much, Susan! I was intending to join the Wisconsin group, as I would like to get to know some people in my own neck of the woods. I was first diagnosed with AA in March, and now that I'm seeing it progressing, I'm starting to really need support from others who suffer from this, too. I really appreciate your reaching out -- it's so good to know we are not alone! :)

Michelle

At 12:49pm on May 15, 2013, bkundert7 said…

Thank you for your kind words. I really appreciate it! I am so glad there is a group in Wisconsin. I would really like to join. I has been very stressful going through this alone. I am so glad I found this website :) We should definitely meet sometime. I am in the process of moving to another place in Madison so maybe this summer we can get together. Thanks again for your support!
Bridget

At 12:29am on February 22, 2013, DANNI said…
Thank you Susan for inviting me to your group I appreciate it! :)
At 8:29am on January 24, 2013, Debbie said…

Hi Susan,
After a long day at work I went home and had myself a good cry last night. I am feeling better this am and ready to take on a new day. I thank you and others on this site for helping me come to terms with the fact that my hair mostlikly will never grow back. It helps to know their are others that are like me,and look forward to the day when I can help someone else who is looking for support.

At 3:42pm on January 23, 2013, Debbie said…

thank you ,Susan would love to join the group from Wisconsin :)

At 6:18pm on November 19, 2012, Jean said…

Hi Susan,
Thank you for the words of encouragement!
I have 2 wigs, but have found them to be very uncomfortable, hot and itchy. One was very expensive and one not. My husband has been a rock through all of this. He understands when I have my crying jags and just sees me through it all.
I am considering seeking the help of a counselor, and do have some names from my doctor. I just haven't made that step and I don't know why.
It's nice to have found this website. The other one I used only asked for money, which if they really thought about it, we spend most of our "extra" money trying to find ways to have hair!

At 12:03pm on August 31, 2012, Baldilocks said…

Thank you Susan! Its actually a photo I found on the internet, but it melts my heart so I kept it :) I am so happy I found this site!

At 9:35pm on August 17, 2012, SlowBlue said…

No..No, I'm glad you didn't have that done. You look great as you are. Too many folks altering their bodies in some way these days. It all adds character anyway. So... just call me Eagle Beak :)

At 3:29pm on August 6, 2012, imtoosexyformyhair said…

Thank you.. new to this site and I do not know how to sign up?hmm

At 8:25am on July 30, 2012, Linda said…
Thanks so much Susan. I am glad to have found this site. I am not sure yet how much will fall out, but knowing I'm not alone this time is very helpful for me. I've been reading this site for the last week and I had to take a deep breath just to sign up. 20 years ago I spent a couple of years trying to find a doctor who even knew what this was. I have somewhat come to terms with this disease, but it's never been easy or fun to see my hair fall out. Hugs back at you!
At 12:19am on June 14, 2012, Julius Taylor said…

Hello,
I am sorry for the delay in responding to your comment. I currently compose Hip Hop music. My label is working on starting a national charity to rid inner cities of gangs violence and pollution.

At 8:31am on May 26, 2012, Heather said…

Thank you so much for the great message...I am very blessed in my life now...Dealing with AU has been a very big challenge...I am 29 and I have been with my husband for 4 years married 1 year now and we have 2 beautiful children a girl 3 in July and a boy he is 7 months....He loves me for who I am and supports me through ....He is basically my support system and my sister and sister in law and that's about it...My mom well...that's a long story..She just says this is what you have and get out of denial....SO...after 11 years of this condition it is hard and I have to find it in myself to find it in my heart and soul some where that this is me..But, not having the support that I really needed I think that's the problem....So, I am trying...I thank God every day that I am not dying or anything like that...And that some one actually loves me for who I am is the greatest feeling in the world....I know some day...I will find it in myself and get to where I need to be....=)

At 5:26pm on March 25, 2012, Nicole said…

I agree, although after my first visit to this site it really hit me that I HAVE ALOPECIA!! I think I was in a bit of denial before. I was always looking to when my hair would come back instead of accepting that it is gone. Its still difficult but I'm getting stronger with time.

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