Hi Cheryl, its me again Suzanne I tried to book my first dermatologist appointment today, the first date I could get was 21st July 2014 is this too far away, or would you suggest I try and get a private appointment, I am not sure what to do!!!!
Hi Cheryl, Thank you for welcoming to your site. It's lovely to be able to share information and ask for advice from other members, it's nice to feel I am not alone but I also wish there was no-one out there like me diagnosed with FFA because they might have then found a cure!!!! I am unsure what to expect from this diagnosis but with the help from my children when they are back from university I will be able to find my way around your site, add information about myself, on the right page, add photos and then begin to share my information with yourself and others. Have a good day and thank you for taking time to welcome me.
Hiya Cheryl - yeah, you're right, it HAS been a while. Funnily enough, I was thinking of rectifying that very thing only the other day, so you might want to reinstate the censorship filters on the site in advance ;)
Anyway, how's you? Hope you and RJ aren't down to your last few million yet....say Hello to him for me, and as "they" say - watch this space. Or one pretty close by, anyway! :)
I would like you to take a moment and watch this link. Tammy an owner at ETSY had been making my daughters hats that are beautiful and restored confidence to her. As I stated Sydney is premed and has had struggles and definite wins along this journey. The girl in the video is my daughter. She is my inspiration. And Tammy is truly amazing at her knitting. Here is the link
We had no idea about the interview and Tammy was so grateful for Sydney sending her photos of her in her hats showing how pretty they made her feel and Tammy wrote back asking if she could use the pictures because Sydney made her hats beautiful.
There are sad things that come with Alopecia but some real beautiful moments that leave you in awe.
The text below was sent to me this evening after the video link.
From Tammy the etsy shop owner
It aired last Thursday and he interviewed us for an hour, but I have to tell you once he saw Sydney's picture he was riveted. He said she was simply 'beautiful' and he never notice her hair loss because he went straight to her beautiful eyes. He said she had the most lovely face and enchanting eyes. He went on and on about her. He had no idea about alopecia. He asked for both the pictures you sent me for the news piece.
Really the outpouring of admiration to Sydney's pictures has been remarkable. We are lucky to have found you both. I am glad you could share this with us. Give my best to Sydney and thank her again for all the help she has given our shop. We anxiously await for the next photos you send because they are wonderful.
Tammy & Monet
The blessing was all Sydney could say is at least my hair loss is helping someone out and how awesome Karma is.
What you want to do with this..., I don't know but I needed you to know that this site has helped me be a better mom, friend and person. I learned from the good and the bad. I could process all the "emotional facts" that everyone forgets to explain in Alopecia on a human level.....not just a definition and I am so sorry. Everyone active here are all leaders and survivors in my eyes.
Hello, Cheryl, I would like to comment, offer new information regarding hair loss and advertise on this site. However, I want to make sure that I am following all the rules. I have hair thinning and is now working on my own hair, I own a treatment center that offer results that work and I have offer information and technology that women should know more about. How do I go about making these women aware of information. Would you please contact me email@example.com thanks
Hi Ms. Cheryl , I'm Jayla and I'm so happy you have a place for us to come to . I didn't think there was anyone else's like me . I am so glad my mm found this place. Wow , there are a lot of kids and adults like me. I can't wait to meet more people like me . Thank you Ms Cheryl
Cheryl: Things are starting to finally take shape. Is it okay to share my project here on AW about my book project? If so, how would you like me to go about that? I'm super excited about the progress it is making, and can't wait to share it with you. I need to catch up with you again before too long to confirm some things that we talked about back in April. I look forward to hearing from you. I hope things are well for you.
So glad to be back on this site Cheryl. Ray is doing great and now helps others how to deal with Alopecia. I'm very proud of him. This year we are going to the Children's Alopecia Project camp, looking forward to going.
I'm a barber with alopecia.. And would of never picked up a pair of clippers if I didn't have it. Embarrassed to go to a barber I learned to cut my own by trying to hide bald spots. Today I have my own shop and able to provide for a family. I consider my successful because I love what I do and would of never started doing it if I didn't have alopecia...
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