RobynCS's Comments

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At 6:18am on August 29, 2018, Brent Cairns said…

Thank you Robin for sharing all your thoughts on this post.

My name is Brent Cairns, from Auckland New Zealand (I have alopecia also)

The purpose of this post is to ask you if you could please supply me with some info for my studies. I'm definitely not selling anything. I am not buying anything and I don't work for a Wig company whatsoever nor everhave.

Q1: What are the problems, if any, that you have experienced or currently experience with wearing Wigs?
Q2: What are that you believe are the problems that you've have/ had experience(d) from Wig suppliers/ retailers?
Q3: What support do or did you receive from these Wig suppliers/ retailers, if at all?

Thank you so much in advance!

At 11:18pm on July 29, 2011, margaret staib said…
Helllo my friend! How are you :)
At 2:27pm on May 22, 2011, BTB (John) said…
Hi awesome story single mom and AA now that's a real tough gig thanks for supporting Pat and does Jeffery know everyone on AA world I am going to the States in Oct on a road trip with a mate our 4th and will definitely be meeting Jeffery in San Francisco he is a really cool guy. John
At 7:52pm on April 26, 2011, R0BB said…
Hey Robynowitz,
Hows it going ?
At 7:59am on April 26, 2011, margaret staib said…
Hi Robin, sorry we were away! :) Call me so we can touch base. My husband is a HUGE dead fan and still goes to DSO shows, phil shows and when the dead comes to town sees them too. We will be in lake champlain on that date but, maybe we can set something else up! xo 631-680-0148
Margs
At 1:01pm on April 14, 2011, R0BB said…
Hi Robyn - Thanks for the add !!
Keep smiling :)
-R0BB
At 8:29pm on April 10, 2011, margaret staib said…
Hello my friend! Wanted to say hi and I was thinking of you! Hope all is well! Golf soon? xo
Margs
At 8:16am on December 20, 2010, margaret staib said…

LOVE your profile pic. You look BEAUTIFUL!!! :)

At 12:45pm on October 25, 2010, margaret staib said…
Hello Miss Robyn!!! How are my love?
At 8:10pm on September 28, 2010, Pat said…
Hi Robyn, thanks for your comment on my profile page...yes I agree my hb is a good looking guy and yes he's always been very supportive to me. I love him so much. So far I have no side effects on the prednisone but I suppose it's early days yet. I'm hoping to taper off to a low dose over the next few weeks. What dose did you get down to?
At 7:13pm on September 28, 2010, Christy Ingram said…
Hi Robyn, Thanks you for the compliment! It was a beautiful wedding! No wig mishaps have appeared on camera...just waiting for the professional photos. I don't think there will be the dread I was fearing! Yes everyday is new and my outlook gets better, and I am having fun changing my hair! lol
At 10:36am on September 26, 2010, Bruno Manuel Rocha said…
Pleasure is all mine!!!! Txss
At 12:24pm on September 15, 2010, Sam Sam said…
Thanks! Its exciting!
At 1:53pm on September 14, 2010, Andrea L. said…
Hey there, thanks for your nice comment and reply to my post. Thanks for sharing your experiences with wig caps. I think I might skip the cotton ones, sounds like they are way too thick. Sorry that acupuncture and steroids didn't do it for you either. You got the right attitude though. I am at the point where I am beginning to think that I should just have fun with the wiggies and get a few hairstyles I always wanted. I ordered a halo wig 2 days ago since I also like wearing hats. Will be interesting to see what that animal looks like, heehee. All the best to you. ;-)
At 11:08am on September 11, 2010, kaitlin lavin said…
Thank You, that was really sweet! And yes, I do go to the city pretty often. My brother lives there and I love walking around times square and going to broadway shows!!! You def need to get into the city more often haha!
At 9:12am on September 11, 2010, margaret staib said…
That is AWESOME!!! How did you network for my group is still really small. I know they are out there. I figured if I built it they would come (ha ha) but, it still remains small. Yes, school is a little nutty, they went back on the 7th. Now it's soccer soccer soccer, The mini van is going all over. Had my first melt down in like four months after coaching on a windy field the other day. The emotion of feeling like my wig was going to come off and the feeling of the fake hair on my face really just pushed me over the edge. I had a good cry and then it was over. I have to say even though I run this group and I feel great I'm stil still pissed that I lost all my hair. I have these "moments" that come every four months or so when I'm like wtf! Then I get over it. (or do i :)
how is life with you? Kids? Think of you often. xo
Margs
At 9:01am on September 11, 2010, Gail said…
Ha! I have first dibs on the "S.D.!" lol Thanks for the compliments on both wig and children. They are awesome young people and I count my blessing every day! Have a good weekend.
At 1:56pm on September 6, 2010, JeffreySF said…
HI Robyn,
Our SF group is pretty awesome for sure.
Happy Labor Day!
I'm smelling BBQ!!!
Jeffrey
At 11:57am on September 6, 2010, Gail said…
When I first started losing my hair last year to the point where a wig was inevitable, I did buy an expensive human hair wig at a salon. It was colored (lowlights) especially for me and cut (kind of) to my liking. I have worn it about 6 times! I don't like it and I could get no satisfaction from the salon. Needless to say, I no longer do business with them. The maintenance (blow dry & styling) is a pain also, and it is very fragile. I have definitely gotten my money's worth out of my little synthetics and receive many compliments on my "hair" regularly. While I envy those who are able to purchase the vacuum wigs and Grippers and the like, I could never fathom spending that much on a wig (several thousand dollars), and also have the expensive maintenance. I need me a sugar daddy ... lol
At 11:05am on September 6, 2010, Caley Vangelis said…
Thanks! I would love to know information about a support group in Albany.. I think that's great! Keep me posted...

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