Hi Jamie, Sorry I haven't responded to you. I don't get on here very much. I am a leader of a support group for Alopecia Areata in Northeast Ohio. We are having a meeting this coming Sat. Nov. 21st at 11:00 am St. Thomas Hospital in Akron, Ohio. We meet in Meeting Room A near the Cafeteria. If you have time, stop by I'd like to meet you. If you want me to send you some info on what our group just let

Hi Jaimie. I read your blog about the Virtuesse hair systems and am wondering what you decided to do? I am considering getting one and am leaning towards those. I am sick of regular wigs and want something that lets me swim and be more active, as i really find I restrict myself from these activities. If you got one what do you think of it? Pros/cons? Thanks :)

As you have been told..one thing to remember is that yes..the prosthetic can get hot.In summer as long as your in air con it's fine.
Winter is the best time.....nothing is full proof.
So just enjoy all the wigs there are as long as they are comfortable for you to wear.

I had no hair for years, then cortisone injections may have helped it grow.That's one theory! Then spars fluffy hair on top grew back check my video..My daughter searched for a solution to my emotional lack of self worth"when it came to my image"She new that I couldn't wear synthetic wigs due to allergies.....besides...they were way to big for my head.She found a prosthesis company..for vacume wigs, suction/silicone wigs.freedomwigs....although, like all of us with patchy hair...have a hard time making that decision to shave it all off.Although you must have a clean hairless scalp for the prothesis to work and suction effective.
Now, i did finally shave and it actually took years of MY FRUMPY HAIRLESS LOOK. "ONE ADVANTAGE" The fact that I have to shave my whole head every day...is annoying.
Then I just don't wear the wig.Also for me due partly to age and sensitivity I get razor burn.Yet that settles down.
I don't mind walking bald "NOT" but what's a girl to do!
My son had been telling me to shave the hair off and go sleek for years.
Wow..I waisted a whole lot of years looking Frumpy!
Yet it's all a learning experience...and not always easy to see ourself as others see us.
I don't mean the negative perceptions from people..I'm talking about the positive energy that comes our way.
Mina

Hey Jamie,

Stopped in to say hello.
How are you?

Jeffrey

Hey Jamie,
Thanks for the post. My wig is a human hair piece. It's really comfortable. My scalp is super sensitive so I was having trouble with any wig that had the thicker lining. This lining is ultra breathable and there are 4 places where tape is adhered. Pretty comfortable. i stll have cropped hair that I wear with hats and bandanas but soon it too will be gone. This was from a lady named Giselle here in Winnipeg. She has had alopecia for 20 years and she was awesome.

Thanks for the compliments on the wig! It stays on terrific! It has 4 pieces on the inside of the wig that have to be taped, but it is really easy and quite comfortable. I got it from a place called Kathleen's Creative Expressions in McHenry, Illinois, and the owner Kathy deals with cancer and alopecia patients and provides all kinds of fabulous hair alternatives. She was so nice, too! It is specifically a Rene of Paris, 14 inch, real human hair full lace wig. Let me know if you have any others questions!
-Natalie

its synthetic. cost me 59-74 bucks. beauty trends was the company. Im so ready to invest in something more real and nautral!! you do any research on what way to go?

oh its all wig...and its time for a change. i have had this style forever! but thanks for the sweetness! its so nice to feel like you can actually talk with people about this....i feel like out in the "real world" hehe i cant stand saying the words of hairloss or even the dreaded word wig! if you know what i mean

You are very pretty and should not be upset.. I know how you feel as I have FPB or dr says so sometimes i just dont know what to believe as my hairdresser says nothings wrong... Its hard I know.. and i have had a REALLY hard time my fault is I have shared it too much and have found out the hard way that does nothing to help the situation as I always feel people are looking at me there all the time because I've aired it so... I think you look beautiful in your pic! Have a great Easter!

Jamie,
We are on the 2nd trial hairpiece now and are awaiting her custom one. The first one she hated she said it was too big(full) and looked fake althought everyone else loved it. The 2nd trial one she loves it was little thinner and we did a little different haircut. My daughter loves it however it does feel a little courser than my own hair and after awhile doesn't quite move as freely as normal human hair. My daughter is very active and straightens it everyday so this does not help it. She also doesn't wash it enough because it is a little more difficult because she cant lean her head back. i'll send more a little later got to get back to work.

Tanya

Hi Jamie,
Read your blog. I'm getting the results on my Pituatary this Friday. I just went for a CT scan for a possible tumor...yikes. I'm losing my hair rapidly although still able to cover up all spots. I'm wondering what to do in the meantime before my search for hair begins. Hope your meds are working for you. how are you doing?

Ok great!! Good luck with that and keep me posted!!

Hi Jamie, did you ever get your hair system? If so how do you like it.

Hi Jamie,

I'm new here. I understand that youré looking for a hair system but wanted to ask you about youré picture: that looks like great hair? Is it your own or am I not getting it?

Thanks, Kimbim

Jamie The Chat is in The Right side of the Page u can see there

Thanks for the compliment! I was wondering the same thing about the chance for hair regrowth. It is not really clear and I'm not sure how that will happen. I am going to try to read some more about it.

Hi jamie, I have never heard of Virtuesse Hair System but I just read a little about it. It seeems like it is similar to a lace wig without the lace. Instead it is made with a material that replicate skin and thin enough that it is undetectable even to touch. It also mimic the direction of your natural hair growth pattern. I guess so that it looks real natural. Btw you look pretty in you photo and your hair looks nice.

Hi Jamie!
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn