Comments - Advocacy vs. Acceptance: Why the Two ARE NOT Mutually Exclusive - Alopecia World2024-03-28T10:18:52Zhttps://alopeciaworld.com/profiles/comment/feed?attachedTo=2022678%3ABlogPost%3A734468&xn_auth=noI love your style, Kastababy!…tag:alopeciaworld.com,2014-01-02:2022678:Comment:11295192014-01-02T23:57:56.115Zyouarebeautifulhttps://alopeciaworld.com/profile/goldengirl
<p>I love your style, Kastababy! </p>
<p>Have you seen the movie Loud, incredibly close (?) with Tom Hanks.</p>
<p>You are a pleasant contradiction. You should be a writer if you are not already.</p>
<p>I love people (myself included) who don't fit into neat "little boxes."</p>
<p>I love your style, Kastababy! </p>
<p>Have you seen the movie Loud, incredibly close (?) with Tom Hanks.</p>
<p>You are a pleasant contradiction. You should be a writer if you are not already.</p>
<p>I love people (myself included) who don't fit into neat "little boxes."</p> I agree Tan have bumped heads…tag:alopeciaworld.com,2011-07-25:2022678:Comment:7352512011-07-25T11:53:55.765ZBTB (John)https://alopeciaworld.com/profile/JohnLaw
I agree Tan have bumped heads with the same individual!!!!
I agree Tan have bumped heads with the same individual!!!! *** This is a repost. ***
Yo…tag:alopeciaworld.com,2011-07-24:2022678:Comment:7339252011-07-24T20:24:32.845Zrj, Co-founderhttps://alopeciaworld.com/profile/rj
*** This is a repost. ***<br />
<br />
YoKasta wrote,<br />
<br />
<em>> THAT is the position that AU-NO-MORE is coming from, and it's one that I wholeheartedly agree with. It's a shame that now he has been suspended from AW because of that opinion...</em><br />
<br />
YoKasta, as much as I respect and value your opinion and contributions to Alopecia World, I'm compelled to point out that this is not why AU-NO-MORE was suspended. Rather, in direct violation of the warning that was sent to all members of Alopecia World just the…
*** This is a repost. ***<br />
<br />
YoKasta wrote,<br />
<br />
<em>> THAT is the position that AU-NO-MORE is coming from, and it's one that I wholeheartedly agree with. It's a shame that now he has been suspended from AW because of that opinion...</em><br />
<br />
YoKasta, as much as I respect and value your opinion and contributions to Alopecia World, I'm compelled to point out that this is not why AU-NO-MORE was suspended. Rather, in direct violation of the warning that was sent to all members of Alopecia World just the a few days ago, he had the audacity to come on here and call members of this community Nazis ("alo-nazis" to be exact). Regardless of what may be a person's opinion of alopecia-related matters, this kind of brazen ad hominem simply will not be tolerated in Alopecia World. As perhaps you know -- many other members certainly do -- we sent the aforementioned warning because personal attacks, which have become more frequent than ever, do not enhance anyone's experience in and of this community. Anyone who believes for one moment that this is appropriate behavior as well as that members of this community are not worth their time should certainly find another venue in which to express him/herself. It really is that simple.<br />
<br />
YoKasta also wrote,<br />
<br />
<em>> ...and I too have noticed how those of us with the strongest voices are gradually being driven away, and that is a shame, because having all sides of an argument, rather than an accepted "party" line, so to speak, makes you an informed, educated patient, and an informed, educated patient is an empowered patient.</em><br />
<br />
If someone feels that they were "driven away" or that there's some "party line" which Alopecia World officially or unofficially endorses, then this is as unfortunate as it is inaccurate. The position that both Cheryl and I, and therefore Alopecia World, have always taken -- going back even to our old AlopeciaAndLove blog, which predated Alopecia World -- is that each alopecian should pursue coping strategies and treatment options that make that person feel comfortable in their own skin. Cheryl in particular has been very active and visible in alopecia community for over 20 years and has never once proferred the false dichotomy between looking for a cure and coming to some level of acceptance. So the idea that anyone officially associated with Alopecia World has somehow taken one side or the other on these issues is patently false and misleading.<br />
<br />
The bottom line is that what's true today has always beeen true in Alopecia World. You and every other member of this site are free to have whatever opinion you desire, but every member of this site must also be respectful at all times and adhere to Alopecia World's advertising policy and terms of service. In other words, all opinions are welcome but offensive behavior is not.<br />
<br />
With all due respect,<br />
<br />
rj, Co-founder<br />
Alopecia World I agree whole heartedly with…tag:alopeciaworld.com,2011-07-24:2022678:Comment:7344772011-07-24T18:40:42.392ZBald and Fabulous AKA Terrihttps://alopeciaworld.com/profile/TerriH
I agree whole heartedly with you. It's taken me along time to "accept" my alopecia and do mean accept. I had to come to a point in my life where I was comfortable in the skin that I have and look inwards and shine. When a cure arrives, note I say when not if. When it arrives I will rejoice with others but if it don't I know inside of myself I will be fabulous. The only issues I had with Robert was his personal attacks unto me. His delivery style lacks a great deal. I'm for all opinions but if…
I agree whole heartedly with you. It's taken me along time to "accept" my alopecia and do mean accept. I had to come to a point in my life where I was comfortable in the skin that I have and look inwards and shine. When a cure arrives, note I say when not if. When it arrives I will rejoice with others but if it don't I know inside of myself I will be fabulous. The only issues I had with Robert was his personal attacks unto me. His delivery style lacks a great deal. I'm for all opinions but if you attack me on a personal level....that's where I draw the line. Having such toxicity is not part of my life anymore. And I will dissociate myself from it.