Comments - In defense of Carol's recent blog - Alopecia World2024-03-29T07:57:59Zhttps://alopeciaworld.com/profiles/comment/feed?attachedTo=2022678%3ABlogPost%3A52351&xn_auth=noI'm with you totally Diane --…tag:alopeciaworld.com,2008-06-04:2022678:Comment:556042008-06-04T00:49:22.050Zkastababyhttps://alopeciaworld.com/profile/YoKasta
I'm with you totally Diane -- and you sound just like me, telling the doctor what to prescribe rather than the other way around. Believe me, I am not blaming others for taking the treatment route by any means. I just want the ones here who read my blog who do choose that route to understand that there is an equal chance that the treatments they undergo may NOT work, and so while we always hope for the best, we should also be realistic about the long-term effects. I call it realistic…
I'm with you totally Diane -- and you sound just like me, telling the doctor what to prescribe rather than the other way around. Believe me, I am not blaming others for taking the treatment route by any means. I just want the ones here who read my blog who do choose that route to understand that there is an equal chance that the treatments they undergo may NOT work, and so while we always hope for the best, we should also be realistic about the long-term effects. I call it realistic optimism.<br />
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And you are right about the depression bit too -- although if you care more about outer beauty than inner beauty, I can see where a sudden alteration of your outer beauty could be pretty devastating too. I aggreed with all is said so…tag:alopeciaworld.com,2008-06-03:2022678:Comment:554242008-06-03T14:27:57.778ZDianehttps://alopeciaworld.com/profile/DianeDuchesne
I aggreed with all is said so far but what about viewing the 'treatment' as an initial way of accepting this condition?<br />
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For me, I had to try everything....and belive me, I've tried them ALL!! I'm a pharmacist by background and have worked in research for a few years so I was dictating the prescription to my dermatologist... I was a very very pro-active patient!<br />
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We should not blame others that are taking this route but give them our hands and sharing our experince so can can move forward. Do…
I aggreed with all is said so far but what about viewing the 'treatment' as an initial way of accepting this condition?<br />
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For me, I had to try everything....and belive me, I've tried them ALL!! I'm a pharmacist by background and have worked in research for a few years so I was dictating the prescription to my dermatologist... I was a very very pro-active patient!<br />
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We should not blame others that are taking this route but give them our hands and sharing our experince so can can move forward. Do not judge the way THEY choose to cope with this conditon.<br />
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Diane<br />
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PS: One more little thing: hair loss does'nt cause depression.... Causes of depression are complex... brain chemical imbalance is the major cause, with others factors such as heridity, genes, personality, situations, medical conditions... Well said Yvonne!tag:alopeciaworld.com,2008-06-03:2022678:Comment:553762008-06-03T11:46:38.009ZCarolhttps://alopeciaworld.com/profile/Carol29
Well said Yvonne!
Well said Yvonne! I can not be on the fence wit…tag:alopeciaworld.com,2008-06-03:2022678:Comment:553062008-06-03T05:37:51.131ZYvonne~Yhoneyhttps://alopeciaworld.com/profile/Yvonne
I can not be on the fence with this one; I have to agree with Carol and Yokasta.<br />
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Treatments are not cures...a treatment "like all medicines and prescriptions" are the doctors guess work. They are testing and trying to see what may work for an individual, may being the key word.<br />
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Some of the treatments are barbarous and can cause more harm to what healthy/unhealthy hair follicles you may have. I could not continually allow the doctors to guess work on my head after 3 different types of…
I can not be on the fence with this one; I have to agree with Carol and Yokasta.<br />
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Treatments are not cures...a treatment "like all medicines and prescriptions" are the doctors guess work. They are testing and trying to see what may work for an individual, may being the key word.<br />
<br />
Some of the treatments are barbarous and can cause more harm to what healthy/unhealthy hair follicles you may have. I could not continually allow the doctors to guess work on my head after 3 different types of “treatments”. There was one thing that worked rather quickly for me, but it was very painful for me (cortisone shots) yes my hair grew back and I kept it for a few years but then the spots started again and they were bigger…But because I'm not into allowing someone to inflict physical pain on me for the return of hair, I chose to buy wigs and cover up.<br />
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Then there were prescriptions for creams, can’t remember all of the names and different compounds that were in them…all I remember was one burned my scalp so bad it looked like I had a 3rd degree burn on my scalp, Thank GOD my skin color came back from that. And then there was a cream that cost so much for me at the time, it was cheaper for me to buy a high priced wig and cover up.<br />
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So, I guess it didn’t take much for me to become feed up with the “treatment train”… I have learned to look at it in this manner; until the medical community can pinpoint the true cause of alopecia…there will not be a cure. They are only capable of giving you band aids that your body will become immune to and adapt to.<br />
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I am not trying to burst hope bubbles on treatments but ultimately I had to ask myself this question:<br />
How much pain or disappointment will I need to go through before I can love and accept who I have become?<br />
I had enough and I had to make peace with that battle of wanting my own hair back.<br />
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To Carol’s comment from her blog: “There is nothing wrong with people who have alopecia, there is something wrong with the way others view people with alopecia!”<br />
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Oh I so agree Carol!<br />
Bottom line…it is up to us to have the self acceptance and love for ourselves before anyone will accept you and your different appearance. We have to teach ourselves first and then teach our children about self love and beauty.<br />
It’s all about Accentuating & Accessorizing! :)<br />
~Yvonne Yokasta,
I understand now bot…tag:alopeciaworld.com,2008-05-29:2022678:Comment:525642008-05-29T15:07:19.334ZMandyhttps://alopeciaworld.com/profile/Mandy54
Yokasta,<br />
I understand now both your and Carol's points. At the same time I think Trina just summed up what I was trying to say before on Carol's page (well said, Trina). I agree that treatments are not cures, but I also don't think there's anything wrong with giving them a shot...and I think that was kind of my initial reaction to Carol's blog. My initial impression was that she was saying...treatments never work so you shouldn't bother trying them or having your kids try them.
Yokasta,<br />
I understand now both your and Carol's points. At the same time I think Trina just summed up what I was trying to say before on Carol's page (well said, Trina). I agree that treatments are not cures, but I also don't think there's anything wrong with giving them a shot...and I think that was kind of my initial reaction to Carol's blog. My initial impression was that she was saying...treatments never work so you shouldn't bother trying them or having your kids try them. Yokasta,
I read each of the…tag:alopeciaworld.com,2008-05-29:2022678:Comment:525052008-05-29T12:24:26.165ZTrinahttps://alopeciaworld.com/profile/Trina
Yokasta,<br />
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I read each of the post made and while I understand the frustration, I think it is placed wrongly. I mean I am on both sides of the fence. No, treatment is not a cure but there are people living with Alopecia who are in fact reacting to the treatments and therefore for them that is there cure. However short lived it may be. I wake up every morning and thank GOD for allowing me to be here and while I have many other issues because of my Alopecia I still smile in the morning because I…
Yokasta,<br />
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I read each of the post made and while I understand the frustration, I think it is placed wrongly. I mean I am on both sides of the fence. No, treatment is not a cure but there are people living with Alopecia who are in fact reacting to the treatments and therefore for them that is there cure. However short lived it may be. I wake up every morning and thank GOD for allowing me to be here and while I have many other issues because of my Alopecia I still smile in the morning because I could not have waken up. While my daughter is young and may not understand the treatments, she knows the situation could get worse and decided to deal with the treatments. I mean no a person should not have to adapt. But as a parent we talked and at 8 she undetstands what can happen and I gave her the option and she may not have understood everything but if there is a chance for her to have some normalness in this crazy world I want to give her that! She has watched her mother be strong and endure anything so I know that she knows she can make it. But what I think a lot of people on here myself included is that we did not just wake up and become strong because of the alopecia. We each endured hard times and rough patches. While most days I am glad to not have to sit in a hairdresser for hours, there are few times when I wish I did not have to deal with this mess. The moral is why would there be medicine if not to treat ailments? and just as with cancer there is no cure but people go through treatments to place something into remission. I just believe that if everyone alopecia was the same then we could say do nothing, but with all the research I have done, there is hope for some. I would rather them deal with that then to lose themselves. For through hope and faith great things have occured. I am not saying get lost into having hair but at least allow them to deal with life and their treatments their own way. YoKasta
Thanks for saving spa…tag:alopeciaworld.com,2008-05-29:2022678:Comment:524972008-05-29T12:06:00.818ZCarolhttps://alopeciaworld.com/profile/Carol29
YoKasta<br />
Thanks for saving space on my page LOL I'm happy that someone agrees with me, I went to bed feeling bad about venting online. Damn technology gets thoughts out faster than you have the time to actually process it and apply ethics and morals. But it is frustrating when people are just blindly trusting and riding the medicine train that their doctor put them on. I'm just trying to put people on the airplane so they don't have a bumpy ride. Hope that makes sense?!?!?!
YoKasta<br />
Thanks for saving space on my page LOL I'm happy that someone agrees with me, I went to bed feeling bad about venting online. Damn technology gets thoughts out faster than you have the time to actually process it and apply ethics and morals. But it is frustrating when people are just blindly trusting and riding the medicine train that their doctor put them on. I'm just trying to put people on the airplane so they don't have a bumpy ride. Hope that makes sense?!?!?!