Comments - How it all started... - Alopecia World2024-03-29T13:07:54Zhttps://alopeciaworld.com/profiles/comment/feed?attachedTo=2022678%3ABlogPost%3A263953&xn_auth=noI feel for you, Carol. I real…tag:alopeciaworld.com,2009-04-22:2022678:Comment:2802902009-04-22T22:18:13.788ZClaytonhttps://alopeciaworld.com/profile/Clayton
I feel for you, Carol. I really do. Even though it's been close to 20 years since I lost my hair, I can remember like it was yesterday. That sinking feeling in your stomach, the loop of questions playing over and over in your head, wondering if there was something you did to cause this. I know what you're going through and I'm sure everyone on this site understands.<br />
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Hopefully, there will be re-growth, it DOES happen and right now, I'm with you, concentrating on whatever good may still happen.…
I feel for you, Carol. I really do. Even though it's been close to 20 years since I lost my hair, I can remember like it was yesterday. That sinking feeling in your stomach, the loop of questions playing over and over in your head, wondering if there was something you did to cause this. I know what you're going through and I'm sure everyone on this site understands.<br />
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Hopefully, there will be re-growth, it DOES happen and right now, I'm with you, concentrating on whatever good may still happen. There's time enough later to deal with whatever hand you're dealt and we'll help you with that.<br />
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Right now, hope and pray for the best! One thing though, you're a lovely young lady whatever happens. You're blessed with great facial features and good bone structure, things most women would love to have. If worse come to worse, you'll just be showing them off all the more! LOL Stay strong and keep your head up. With Alopecia you have no clu…tag:alopeciaworld.com,2009-04-11:2022678:Comment:2723822009-04-11T13:18:08.320ZLori Mhttps://alopeciaworld.com/profile/LoriMcBeath
With Alopecia you have no clue when it will all fall out or if it will. i have been losing my hair steadily for a year now. It started off as a bald spot at the back of my neck at the bottom. Then one developed on the side of my head and then i ended up with the turban pattern which is hairloss all around the periphery of your head. Now the rest of my hair on top is thinning like crazy. About two months ago I went and saw Debbi Fuller about vacuum wigs and they are amazing!!! I felt like holy…
With Alopecia you have no clue when it will all fall out or if it will. i have been losing my hair steadily for a year now. It started off as a bald spot at the back of my neck at the bottom. Then one developed on the side of my head and then i ended up with the turban pattern which is hairloss all around the periphery of your head. Now the rest of my hair on top is thinning like crazy. About two months ago I went and saw Debbi Fuller about vacuum wigs and they are amazing!!! I felt like holy cow I can have a normal life again!!! When I say normal I mean normal for me. Plenty of people with Alopeica do just fine without vacuum wigs. Anyways I don't have the guts to shave my head now in order to get one. Now when I look in the mirror "sans wig" I see the phantom of the opera (when his mask is pulled off at the end) and that really gets to me. I have some nice wigs which I am wearing now which are synthetic but am gearing up for the vacuum. I too am doing the steriod shots and big deal they are creating "down like on a duck" on my head so don't think I will continue with them too long...I have pretty much accepted that this is how it is going to be and I am moving on. There are still days though where I think you know this just really sucks! I had one of those days the other day when I wrote my blog.<br />
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Give yourself time. You will see it gets better. We all have bad days and I know you feel so alone. I get like that too. On those days I come to Alopecia World and get all the hugs I need. Here is a super big hug from me to you! And Carol you are stunning without hair. hi~ i had the same experience…tag:alopeciaworld.com,2009-04-11:2022678:Comment:2722802009-04-11T05:55:24.261Zellehttps://alopeciaworld.com/profile/elle
hi~ i had the same experience of having all the lab tests done with hopes it was thyroid or something but it turns out i am the perfect image of health (except for this). But cheers to our health right? but just recently i do need a wig or something... you look so cute with your hat.
hi~ i had the same experience of having all the lab tests done with hopes it was thyroid or something but it turns out i am the perfect image of health (except for this). But cheers to our health right? but just recently i do need a wig or something... you look so cute with your hat. Carol, I empathize totally wi…tag:alopeciaworld.com,2009-04-01:2022678:Comment:2647952009-04-01T04:04:07.168ZJeff Whttps://alopeciaworld.com/profile/JeffW
Carol, I empathize totally with you. This is a traumatic affliction and the fact that it is so unpredictable only makes it worse. Like yourself, I went through exhaustive testing almost hoping there was an underlying treatable illness to attribute this to. Even the best doctors can't predict where this will progress, so at times it's discouraging to pay our doctors to tell us "I don't know" (what caused it, when it will stop, whether or no the hair will come back). Please hang in there and show…
Carol, I empathize totally with you. This is a traumatic affliction and the fact that it is so unpredictable only makes it worse. Like yourself, I went through exhaustive testing almost hoping there was an underlying treatable illness to attribute this to. Even the best doctors can't predict where this will progress, so at times it's discouraging to pay our doctors to tell us "I don't know" (what caused it, when it will stop, whether or no the hair will come back). Please hang in there and show that pretty smile as much as you can. This site should help you see that alopecia need not be a hindrance to our beauty, success, and happiness!<br />
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Jeff Hi ..I am VERY surprised that…tag:alopeciaworld.com,2009-03-31:2022678:Comment:2641592009-03-31T04:31:51.119ZLeehttps://alopeciaworld.com/profile/Lee
Hi ..I am VERY surprised that a DR would say you would probably lose all of it. Nobody knows with this condition what is going to happen. My Dr told me he would make mine come back. That was 2 yrs ago and I am still bald. They really should learn how to deal with these situations better. Your hair can come back ESPECIALLY if this is the first time you have had alopecia...so do not lose hope. If it does come out, there are many options out there as well.
Hi ..I am VERY surprised that a DR would say you would probably lose all of it. Nobody knows with this condition what is going to happen. My Dr told me he would make mine come back. That was 2 yrs ago and I am still bald. They really should learn how to deal with these situations better. Your hair can come back ESPECIALLY if this is the first time you have had alopecia...so do not lose hope. If it does come out, there are many options out there as well. Hi Carol,
Our situations are…tag:alopeciaworld.com,2009-03-31:2022678:Comment:2640362009-03-31T02:09:37.169ZPaulahttps://alopeciaworld.com/profile/Paula57
Hi Carol,<br />
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Our situations are sound very similar. Mine started on January 17th, and I am very thin all over. I can still wear a hat without it being too noticeable, but I feel like my weeks are numbered.<br />
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The good news is that I am seeing some regrowth. I've been told by a dermatologist that when it falls out fast (like ours) and when you are older (vs as a child) prognosis is good (read my blog for more details). It will likely take 3-4 months to see any signs of growth.<br />
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It's hard to accept…
Hi Carol,<br />
<br />
Our situations are sound very similar. Mine started on January 17th, and I am very thin all over. I can still wear a hat without it being too noticeable, but I feel like my weeks are numbered.<br />
<br />
The good news is that I am seeing some regrowth. I've been told by a dermatologist that when it falls out fast (like ours) and when you are older (vs as a child) prognosis is good (read my blog for more details). It will likely take 3-4 months to see any signs of growth.<br />
<br />
It's hard to accept but there is absolutely nothing you can do to stop the hair loss. You can only manage it. It's been very traumatic for me as well but I feel hopeful this will reverse itself soon. And this site is very inspiration and encouraging to see so many people who have such great attitudes about their alopecia.<br />
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Hang in there. It will be ok.