I remember when we first saw that quarter sized bald spot on my 5 year old daughter's head. I was terrified and determined to make sure I found a way to stop the inevitable. Trust me we tried everything, thinking the solution was one experimental treatment away. Finally my daughter said she was done with the painful injections, irritating treatments and crazy diets. There was a big fear of the unknown, but I knew ultimately it was her decision whether she wanted to continue. She just wanted to get on with her life. I was still scared of what that future was like. I spent a large amount of my time searching alopecia on the web. It consumed my life for many years. My daughter moved on with her life, but I still secretly struggled. After a while it just became normal. I learned to ignore the stares, unwanted questions about her health, and the ridiculous advice I got. A lot of my fears disappeared. My daughter had friends. She still participated in activities. She has a ton of confidence. She is very humble and loving to others. She is able to talk intelligently to strangers about her condition. She is empathetic to others. These are qualities that other parents wish for their children. I don't know if these qualities are a result of her having alopecia, but if they are I am glad it has turned her into such a wonderful child. So I don't spend much time on the internet looking for cures and treatments. I really don't seek out the support I use too. In fact this weekend my daughter had a gymnastics meet where she did awesome. Someone in the stands mentioned they knew a girl with Alopecia and wished that she could have seen my daughter that weekend. We live a normal life. We have moved on, but I know there a lot of people still struggling. I forget what a role model my daughter has become. It didn't happen overnight, but it did happen. I am so proud of her.

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Comment by IvoryBlue on October 15, 2016 at 6:53pm

She is beautiful!

Comment by Momtoalopecia on October 27, 2016 at 9:25pm

What a beautiful young lady you have there.  What a story of how she overcame. My son has suffered from alopecia since junior high. He is now 25. It changed his life (not all bad). He has become a strong young Christian man that has a lot of confidence. His large patches have grown back now but it's always in the back of his mind that it may fall out again.  Thanks for sharing your story.  I know as a mom it's hard to stand by and see your child suffer.


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