Where acceptance is all there is
I've never written on a blog before so I am hoping the I can learn from reading about other peoples experiences but also get some thoughts regarding my own.
In the last 3 months my hair has gone from having one small 10 cent piece patch missing behind the right ear to multiple patches across my scalp and hair loss on my arms and legs (patchy). By the time I saw a dermatologist on April 18th (with a complete battery of blood tests having just been undertaken to rule out everything else, t was quite noticeable and I was using hair thickening powder to try and conceal some of the patches. He diagnosed alopecia aerate and injected steroids into multiple sites over my scalp. Within a week I had hair coming out in massive amounts when I washed it or put gel through my hair and it started turning very grey, very suddenly.
I called the practice and they advised me †his was not normal. On 28th April I shaved my head with a number 1 clipper set as I couldn't stand it. It has not really grown very much and when I shaved it again on Friday 9th June very few hairs came out from the clippers.
Long story short my GP (who is an amazing woman called in a favour so that I could see a leading Dermatologist early June (as opposed to August which was her original next availability). She prescribed me prednisone straight away and ran more blood tests and a biopsy (all of which came back clear). The prednisone dosage started at 50mg a day and tapered to 37.5mg in the second week Tomorrow I am due to taper to 25mg. I am questioning whether there is any benefit. It is making me extremely moody and irritable and I certainly feel a suppressive effect on my immune system. I can't tell that it is doing anything to restore hair growth and notice that my eyebrows are starting to thin.
When I saw the dermatologist for a weekly follow up she candidly said that she thought there was about a 3-5% chance of regrowth because of the sheer aggression of the alopecia and that it may end up alopecia totalis or universals. It has taken a strong toll on me psychologically, Much more than I thought. I want to stop the steroids this week (I was given that option medically), but I don't know where to go to from this point...