People who give advice and won't let it go annoy me

Why is it when others give advice about so-called treatments ie special diet/acupuncture/holistic/chinese herbs etc and I don't immediately say hey that's a great idea I'll try that today, they get that look or tone that says you poor closed minded woman you aren't open to any help so it's your own fault if your hair doesn't grow back! I've had this conversation so many times it's getting old. These days I just nod politely and move on. However, some people don't know when to back off. Even when I've said I've tried this and that, that what I have is an auto immune disease and doesn't respond to strengthening my immune system they persist. Since having polymyalgia rhuematica which is another auto immune disease I get the same advice. I'd like a short simple answer to stop them in their tracks but haven't found it yet.

Views: 27

Comment by Cheryl, Co-founder on May 1, 2011 at 1:05am
I usually tell them, thank you and that I have tried many things. I have come to a place that I truly believe that my life and I are fine the way that I am, and if it was meant for me to grow back my hair it will naturally.

With the wig question, I usually tell people that it took me way too many years to get to a point of self-acceptance, there is no way I am going to start hiding again now.
Comment by Pat on May 1, 2011 at 4:07am
Seems like this is a common problem among us and thanks all for your creative replies, from the serious to the hilarious. Made me have a quiet chortle ....
Comment by Julie Koch on May 1, 2011 at 1:49pm
I get the same types of ignorant comments when I talk about my severe, burning scalp pain that accompanies my hair loss and seb derm. I have been told by SO many doctors and of course family that it is ALL IN MY HEAD. I understand that I do have some mental issues like eating disorders, anxiety, depression, OCD and PTSD but I know MY body and when people tell me that my pain is IN my head I want to scream! Sometimes people just have no idea what others are feeling and although they think they may be helping or giving us hope, they are really just telling us that we have not thought this through and something can be done to "cure" us. I simply don't talk about my scalp pain unless I have a good defense in place and stand my ground... How sad is that? We shouldn't have to defend our conditions or ourselves to ANYONE else. I'm just glad that my family finally believes me because I have 2 wonderful doctors that validate my feelings and told them this is a real condition and not IN my head... Thanks all for sharing your thoughts!
Comment by Cindy on May 1, 2011 at 2:44pm
HAHAHA! Most people who know me, know I wouldn't want to wear a wig and it cracks me up to envision myself in one! I'm sort of an androgenous looking lesbian already, then to think I get alopecia and turn fem with a wig! NAh, bandanas, beanies and buffs do it for me. My little students love the bunny beanie from Guatamala (check on ebay-they're cheap and beautiful).
But I had a parent (I"m an elementary teacher) who said, "What a great opportunity to wear really wacky hats!", I said that I really wasn't into drawing MORE attention to myself. He was "Oh yeah, I guess not."

Comment

You need to be a member of Alopecia World to add comments!

Join Alopecia World

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service