Comment by Jennifer on May 29, 2011 at 8:29pm

My name is Jennifer and I too have had alopecia for 10+ years. I know this is probably not want you want to hear but I would consider a suctioned wig. They're made out of silicone and I never feel like I'm sweating that badly (plus you can swim which is awesome). Don't give up, remember that alopecia does not have to define you. I hope I'm not being a broken record, but here's the website for the company I use: http://www.fuller-hair.com/

Comment by R0BB on May 30, 2011 at 10:06am

Hi Violet -

We have alot in common. I also have had repeated fall outs and regrowths over the past ten years.
In a word , I agree ...it just plain sucks.

Compliments dont help
Whispers and comments surely dont help

I have to be honest and say that the biggest help to me , has to be the fact that I have been able to find support , guidance and some sort of acceptance here on this website. I realize you may not be at a place in your mind body and soul to grasp this notion of mine but I wanted to let you know that you are not alone.

After 30+ years of my AA struggles , this site has helped me more in the past 3 months than anything else Ive ever done to help cope .

Someday Im sure I'll get the chance to shake hands , and actually sit and talk with another that shares our pesky condition ... but until then , this website is the next best thing.

I know the phrase " Be thankful , cuz things could be worse " is over rated but there is significance to this saying. Being here on AlopeciaWorld.com has introduced me to many folks that indeed are stronger , more outgoing and have more severe cases of Alopcia than I do. This amazes me , how strong a person can be.

Alot of Alopecia sufferers have lost every strand of hair on thier bodies and have no sign of regrowth ever.

In my case , in the past , and as of right now , this isnt the case for me and I am thankful for whatever hair I do have .

Theres no magic words of encouragement or miracle fixes.
Ya just gotta come to terms.

Im getting there - I will get there .

PS - I still get pissed off on a regular basis and I tend to not take my own advice sometimes ( ok alot of the times )

Hang in there and add me if ya like .

- R0bb

Comment by Bald and Fabulous AKA Terri on May 31, 2011 at 12:12pm

I use to feel just as you, how can I possibly go thru this again??? How many more times am I going to watch my hair fall out, regrow, fall out, regrow. ...... I was so depressed and cried at a drop of a hat. I even remember as I was getting ready for work one morning (which took enough strength) while chatting to my boyfriend online, and finding another large area. I felt completely done. I burst into tears, and since I still needed to get to work, I cried all the way there. Upon arrival, the moment a friend/co-worker looked at me, I burst into tears again. She gave me a hug and I then spent the rest of the day away from customers, hiding in the back rooms. Thank goodness for an understanding boss.
You know what I decided after I shaved the last of my hair off later on??? I dont have the strength anymore to do the ups and downs of this hair loss thing. I decided that regardless if my hair grows back, Im keeping my head shaved. I stopped fighting myself and the hair loss. I stopped torturing myself, cleaning my hair off of the floors and out of the drains. It wasnt about having the strength to shave my head, altho that did take some strength to pick up the clippers. It was more of letting go. Just letting go of those feelings, letting go of fighting. Once I did that, it felt like a weight lifted off of me. Yes there are days that I wish for my hair back, but I try to remember how I felt like when it would fall out again. I do wear scarfs most times, I believe I use the scarfs as replacement hair. For I always liked changing my style and colour when I had hair. And the scarfs allow me that freedom again.(different colours, and tieing, and pinning flowers or accessories) I know I am bald, my friends know, Im not trying to hide that, Im just trying to enjoy it.
stay strong and remember you are beautiful and among friends that love you here.

Comment by Bald and Fabulous AKA Terri on May 31, 2011 at 12:21pm

I just wanted to add, please check out some of my blogs, especially the ones just after I made the decision of letting go and shaving my head.

http://www.alopeciaworld.com/profiles/blog/list?user=1ki8a6n99p0dq

Again stay strong. You have it in you ((( HUGS)))

Comment by Violet on June 2, 2011 at 10:13pm

Thanks for the kind words, Terri, Robb and Jennifer. I have shaved it before, and I am going to do so again this weekend. I feel like a freak though, because I don't like people staring at me. You know, if my hair would all grow together and not have patches, I would actually keep it shaved down very low because it is so maintenance-free. But with spots all over the place, people don't understand and so they like to gawk. I have looked into getting my groceries delivered, and can basically order anything online that I need. I don't have to leave the house except to go to work, but people there know about my condition so it won't be a shock to see me with my head shaved again. My hair has only grown out about an inch since I last shaved it, which was about 2 months ago, so it's not like I'm losing a whole long mess of hair. I just am pissed off at my body for doing this to me yet again. All I want is to blend in with the rest of the world. I don't want attention at all. Being unnoticed and unseen is all I want. I admire that you have such courage - with or without wigs, all of you are getting on with your lives in one way or another. The last time this happened to me just zapped all the chutzpah I had. I have no more in me. I feel all the fear and pain I felt before only this time I have less hope. Thanks again for the kind words, everyone, I do appreciate it.

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