New to Alopecia World but not new to Alopecia


I have never before joined a site like this but I am encouraged to see how beautiful and open so many of you are about having no hair and flaunting it! I hope to be there someday! I am a Mom of two beautiful kids a wife to a loving husband, hair or no hair, and a career woman. I have had AA my whole life but never noticeable to the outside as it was always in places that could be covered and always grew back. After the birth of my first child it became AT and I struggled so much with this transformation. I spent a fortune on wigs and the majority of people had no idea that I have no hair, it took me a very long time to share with my friends my story and after I had told them what a relief...I still can't be seen without something on my head around them but just not having to plan every move in fear of seeing someone out and about without my wig on lifted such a weight off of my shoulders. My next hurdle is the work crowd - I have had wigs and constantly have people coming up to me asking where I get my hair done and literally taking pictures on their phones so they can show their hair dressers!! It makes me laugh everytime it happens but I just want to have enough guts to say...actually it is the Raquel Welch line of wigs -you too could have hair like this! Although this stupid auto immune disorder doesn't usually get me down I have come to stumbling block and thus the reason for joining this group...I am starting to lose my brows and lashes and I cry every time I look in the mirror! I know that I will get past this as I did the day that I shaved thew few straggaly hairs off the top of my head and felt liberated but this is tough. Any thoughts on tatoos and good options for lashes? Thanks for reading.

Views: 10

Comment by Robbi on May 30, 2010 at 11:24pm
Welcome to AW, Kim! I can relate to almost everything you said, and I know how difficult it can be, especially as the you cross over from one alopecia stage to the next (areata to totalis, etc.). I have had alopecia for 18 years, so I understand! I know what you mean about the hair compliments, too--I've had many women approach me about my "hair" & who cut it, ect. One of the things that helped me greatly was knowing that I had options regarding everything from wigs to eyelashes/brows. You'll find there are many groups & discussions on here devoted to that very topic, and they can be some of your best sources of support, help, and power. Like you, I've had alopecia for a long time, but I never had the support I now do on this site. Welcome! :)
Comment by Petra on June 1, 2010 at 2:48am
Hi Kim and welcome. I get a lot of compliments on my Raquel Welch also - I like the dixie Pixie (sp?)
Comment by Norm on June 1, 2010 at 1:37pm
Dixie Pixie?? Really??? Petra, you've made my day... :)
Now, pleeeease tell me there's a Top Crop and a Bob Job to go with it. That'd be ace!!

Kim, sorry to hijack your post, but I couldn't resist... glad you're "getting there" with the bald head. Bet you look great!! And welcome to this place too. Did you remember to bring a bottle?? :)

Norm xx
Comment by Petra on June 1, 2010 at 7:40pm
HA HA Norm, I'll have to check into the Top Crop and Bob Job, it sounds like a style I would probably like :-)
Comment by Kim Burns on June 1, 2010 at 7:42pm
A bottle of shampoo - no haven't needed that for a while!! A bottle of wine - yes want/need it daily!! :) I am more of a Raquel Welch "Bewithched/Tres Chiq" it is all in the name! Thanks for your comment Norm!!
Comment by JeffreySF on June 1, 2010 at 8:26pm
Hi Kim if it comes to the point of losing your brows and lashes I would get the tattoos. I did and am really satisfied.

Comment by Christine on June 3, 2010 at 1:54am
I lost my eyelashes in September and it is now June and they have completely come back! With no treatment either. So don't feel down about them, there's a chance they will come back.
To give you my history: started out with AA, went to AT, then AU then back to AT.
Comment by Christine on June 3, 2010 at 1:54am
I just wore my glasses when i lost my eyelashes and nobody seemed to notice. I just drew in some black eyeliner.
Comment by JeffreySF on June 3, 2010 at 11:52pm
Yay on the eyelash growth I hope they stay put!

Comment by Glenda Folkersen Stroh on June 7, 2010 at 8:31pm
Kim I started commenting to you and added you as a friend! We have alot in common with the way our AU came about. when I noticed my eyelashes going, I had a friend who does perm cosmetics do soft tap tatoo close to my eyelash line... they turned out so nice, I like them so much. With the soft tap they do fade, however our faces change with wrinkles and age. This way I can have her go over them lighter if needed, I also purchased some eyebrow shadows at the last Naaf conference in both brown, black and a little darker than blonde (just for what ever I feel like, or match any wig color I choose) <3 The name is (rubbed off) I will call my daughter (i bought some for her to darken her lite brows). Speaking of NAAF I just recived my packet in the mail for indianapolis...I am so excited! Hang in there, we all learn and grow through our trials and AU has been something I have been able to embrace and own, however I had AA until 32 and was ALWAYS able to cover it (101 ways to cover a bald spot...I should write a book) I often wonder how well I would have coped as a teenager with AU...I will bet that all you teens out there are so amazing, stay strong and you will find a partner who will love you for all that you are...strong, confident, educated and beautiful!


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