I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.
And then 1 week later , corona virus happened !
so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also canceled.
So I am at home now for eight weeks unable to go out and investigate hairpieces , wigs, meds, etc.
Recently, I read on someone’s site about the CBD tincture ?. It is legal here in Michigan so I could try to get?
I also immediately got on an anti-inflammatory elimination diet with my acupuncturist . I am taking some natural supplements for this auto-immune disease. All gluten, sugar, and dairy are gone, among Many other foods.
I did have various blood tests done, but nothing stood out .
i am in my late 60’s and feel so alone and helpless with this, I don’t know of anyone or know of anyone that knows anyone that’s been through this . And being in the state of our world, it’s a struggle to stay positive, especially since the weather is as crappy as it can be.
One person mentioned they got this condition after receiving Botox ?( which I have done at least twice a year 4-5 years now.? )
I Also read somewhere that a reputable Doctor Found a correlation with using moisturizer and make up with sunscreen by your scalp. He is seeing a huge increase with women getting alopecia . (AND I have been using sunscreen moisturizer’s religiously to prevent skin cancer!).
Has anyone else been using Hydroxychlorquine (200 mg) for this condition .?
I just worry about some of the side effects of this medication. I am a natural health person and don’t like taking meds, especially if it can effect your eyesight .
And one of the sites said hair loss was a side effect! I just don’t know . It may be in my mind but I feel like it’s hurting my joints and muscles. And I also have Osteoporosis and Osteoarthritis.
I am an avid exerciser and I don’t want to give in to this.
I’m going full force with meditation trying to deal with this added stress. Although it says stress really can’t cause this I have been through a lot of stress before this happened ?
I just don’t know where to turn next ?.
can anyone give me some thoughts.?