Hi I’m Diane. I thought I would share my story with everyone. About 20 months ago, I was going through a rough time. I was exhausted all the time, had no energy & constantly fell asleep in the chair every time I sat down. On top of all that, I was also losing my hair really badly. Every time I got out of the bathtub after washing my hair, I would see a ton of hair floating on top of the water. I also had to clean a lot of hair off the bathroom sick on a daily basis. One day I went to my Doctor for a routine checkup and I mentioned the symptoms to him. He did some blood work and the results showed my thyroid counts were low. He said that definitely explained all the symptoms. I took thyroid pills for 4 months and my energy returned and I felt a lot better. However, my hair continued to fall out. So I went to an Endocrinologist and he said the thyroid counts were not low enough to make my hair fall out. So, I went to see a Dermatologist. She diagnosed me with Alopecia Areata. I explained to her this was the second time I had lost my hair. The first time being 13 years ago when I got a very rare lung disease and my lungs shut down. I was on respirator for almost 3 days. To get my lungs working again, the doctors put me on steroids. After I was released from the hospital, I noticed my hair was falling out. I thought it was from the steroids and demanded to be taken off them. Unfortunately, steroids you can’t just stop taking and I had to be weaned off them for 3 months. It took months for my hair to finally stop falling out and it took a full year and half for it to fully come back. Now here I am again. The Dermatologist said it was Alopecia 13 years ago too. So, I’ve been doing Injection treatments for a year. I also did Rogaine and taking Biotin. Nothing has helped. My hair continues to fall out and my Dermatologist has basically said the injections have not helped at all. We’ve now decided to stop doing the injections. I now have 3 bald spots on my head (one right in front above my bangs, one at the top of my head and another at the back of my head). It seems like I’ve been crying for months and months. I think i'm pretty much cried out. About a month ago, I went and bought my first hair piece. It’s an intragrated top piece. At first, I felt completely uncomfortable wearing it. I took it to my hairdresser who I totally trust and she shortened it. She also layered my hair and it looks completely natural. I’ve told a few close friends and family members about it and everyone says they can't tell it's a wig. It’s slowly grown on me and I can actually put it on and pull my hair through it in about 3-4 minutes. So, while my life is still spinning from this re-occurance, it’s slowed down a little and I’ve cried a little less since I got it. I’ve contacted a support group in my area and I was referred to this site. I’m so glad to be here. I can’t wait to get to know everyone.

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Comment by FANCY1024 on August 23, 2011 at 3:21pm
Hi Bald Tan, Thank you for your kindness and support. It's very appreciated. Your family sounds just like mine. My mother would have said the same thing to me LOL. I have to say, I can't imagine going through this in my teenage years. High school is hard enough without that. You must be a very strong person!! I am praying my hair loss does not get any worse! looking at all the pictures on this site is really scary. Just the thought that mine could get that bad! I'm in the process of buying a couple of full wigs so i can get used to them if they are needed. Crossing my fingers they will not be needed. On a positive note, i've always wanted a different hair style. Partially there! :)
Comment by Vintino on August 25, 2011 at 9:24am
My dermatologists had shockingly never seen alopecia. And she had been practicing for 10 years or so. I turned out to be a spectacle that day for her and the 2 interns. That was about 5 years years ago because of one 50 cent sized spot behind my ear. I went back for my check up a month later and and my hair started to grow back using clobex topical spray. But I quit using it after 2 weeks because I started to blister from it. My hair grew back thin and white at first... then it grew back normal after about 3 months. On my check up visit a month after the first visit... she had a few other dermatoligist there and there interns as well. They were happy for me that my hair was growing back... but then I was told that my insurance would pay for those two visits but wouldn't cover anymore because it was a cosmetic issue. But they don't take into account the mental issues that this caused. I grew my hair out to the middle of my back to cover all of the new spots and that worked out fine for about 4 years. 6 months ago I lost an eyebrow and part of the other. So now they are shaved. If my skin wasn't so sensitive to tatoos I would do it. But I got a tattoo almost 20 years ago and it didn't go so well. Still gets infected once in a while. I'm losing hair all over my body now. But it hasn't really got worse for over a year. My facial hair is doing something silly and has been for a while now. The bald spots seem to move over time. Looking at pictures from last year... I can see it... but I would have never noticed it without looking at the pictures. You're not alone here. And it does help to vent sometimes! Wishing you well...


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