This is Chandler's mom, Lisa. I read the blogs on here everyday, trying to learn something new and learning how everyone deals with this mysterious disease. Chandler is 10 years old and got a 2 inch patch about 5 months ago, 3-4 months later almost all of her hair was gone. We were totally shocked, in disbelief,confused, etc. We went to many different doctors and they all said the same thing, there is not much you can do about this. That part really amazed me. None of the doctors ever would try to think of something else, they would just say the same thing. I would be really impressed to find a doctor that said let's think about this disease and try to find a solution! Let's try a variety of things! Anyway, I can go on and on about the doctors in this country and how they do not explore or open their minds when confronted with a difficult disease.
Right when we found the 2 inch patch on Chandler's head, we investigated the disease ourselves. We stopped her allery shots, stopped her Singulair medication, reduced all stress, started taking hair vitamins and started applying Dithro-Scalp Cream (5%) and Clobetasol Propionate Foam (.05%).
After having alopecia for 5 months, her hair is growing back. The front of her head at the beginning of the hairline is still hairless but everywhere else, there is hair growth.
We are not going to get our hopes up yet. I have read that it can fall out again and usually does. But, so far, it has been growing for about a month and looking good. I just wanted to let everyone know and hopefully this can help someone. We will keep you posted.

Views: 30

Comment by Jane on August 23, 2009 at 3:34am
It’s important to remember that hairgrowth is one of the 'last' processes related to how the body functions normally. Non-gender battery related alopecia (but not male-female pattern baldness genetic trait (also called androgenetic alopecia) related) can be attributed to many factors including, but not limited to stress, allergies and recent illness. You sound like you have a solid supportive strategy for your daughter. When she is older (say over the age of 18) if she still has periodic medical/allergen-auto-immuno (but not hiv/aids type related defect) related episodes she might try the corticosteroidal injections (brand name Kenalog/generic Triamcinolone) as they stimulate growth regardless of the cause. Holistic things to incorporate would be carefully monitor her diet and exercise regimen and also make sure she has age appropriate vitamin supplements (Flintstones chewables until about age 16 or so ; adult supplements which are more potent might be ok after age 18) but you and she should speak with her pediatric internist for more specific recommendations.

You can find more information on the following website:
http://www.onlinecliniqueforum.forumotion.com

Good luck to you and the little ones.
Best regards,
Jan
Comment by Cindy on August 23, 2009 at 3:59pm
Hi Lisa, That is wonderful news. Thanks for sharing. My daughter Sam is returning to school next week without a wig for the first time in a year and half. We did choose a treatment that is working for her. I respects everyone choice as to whether or not to try something. I wish Chandlor lots of luck with regrowing her hair. Cindy

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