Comment by Tallgirl on July 21, 2011 at 6:46am

My hair was all gone about 13 years ago, but then came back except for my top of my head. I again have eyebrows and eyelashes. You just never know what alopecia will do.

Why not wear one of those cotton Israeli kefiya scarves, with twisted ends brought over the crown of your head? The part hanging in back looks like hair, and is quite feminine.

Comment by zoitsa theo on July 21, 2011 at 7:06am

Thanks for the tip Tallgirl. I have youtubed a bunch of videos on fashionable ways to tie headscarves and bought a bunch... so I am good with them!
I am so pleased that your eyelashes and eyebrows grew back... they must be the toughest to be without. Alopecia is just so confusing! And there are just no answers! I saw this other website saying it is curable... i think it was www.alopecia-areata.com if you go get treatment in Moscow. I am so gulliable that I feel like maybe I should try? It might take a while before I can afford it though...

Comment by Tallgirl on July 21, 2011 at 7:09am

If anything really works and is not a fraud, it will be on www.naaf.org. Save your money until then on good restaurants!

Comment by R0BB on July 21, 2011 at 7:51am

Quote " Save your money until then on good restaurants! "

Wise words .

Hi Miss Z - Ive had all the instances you describe above.Few circles , alot of circles , half a head, most of the head, and also self imposed slick and/or sandpaper head !!

Usually , my shedding and growback FULL CYCLE lasts about 9-12 months total. Give or take a month or two depending on what one would consider a typical growback condition and Im sure everyone's cycle of alopecia and its effects can be different from mine. And as we all know - full growback and/or longevity of the growback is never guaranteed. ( Sounds like the disclaimer to the SMART CHOPPER or the SHAM WOW ! )

Comment by Pat on July 21, 2011 at 7:18pm

Ditto to tg and robb...if there was a cure we would know about it. In my 20+ years experience with alopecia - from the crop circles to being hairless and back again and now a bit of everything - I know alopecia does what it does regardless! For those who say stress is the cause...I think it is a trigger for some of us if you can pinpoint an exceptional stress period in your life just prior to the onset of aa...but for most stress only happens because we've started to lose our hair and is not the cause of it. I really take exception to people who say we cause our aa because we are stressed. It's an auto-immune disease...our body is attacking our hair follicles...and that's it. I have another auto-immune disease and no-one blames that on stress! Dr's should know better.

Comment by MiNAH on July 21, 2011 at 8:39pm

I also see myself as a map of "THE WORLD" It finally hit me ... and I thought about letting it all go, as I was so damn fed up with doctors, treatments, hiding, fear and crying inside and out to myself. I waited for 40 years and I wont let my hair loss win over me and my life, so I realized, that what I couldn't change, what gave me no choices, I decided to not waste another precious minute of my life wondering, wishing, wanting, hoping, needing, crying, and beating myslef up over. Also I let all those who feel the need to pass judgment, who have all the answers yet never experienced hair loss, I gave them the BOOT! Now I know the difference being free, than being under the spell of societies ignorance...

Comment by Sunshine on July 22, 2011 at 6:02am

Because society is so much about how we look people take advantage. That includes doctors too with the latest cure for whatever is making us sick bald or. Whatever.....please spend your precious time and hard earned money on things that. Matter more. An otherwise healthy life and a husand that loves you and still wants to be your partner and lifemate. Take care both of you.

Comment by Sarah Car on July 22, 2011 at 8:33am

My personal experience with AA has beeen cycles of loss and growth since I was 3. In my 29 years of life I cannot pinpoint any triggers which start the hair loss nor anything that helps the growth. Some things appear to help with regrowth but for me it never lasts. Right now I'm in a period of growth and I stopped shaving about a month ago. Between my own personal experience and what I've read about others' experiences it seems like those of us with AA all have similar patterns but nothing exactly thesame. I say don't waste time or money on miracle cures and treatments. Spend it instead on the stuff that really matters... positive supportive relationships with family and friends.

Comment by Lisa Santer on July 22, 2011 at 10:33am

Hi Zoitsa! As others are saying, there's no telling how long an episode will last, or where any individual person's will go. That unpredictability is useful to folks who want to sell us cures: by coincidence alone, some people's hair will grow during/after anything we do. Personally, over 33 years, I've had every variation possible, more than once, including full regrowth, for varying lengths of time. Knowing it's impossible to predict is somehow freeing to me.

With my hair loss, like everything else tough in my life, I got happier once I let go of what I don't have and focused on what I DO have. Sometimes it helps to make a list, like: I know A loves me regardless of my scalp status; I can swim on a whim; I have a well-shaped head; . . .

Comment by Bald and Fabulous AKA Terri on July 22, 2011 at 2:06pm

I feel for you for I too have lived with this rollar coaster ride of alopecia. My first bout started when I was 8 years old and it was a lot of crop circles til it got so much that my mom cut it short and got me a wig. Shortly after I lost all of it. It grew back but I would spend years with crop circles coming and going. I did all the treatments available but ever seemed to make a difference. Just last September I finally got sick and tired of the rollar coaster ride and shaved the last of it off. Plus side the only time I get the razor out is to clean up some small patches of hair that are still on the head. No leg shaving, no arm pit shaving, no waxing of any sort. I have been a lot happier since I stopped worrying about when will it grow back. And cleaning up hair all over the place. I will share with you one thing I found when I let go was the release I found by not cleaning up hair anymore ..... every time I put my hair in the garbage it was like putting little by little myself in the trash. I deserve to be treated better then being in the trash. Not to say that my choice is for everyone. Treat yourself the special and beautiful person the best you can.
I agree with everyone here and save your time, energy, and money from all theses "miracle cures" keep the positive energy around you. One day maybe the cure will come about and when it does it won't be on some internet site. It will broadcast on NAAF and by the professional medical field. And if not you will have been working on the wonderful positive self-esteem that will serve you through out life and will aide others.
Take care and (( hugs ))

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