Alopecia World
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Less than normal
I remember when my bald spot seemed to just get bigger over night. I tried to fill it in with black eyeliner. Putting the eyeliner on the spot didn't seem too bad, taking it off did :-) Sometimes I still cry because I feel like I'm not normal because of the bald spot. I feel like nobody around me actually understand what I feel. My family and friends always tell me that they can't see my bald spot whenever I put my hair in a ponytail but I am always saying, "its still there". I know that they are trying to be supportive and I'm thankful for it, but in the end nobody is looking at them with a bald spot, it's only me :-( I try to stay positive and not get all depressed over it. I found out about this website last week :-) Coping with alopecia is hard, knowing that I can recieve support and encouragement through others who know and understand what it is like to live with alopecia and try to understand also what it is like for others who have to live with individuals who have alopecia or baldness from medical treatments. I know how much I stress my family out about it, they sometimes just try to make me feel normal but I don't feel normal. I have been coping with alopecia since I was eight years old and now i'm twenty-six.
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Comment by Jennifer Easter on May 9, 2010 at 7:09pm
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i feel like i am in the EXACT same spot (not pun intended) as you! i have about 20 spots now & its SO hard to cover them! mine started at age 5 & im 26 now too... i think its harder on me now than it was then, even with the kids teasing me all the time. at least they were just kids, but who would have thought that grown women would be even worse?! ugh... stay positive girl... it could always be a lot worse... you could have just lost your eyebrows!
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Comment by Shereka Moore on May 9, 2010 at 7:25pm
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I was thinking about getting hair implants or something like that. My sister, who is also my hair stylist is not in agreement with me. She said that she would do some research and we would discuss if it is the best option for me. She said hair implants can still fall out so it may be a waste of money and time. I guess she is right but I just want to have a head full of hair (my hair).
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Comment by Tallgirl on May 9, 2010 at 9:27pm
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It is underneath, so hair implants may also fall out. Better to find a head-covering you can feel free and breezy in...be it scarves, hats or awesome wigs that make people turn their heads for appreciative, not critical, stares! I am a cover person, but some people here are also Boldly Bald. By the way...we are are normal together here on this site! The Haired Ones are "The Others."
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Comment by Carmen Dayhoff on May 10, 2010 at 9:34am
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i just want to say:What IS normal anyway??It really jus depends who u r.We r ALL wonderfully&beautifully made in the image of our creator!"Normal"is not normal.There r too many variables in life.
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"normal" is BORING! i think the people on this site have, by far, the best attitudes i have EVER seen! talk about a good place for a pep-talk!
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Comment by Susan P aka DGADBS on May 11, 2010 at 2:58pm
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funny thing, the spots I have left are where I have hair! I'm almost completely bald now, one narrow strip on the top (like a mini mohawk) and another few spots at the back, and that's it! I shave the little buggers every morning because I like the smooth look. So far I still have my eyebrows and my eyelashes and I'm thankful for that!
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Well girl. don't go for normal. jus try to b u. i know thats easier said than done sometimes. reform "normal" in ur mind. don't b hard on urself.
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Comment by Joshua on May 12, 2010 at 8:41am
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I have deal with alopecia areata since very young, and been dealing with alopecia universalis since 16 and now I'm 25 y/o. I can understand your feeling, I'm okay with my alopecia most of the time eventhough I have to deal with the fact of self-consciousness that I'm an alopecian. I accept the fact that being hairless is something abnormal but never a day I feel less normal or any less capable than people who a full head of hair, eyebrows, eyelashes...etc. In fact, there's a bunch of guys stare at my head, my face then at my legs when I was jogging.
I know how your family try to make you feel normal about alopecia. Nevertheless, we have all deal with alopecia for more than a decade, we may have lesser hair than others but it doesnt make us any less capable to living ordinary lives like others. Therefore, live your life to the fullest! live your dreams with full of hope and pride. Alopecians are tough and robust people of the society, not many people can deal with alopecia...how many people out there are willing shave their head for a cause? (Eventhough they know that it will grow back)...being bald for two weeks is impossible for many people...but we have live with it for how many days, weeks, months, and years? and yet we still can laugh about life. Alopecians may have less hair, but we have seen more in what truly matters in life. Take care...sending you a virtual hugh. you'll be fine. never stop talking to us. God bless.
Joshua
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I apologize for commenting back sooner. I want to thank you all for your support; it means a lot to me. I don't mind wearing wigs but I prefer scarves instead. It's hard to find the right wig. Hopefully I will find one soon if not then I will continue to wear the one that I have. I have accepted that I have alopecia; but I need to become one with it so that I can feel whole. I want to be at peace with myself.
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very uplifting post, Joshua.
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