Having this disease sucks im only 15 years old. I just started 10th grade. People found out that i had this andyhey laughed and made fun of me. It sucks. I wear my hair up every single day. Im gettig treated. Thank god theres something to help. I feel embrassed of it. I just wish it will go away

Views: 197

Comment by michael on September 16, 2013 at 8:45am
I'm sorry you're dealing with this. I live on long also, I also went through school with alopecia and I know how you feel it sucks and is very hard to deal with I hope your treatment goes well good luck and hang in there
Comment by michael on September 16, 2013 at 8:45am
I live on Long Island I meant stupid iPad
Comment by Tallgirl on September 16, 2013 at 12:33pm

I had to deal with this in high school, but I used half-wigs and wigs to eliminate anyone's EVER seeing my bald spots. What they can't see, they can not know...only assume. So, you CAN, if you CHOOSE, just get an instant new look (or 2 or 3...), great make-up, some great shoes and clothes, put a smile on your face and confidence in your walk, invite friends over for pizza, and get into your studies, football games, hobbies, the arts, faith groups, music...and still have a fantastic high school experience. Stay away from The Stupids, get alopecia explanation brochures from www.naaf.org for teachers, counselors, friends and school principal, and just walk away from bullies. Think about collecting your college dorm stuff and credits for now. High school WILL pass. Alopecia is in the genes, so you can get a different look while waiting to see if medical advances ever solve this. Maybe you will like the new wig style even better than your own hair!

--A Teacher, age 60, who has had alopecia show up since 1963

Comment by Tallgirl on September 16, 2013 at 2:07pm

Find a friend or a meeting. Ask where the good wig salons are.

New York
Alopecia Support Groups

Long Island, NY
Margaret Staib

Manhattan, NY
Jodi Schaiman

Bedford, NY
Nancy Maniscalco

Binghamtom, NY
Karen King

Albany, NY
Robyn Signorelli

Telephone Contacts

Buffalo, NY
Nancy DiBella

Rochester, NY
Barbara Figura

Highland Mills, NY
Diana Smith

New York City, NY
Marc Glashofer, MD

Comment by Jason on September 16, 2013 at 3:05pm

focus on getting healthy!

Comment by Ashley ingordino on September 17, 2013 at 3:16pm

thank you guys I know now im not alone and have people that understand

Comment by Ken Johnson on September 19, 2013 at 1:31pm

People can be such asses when it comes to Alopecia. I'm almost fifty and the people I worked around was as asinine as a grade schooler. Don't let them bother you with comments and actions focus on what is important to you. I recently had a girl look right at me and say Eww so I politly told her you know I really thought you was a very pretty girl but your attitude makes you very ugly to me. I had to snicker as her jaw dropped as she walked away with nothing else to say.


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