Hello I've not been on here for a long time. I have had my hair back and it got quite long so guess I was happy and didn't need the support. I was diagnosed with endometriosis in dec 2012 and have struggled since. Had 2 operations in less than a year and been I a couple of hormones and stopped them after suffering hair loss again. I have lost so much hair it's really thin now, I do wear a hair piece everyday now and just asked for a full real hair wig as I'm so worried it's going to come out again. I have lots of patches now and feel like I want to shave it off but don't want to as I'm hoping it comes in. I have hair growing but more falling out so frustrating and confusing. I will need further operations for my disease which there is no cure for and strongly believe my hair loss is hormone related but there's no proof or no answers. 6 yrs ago was when I lost my hair the first time and still don't know how to cope with it. Embarrassed to talk about it and worry what people think, wish I didn't care really. It's amazing to see how big alopecia world has become :) I go for counselling now for lots of issues and been trying to discuss my hair loss but it's still hard to open up about it. Just not to sure what to do at the moment.

Views: 166

Comment by Tallgirl on April 23, 2014 at 10:47am


Since not much can be done about it, why not pick the PRETTIEST wig you can for yourself? Why not trim your real hair to a length that all can grow together if new hair comes in (so all hairs will be the same length and also so less long hair strands will be around your house to annoy or sadden you), and get your "identity" through the new wig's look? Have back-up signature hats for wardrobe changes, seasons or hot/cold days.

I heard a quote that fits: We grieve for the loss of the vision or dream we had about our hair. But think of it this way: old age also changes hair to gray, white, thin or wire-like texture, and people still love grannies. Even old ladies put on cool wigs for outings and celebrations! And some movies stars/performers have shelves full of wigs (Jennifer Lopez, for one). Even Jason Alexander (Seinfeld) has wigs. We have to deal with who we are NOW, just like those marathon runners with new limbs. Wigs are easily updated, too.

Comment by Sweetie on May 18, 2014 at 10:24pm
Please do try Paleo -numerous women reported recovery from endometriosis from Paleo! God bless
Comment by lynne on July 5, 2014 at 6:50am
Thank you. Well it seems the hair is growing back in again. It's so hard to cope with hair that comes in and out like a yo-yo. I still wear this hair piece for piece of mind for now but hoping to stop wearing it in the next couple of months. I won't recover from my endometriosis now as it was left to get to severe and need to now try have kids on my own through a donor before it's to late. So I'm sure all the hormones will again make my hair come out. Will continue to fight on tho. X


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