Alopecia World
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Feeling emotional
I have universal Alopecia and it has all happened in under 6 months. In the past month, I have lost my eyebrows and eyelashes and let me tell you that was almost harder than losing all my hair. I go back to my specialist on Tuesday and I am trying to prepare myself for what I guess I already know. I just wanted to share with everyone that each and every day is a gift - with or without hair and I am beginning to finally embrace that. As hard as it is to look in the mirror some days I dig deep in my heart and realize I am still the same person I was and with the love and support of family, friends, and co-workers I am NOT going to let this beat me. I have a wedding this weekend and of course I am already thinking OMG is someone going to notice my eyebrows aren't real ect.....but then I stopped myself and realized that this wedding is about these two beautiful people that have been a part of my life for a long time. I will celebrate their love and allow myself to have fun. I'm rambling..........this is my first post.
Have a good weekend everyone!!
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Comment by JeffreySF on June 19, 2016 at 10:37pm
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Hugs!!!
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Comment by Stars-r-Aligned on June 22, 2016 at 6:32pm
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I always though people with alopecia lose their hair quickly... I think I may have it as well.. And I was questioning whether I had it or not BC although my hair is thinning its taking some time for my hair to go.buy I'm glad youre in good spirits...if I have this idk if I will be.
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Comment by CourtneyBrieAnna on June 22, 2016 at 8:42pm
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I envy your attitude. Being that positive takes work when you have recently lost all your hair. I too am recently AU, for me it happened all within 2-3 months. Eye Brows and lashed included. Your right it is hard to look in the mirror but having a good support system really helps. I am working on staying positive but its hard sometimes.
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It is so very hard and some days I just want to crawl under the covers and stay there. But most days I embrace this and I received really hopeful news from my doctor this past Tuesday that my regrowth - even though it is as white as snow - is a very good sign. She said it could be the medication or it could be just regrowing on it's own. I actually have seen a few more eyelashes on my top lid so that is very encouraging also. But I am also realistic that it could all fall out again so I don't want to get my hopes up to high but it is something. :)
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Comment by Lucy on August 9, 2016 at 3:09am
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Hi maples I was encouraged by your blog thank you . I also have good days bad days, wig on days wig off days however I'm still struggling to come to terms with my alopecia. What medication do you take :-)
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I have been taking Plaquenil. My doctor isn't sure if it is the medication or my immune system decided to settle down - you just never know. But I do have white regrowth now and the pigment is beginning to come in on some parts of my head. I do have some eyebrows but they are still white but my eyelashes are BACK! I feel hopeful but also realize all this could turn on a dime. That is what makes it so emotional - you want to have hope but you have to know there is always a chance it could happen again. Thank you and try to keep positive!!!
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Oh I'm so happy for you X I have no eyelashes and had to get my eyebrows tattooed . If you don't mind me asking maples what age are you? I'm 54 and as I lost my hair so quickly over the space of 6 months it really knocked me for 6. My partner and family have been very supportive and my one year old granddaughter thinks that she can remove every ones hair like her Nana's lol
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I am 55 - just turned! :) It is wonderful to hear you have support and how cute about your granddaughter. Other than looking a bit different I have decided I am NOT letting this disease take over who I am. Like I said I have good and bad days but I try to surround myself with people who love who I am and what I stand for - it doesn't make looking in the mirror any better but it does help me to be stronger and love deeper.
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