Diagnosed today with Alopecia Areata

Hello everyone. I am so happy to find this online community. I was officially diagnosed with alopecia areata today and spent a lot of time crying. I am not new to auto-immune diseases with having Hashimotos and Celiac's already. My bald spots literally came out of no where and now I am trying to get my mind wrapped around what this means for me. The doctor prescribed a steroid to put on my scalp, and would like to hear the communities experiences and opinion on this. Thank you 

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Comment by Rainy on April 3, 2019 at 10:46pm

Hi Cybergirl,

I am 46 years old.  When I was about 5, I started losing my hair.  I ended up losing it all, including eyebrows and eyelashes.  My mom took me to doctors and specialists and none of them knew the cause.  They thought it was due to stress.  I went from kindergarten through fourth grade with no hair and wore a wig.  That summer all of a sudden my hair just started growing back.  When I returned to fifth grade I didn't need a wig.  It was good until I was around 19, when it started coming out again.  I lost over 50%.  I was referred to a dermatologist and luckily throughout the years there was new information about hair loss.  They diagnosed me with alopecia.  They did tell me there is no cure, and unfortunately there still isn't today, but they were able to give me a form of steroid inections.  I believe the doctor called it Kenolog.  They give you shots in your head where the hair loss or patches are.  It is supposed to help stop the hair loss and help with regrowth.  It took awhile, but it eventually did help.  I think it took about a year, maybe less before I started regrowing my hair.  But it did grow in nicely.  I never used any creams, just the shots.  Thankfully, I haven't had an issue since.  My hair has never been really full like normal people's hair is without alopecia, and my hairline is high, but I do have hair now.  I hope this helps you.  Good luck and feel free to message me if you have any questions or want to talk.

Comment by Cybergirl on April 4, 2019 at 11:11am

Thank you so much Rainy for replying.  Communities such as these are so important.

Comment by Rainy on April 5, 2019 at 12:14am

You're very welcome.  Let me know if you have any questions or would like to talk.  I have dealt with this disease since I was five.  Best of luck to you!

Comment by Cybergirl on April 5, 2019 at 7:05am

Thank you so much Rainy. I have come a long way emotionally and mentally since first being diagnosed. Now that I have come to grips with what I have and that I could end up losing all my hair, I can move forward. It just took me a minute to get myself together, but am determined that this disease will not determine the quality of life I will have, but I will. 

Comment by Eve on April 10, 2019 at 3:00am

Hi Cybergirl

I have a trick that I use it is because I have frontal fibrosing alopecia that it works for me. I'm not sure that it will cover your bald spots but it is very easy to do and it's not a full wig. I take a cotton stretchy headband 2-3" wide, mine is black from the drugstore and I ordered real human hair extensions removed the clips and sewed them on the inside of the headband all the way around. You can then put the headband on and then pull all of the hair up into a messy bun. You have a second layer of hair all the way around where the headband is that you can put up in a ponytail or braid if you choose. You can also add a second headband on top like a spandex Paisley headband to match your outfit, on top of the cotton headband. I also have one only with human hair extentions sewn from ear to ear and not all the way around the back for when I wear my hair down. See photos. I get many complements from people that do not know I have alopecia.


Comment by Eve on April 10, 2019 at 3:15am


Here is what my creation looks like. It is not hot like a wig or topper.0410190011.jpg0410190009.jpg

Comment by mastros on April 14, 2019 at 6:04am

Xeljanz (Tofacitinib) is a medication that a lot of people have been using over the last years and has helped to grow hair. 

Tofacitinib is part of a general family of JAK inhibitors which target to stop signal of the immune system related to making hair fall (that is very high level description of it) 

There is a lot of research going on right now by many pharmaceuticals and universities to introduce new better medication.

People have been buying Tofacitinib from various markets around the world

You can check for more in this thread discussion


Comment by Eve on April 14, 2019 at 6:30am
Comment by Cybergirl on April 14, 2019 at 8:05am

Eve- that looks great! I never would have guessed that it was a topper. I just bought a topper from a company who cuts it into your hair, but the stylist put layers into it. I have never had layers in my hair ever. Now I have a 1500 topper I hate and won't ever wear. 

Comment by Vijay Kumar on May 6, 2019 at 7:12am

Don't worry, friend... Every problem has a perfect solution. Alopecia is also cured with the proper treatment. 


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