I've never "blogged" before so be patient as I must learn as I go.

I feel like I'm an outsider in Alopecia World, which saddens me because I thought here was a place where I'd find people who would be more accepting and understanding than anywhere else. Please don't misunderstand; I'm not making accusations, nor am I criticising anyone in here. I am "different" from most people with or without alopecia. I've always marched to the beat of another drum, not concerned with what others thought, and my ways of "self expression" have never been conventional. While friends have said that it's good to be this way, I'm starting to think maybe it's not.

Maybe a quick overview of issues might be helpful. First I suffer from clinical depression, what some call "double depression" because it comes from both of the main sources - trauma from childhood and a chemical imbalance in the brain. Treating this is very difficult because both causes have to be "healing" at the same time. I've been in therapy for years and years. I've also tried every anti-depressant available but none have helped. I'm told that this is not uncommon which is why they continue to make new ones. Maybe, sometime in the future, a medication will be found that will help. I tried ECT (shock treatments) which mostly damaged my memory.

In December 2005 I had a stroke and lost 25% of my lower left peripheral vision. The doctors discovered I have a genetic blood disorder - I produce too much clotting material and from the spots on my brain I may have had tiny, pin-prick strokes perhaps all my life. I am now on cumadin which is a powerful blood thinner that must be monitored by technicians at the hospital.

I'm tired a lot of the time and have to fight living in solitude.

I've been a Christian for 32 years now. I began my relationship with Jesus 18 November 1980, which I consider my born again birth date. It's ironic, but the depression was a blessing - I was very receptive to the Holy Spirit tugging at my heart to accept Christ. Depression plus my anxiety disorder makes you feel very insecure relationships. It took a long time to feel secure with my Father in Heaven. But I got there and have been used by Him in a lot of ways I know of, and I suspect even a lot more in ways I don't know about. Jesus told me that the world would hate me because He lives in my heart. Maybe that's a reason why I feel like a misfit here? For some that may be true, but I know not for everyone on here. But even if that's so, I'd rather keep the Son of God over fitting in.

Finally I think my attitude about being bald is what seems to seperate me from others who are bald. I love it! I feel special and think it's a great look on both men and women. I thought so long before I lost a single hair. This could be why others with alopecia aren't comfortable with me.

Back in my care-free, hair-free days in my 20s when I was in college I wore wigs. I had a variety of them and wore them for fun, not because I was hiding or ashamed about being bald. I dated more and made more friends with women than ever. But these were the so-called "normal people" not others with alopecia. I guess in the end it's not finding others like me or also feel like I do that makes me feel so alone here. I'll admit that straight guys bald one day, blonde the next is unusual; but I did say I march to the beat of my own drum.

The following is an essay I wrote back in my wig wearing days. It is about self esteem and hair loss and although I've gotten a lot of positive feedback from non-alopecians. I have gotten a few comments from alopecians, but for the most part there has been silence.

I'll close for now.

God bless,

Larry

A Special Wardrobe
“What’s in here?” Susan asked. We were shifting some of my belongings and among them was a storage box with the word “Herman” scrawled across the top.
“Take a peek,” Denise advised with a twinkle in her eye.
“Eek! There’s something furry in there!” Susan screamed as she dropped the box.
As Denise laughed, I picked up the box and with mock indignation over the word, “furry,” and explained to Susan that she had picked up my wig box.
“But these wigs are all different colors and styles, Larry, are they all yours?”
Susan had asked the question most people ask fairly soon after a relationship is formed.
“I’m totally bald and my lifestyle includes wearing wigs on those days I feel like being a “haired” person. I adore my bald head and spend time making it look good and feel nice. I like hair too, and with wigs I can enjoy a variety of looks in different hair styles and colors.
It is possible to be both bald and “haired,” and enjoy being both.”
“I think that’s wonderful!” Susan exclaimed with a look of sincere delight and approval.

The way we feel about the way we look is important. Physical beauty is one of the cornerstones of self esteem and it is one of the most vulnerable. This is an article about how I have dealt with this subject in one area and I hope that it will inspire the reader to find solutions to their own threats to self esteem.
I have been fortunate in that my hair loss experience was not burdensome or a source of great anxiety. The reason for this is simple -- I did not see baldness as a disfigurement in others so I did not see it as such for me when I went bald.
I am a Christian; as such, I strive to see people the way God does. I don’t see “ugly” people. The physical body is much too frail to be a vessel in which a person’s beauty and worth can be housed. Even those who are deemed to be “beautiful people” will be stripped of their attributes through age, disease or accidents. So much of what society labels as beautiful is not even intrinsic; a cursory examination of history and other cultures will show the great diversity and transitory nature of so called Perfect Beauty. The diversity of beauty in human beings is staggering if we are receptive to developing an appreciation of it.
Most bald headed men and women I knew or had ever seen never struck me as disfigured or ugly. I believed that they possessed beauty in ways that were different from someone else; indeed, those bald people who incorporated their baldness into their self image in an open and positive way seemed even more attractive and even exotic in their beauty.
It is hard to believe in one’s beauty especially if it flies in the face of conventional standards. It can be done and I have had some success at doing so. It does help if there are people in your life that will support you and believe in your beauty, too.
The first wig I got was a present from someone who knew I wanted one but couldn’t quite get the nerve to get it myself. I think that I would have eventually but this speeded things up for me. The wig was christened “Herman” by my friend Holley and became the first for many more to come. The support Holley provided cannot be praised enough. She genuinely liked what I was trying to do and did everything possible to help me create my lifestyle and get all I could out of it. She encouraged me not to wear hats or wigs in public after I began to keep my head clean shaven because she knew that I really wanted to. She and many others have made my balding experience one of the great blessings in my life.
I love being bald and feel special and attractive even more than I did before my hair fell out. Rarely do I use the term “hair loss” because I don’t like the connotation that I have “lost” something. I feel that my beauty was changed and not lost when I went bald. I will probably be self conscious of being bald for the rest of my life, or as long as bald is perceived as unusual. The option is whether or not to feel good or bad, attractive or unattractive because of it.

After we finished moving my stuff, I treated Susan and Denise to a “fashion Show” complete with bad jokes and funny stories about my experiences. When it was time for Susan to go, she kissed my nude scalp, cooed that she thought I looked cute, and said that she believed that bald is beautiful. I thanked her and told her I thought she was beautiful, too. She grimaced and said that she was hardly beautiful considering that she was this, that and the other thing. I took exception to her self deprecating remarks and tried to put into perspective what I have written in this article.
“Having hair does not make one beautiful, nor is it true that bald is beautiful in and of its self. Being bald doesn’t make a person beautiful, Susan, but a person can make baldness beautiful. The same, perhaps, can also be said for this, that and the other thing.”

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Comment by Larry Barbee on February 2, 2013 at 1:55pm

I'm so glad you liked my essay and got something out of it. I'm also glad you took the time to tell me.
God bless,
Larry

Comment by Larry Barbee on February 3, 2013 at 5:17pm

I always love to hear from you - you are my best online cheerleader!
No, I'm definitely not a "militant" Christian who tries to force my views on anyone. I may give my testimony and "witness" and used by God as His instrument, but I've never "Saved" anyone - including myself - the Holy Spirit does that!
I'd love to talk about my dives. My profile photo is of me after my first open water dive - we swam and played with the manatees! I hope to put some more photos up in the next couple of days.
God bless,
Larry
PS Tell me what you think of the pictures of my boy I'm about to put on my profile.

Comment by Emily on February 16, 2013 at 9:00am

A beauful outlook on your experiences...i enjoyed it very much...God bless you :)

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