In the past few weeks, I've really changed. Changed in the sense that I'm not allowing myself to hide that I have alopecia anymore. I'm no longer considering it a 'secret'. I shouldn't be ashamed of it, because alopecia is apart of me, and I will not be ashamed of myself. It was difficult to talk about it before to my family, and even worse when I talked about it to my best friend. I would always end up crying. But recently, I told more of my friends, without a single tear, and they understood. They didn't look at me different, nor did they feel uncomfortable. They accepted me for who I am. And that felt so good, that I think I'm becoming addicted to letting it all out. I want to talk about it, tell people, and have discussions. I also told my boyfriend that I have alopecia, and he said it doesn't change anything. That response, made me feel like for once in my life, alopecia isn't ruining anything. Just because I don't have hair, doesn't mean I don't have true friends. I've been wanting to post this since last week, but it's better late than never. :)

Views: 948

Comment by Nikki on May 22, 2013 at 2:37pm

I've found that acceptance is the answer to all our problems. My 3 year old son has Alopecia Universalis and I struggled with acceptance thinking there was surely something i could do to change this or find answers. The answer i have found for my whole family and our son is just finding acceptance in where things are today. Living life on lifes terms and making it the best day we can. One day at a time. Thanks for sharing everyone.

Comment by Lili Añel (aka Eulalia) on May 22, 2013 at 3:41pm

Bravo! Good for you, Jackie. You may come to find that there are those new people you meet that won't accept you because you have alopecia and accept yourself, and that you don't wear wigs (I don't). Its all good. As the prayer says: "May those who love us, love us and those who don't love us, may God twist their ankles so we may know them by their limping". Keep moving forward.

Comment by Lili Añel (aka Eulalia) on May 22, 2013 at 5:11pm
mkkiki I was where you are before my hair all went. I found such relief to no longer worry about the breeze blowing and my spots showing. I wound up with more spots than hair. I shaved the little bit that was left and never looked back. Remember you are wonderful, beautiful, smart and powerful. Move forward. Hopefully you will in your time. We are here to support. Alopeciaworld was a help but ultimately you have to do take the plunge. Believe in yourself.
Comment by Jessica Hoschouer on May 22, 2013 at 8:26pm

WOW!!! Sounds like me but I was five

Comment by Cindy on May 23, 2013 at 10:28am

I love it when I hear the stories about courage and acceptance. I have been living with Alopecia for 27 years, half of that time I was struggling to keep the hair on my head abusing my body with all the different types of treatments, in order ,to maintain face for the world and hair on my head. It has been two and half years now that I decided to be true to myself, stop the hiding behind wigs, avoiding the wind and going to isolated beaches so my patches wouldn't been seen by anyone. I am now free and authentic as can be...I am ME. The soul is what gives us character, so shining on the inside makes us glow on the outside. Be brave,bald and beautiful!!

Comment by Sue Ellen on May 27, 2013 at 2:26pm
Good for you. I told my coworkers - really had to accept it right away - because one day I had hair and the next day I was wearing a wig. I have 3 wigs and they are all different. If I have to wear one, I may as well have some fun with them. Going to Europe on vacation this summer and I'm going to wear a wig but take scarves to be cooler. I figure no one knows me there so I can be myself. Often at home I have to touch my head to remember whether I'm wearing a wig, scarf or au natural.
Comment by Anyanwu Chinyere Oby on May 29, 2013 at 10:30am

For me Jackie it wasn't very easy during the early years when I discovered that I had AA,I thought the world was caving in on me.I wondered how I was going to meet a man who would accept me in Nigeria this is a hard nut to crack. I meet this guy whom I dated for 4 years before we broke up and he totally accepted me and helped me become open and free about AA.Now I can leave my house without a scarf or my wig if I want as I am no longer a slave to any form of hair piece. Right now I really don't care what anybody thinks because God created me in His own image and likeness, NOW; that is what is important.

Comment by Sue Ellen on May 29, 2013 at 10:53am
Just a day after making my post, my emotions did the roller coaster ride and I got depressed and started crying. My husband and I were watching an old movie and the women all had 40s hairstyles and looked so feminine. I told my husband that although I talk like I'm strong and accepting, there are days when I just want to cry when I look in the mirror. I guess like anything there will be good days and bad days. Hugs to all my alopecia sisters who are struggling.

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