Wow. I googled my disease and found this community, full of people going trough things I've experienced too. I've never met someone who been diagnosed with alopecia, I've never met a person who actually heard of it before! Exept for the doctor I went to when I was thritheen and wondering what the h*ll was going on with my hair.

In the spring 2003 my friend was going to braid my hair during an artclass and found a naked spot above my left ear. The feeling under my fingertips of naked skin where I were supposed to have lots of hair was odd. Very odd. For weeks I kept checking the spot, and it grew bigger. Much bigger. In the end my mom took me to the most stressed up doctor I've ever met in my life. It took five minutes of his time to check my me, poking with sticks in my hair, to get to the conslusion that it was alopecia. He kept saying, "Mhmmm," Yes", "Okay", "Aha" after every single word mom said.

Five minutes of his time. So many years of mine. I kept hating him a lot. But also kept saying to myself that it was his job to "just" figure out what it was. It wasn't his job to comfort me or say "I'm so sorry" or "We'll figure this out". But still he was Dr Evil.

School was hell for about a year and I felt like a freak not knowing that over 100.000 others in my country also were going trough loosing their hair. But two wigs, several extensions and fakehair pieces later almost all my hair is back, during summer.I've noticed that during the summer almost all my hair is growing back, but the closer I get to winter, the more hair I loose. (Which is in some way ironic cause I otherwise love the winter, the cold, the snow, skiing, iceskating)

I hope to meet new friends here and share my story and help supporting those of you who is going trough alopecia.

Views: 3

Comment by Mari on January 29, 2009 at 1:06pm
I sure can empathize Johanna, my story is so simiular. Weird how someone else's simple, even careless words, can change us for the rest of our lives lol. It is great that you have been able to hold on to the positives!
Comment by Mukti on January 30, 2009 at 10:36pm
I'm sorry you had a such an experience at such an early age! I was in 6th grade when I first discovered I had alopecia areata. I was seen by a few doctors who didn't know what they were doing! I finally saw a wonderful doctor who was very caring and understanding. I'm sure she has retired. The last dermatologist I saw was nice but I feel that he probably used me as a ginuea pig! I will never go back to him. I've seen other dermatologists but again they are young and in-experienced!

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