Well so I had my 2nd dermatologist appointment today. It was kinda depressing. The doctor was upset the spots had spread as much as they had in only 3 weeks. He said, "I had a feeling this was going to happen with it having coming on as quickly as it did." He said that usually when it starts so fast like that (I had 4 spots right away within a week at first) that the treatments are usually not as successful as someone who just goes in with one little patch (based on what he's seen in his patients, I mean). He confirmed that there was only signs of regrowth in 1 of the 5 originally injected spots. Really makes me lose faith that the injections are working...I feel like that one spot of regrowth probably would have occurred without the injections. Anyway...we decided just to focus on the 5 biggest spots on top of my head, rather than injecting every single little spot. I really didn't like the idea of having 3 times as many divots in my head as last time! He also prescribed some lotion stuff this time to put on every night. Based on what I've heard, I don't have a lot of faith in this stuff, but I figure I might as well try it once.

Views: 7

Comment by Drew on May 23, 2008 at 5:58pm
Sorry I didnt think to check your blog before asking how it went. I can understand the whole not wanting to inject all the spots. As far as the lotion give it a chance and see what happens. I've been prescribed like 4 different lotions and tried 3 of them. The second one was right before I had the regrowth in the one spot so I thought that might work but after trying it on the other spots it did nothing. This last lotion I'm not using at all because I'm sick of the guessing game. When they're giving me acne medicine to dry out and make my scalp itchy to draw attention to it from my body, it sounds more like they're running out of ideas and this might work...I dunno I may be wrong.

But as you know this disease is different for everyone so what works for you could be totally different from me. So give it a shot if you think it might work. Good luck.
Comment by Sue on May 27, 2008 at 11:18am
Hey Mandy, I have been getting the shots for approx 3 years now and they do help me. I went yesterday for this months shots and right now only have the two patches at the back of head around the nape but I have very thin hair on my left side. I have to say I had a hard time sleeping last night as he did give me shots where it was thinning and man did it hurt. I couldn't lay on that one side at all and this morning it is still tender. I sometimes wonder if it worth it but I keep going for some reason. I think I am afraid if I don't go they will never fill in. I tried some lotion also but found it didn't seem to help at all. But like Drew said above, everyone reacts to treatments differently so it may work for you. Let me know how it goes.
Comment by Trina on May 27, 2008 at 3:14pm
Hey Mandy,

Dont lose hope. My daughter is young so her dr. would not give her shots and the lotion has worked. She had to use one in the morning and a different one at night because one alone did not work. But just give it a chance. You would rather to have tried and failed then to have done nothing at all.
Comment by Zoe Dusting on May 28, 2008 at 2:12am
Hey Mandy!
Oh don't listten too too much to your doctor! Hehe. If one spot has already showed signs of regrowth thats great! It usually takes at least two months for my cortisone injections to come into play and for me to see any signs at all of regrowth. My alopecia also usually is active for a fairly long period of time. I know everyone is different, but don't give up faith! I know how that is. I used to walk out of the doctors office feeling so so deflated. But now, i walk out with a big grin on my face for some reason. Don't try to pay too much attention to those spots and just keep keepin on!! Live your life in a way that makes you happy and keep doing all of the things you love. If you feel like trying new remedies and injections than go for it! And if your heart tells you that you've had enough, then listen to that too. hang in there !!


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