Where acceptance is all there is
In July, we posted an official blog titled "What is Alopecia World to You?"
However, in this blog, we want to ask, "What can Alopecia World do for you?"
In other words, what additional site features would you like see?
What improvements would you like for us to make to the site?
How can we better serve you as a community?
What's on your Alopecia World wish list?
Did you know that Alopecia World has several cool “badges” that you can add to your personal website or blog?
You can also add these cool badges to your Facebook or MySpace page or your page on another social networking site!
Simply login to your Alopecia World account, go to this page,…Continue
Added by Alopecia World on November 5, 2008 at 1:30pm — No Comments
Alopecia World has a new chat feature that can be accessed from any page in Alopecia World.
This means that you can visit any page on Alopecia Worldwhile continuing to chat with other members who are online and available to chat.
You can also engage with "private chat" with other members.
Just go to any page on Alopecia World and you'll see the chat option in the far right column.
Give it a try today and let us know what you think of the new and…Continue
This morning a member of Alopecia World raised the important question, "Why are all the featured members or members on the Main Page always from the same selective groupings?"
After noting that the current list of featured members is predominantly female and includes a model, an actress, the "drop dead gorgeous," a stylized photo shoot, a promoter of alopecia awareness, a motivational speaker, and an author, the member also asked "Why are others excluded?" and concluded, "It…Continue
Did you know that you can use keywords to search for members and friends on Alopecia World?
Give it a try. Go to the "Members" section of AlopeciaWorld.com and type search terms like "musician," "writer," "teacher," and "college" in the member search box and then click "Search Members" to find other members.
Also, if you want other members to be able to find you using certain keywords, be sure to include those…Continue
Added by Alopecia World on October 14, 2008 at 8:00pm — No Comments
Many of you have used the "Invite" feature on Alopecia World to invite thousands of other people to join our beloved community.
Thank you for doing so, but we have learned that this isn't the most effective way to invite others to join Alopecia World.
The best way to send such invitations is to do so directly from your personal email account and simply include a personal note and the following Web address:…Continue
Added by Alopecia World on October 14, 2008 at 5:30pm — No Comments
Now you can easily add more cool stuff to your Alopecia World profile. Just sign into Alopecia World, click the “My Page” tab to go to your personal profile, and then click the “Add Applications” link that’s located below your main profile photo.
Once you add applications to your page, you can…Continue
Added by Alopecia World on October 13, 2008 at 10:30pm — No Comments
We recently created several new support groups here on Alopecia World.
These groups are named after the most common forms of alopecia and are meant to provide alopecians who have the same condition with a way to connect, share information, and provide direct support to one another.
Here are some names of the new groups:
1) Alopecia Areata
For the past few weeks, we have been testing a new instant messaging program on Alopecia World.
By all accounts, this simple program, called WHO-IM is working just fine. So, we're writing to let all members know about it.
It's located in the right column on every page in Alopecia World.
If you wish to chat with a member who's online AND has the program enabled, simply click the image or photo that represents that person.
To see a couple of other options, click…Continue
Dear Alopecia World Member,
If you DO NOT HAVE ALOPECIA, then I strongly encourage you to join the new group named “Non-alopecians in Alopecia World.”
If you DO HAVE ALOPECIA, then please invite all of your non-alopecic loved ones and friends to join this much-needed group.
As someone who does not have alopecia, I created the group so that we non-alopecians could encourage and learn from one…Continue
Your Alopecia World profile has its own unique Web address, and you are encouraged to share this useful “page address” with others.
If you would like to learn or change the address of your profile, simply sign into Alopecia World and check out these account options.
There are also different Alopecia World “badges” available for use on your…Continue
Added by Alopecia World on August 26, 2008 at 3:30pm — No Comments
What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. You are also welcome to make suggestions and discuss your plans in the comments section below.
Wishing you great joy and good success,
richard jones (rj) & Cheryl Carvery
Co-founders, Alopecia World
(*ALSO SEE OUR IMPORTANT COMMENT ON PAGE 3 OF THIS BLOG DISCUSSION. THANKS.)
Cheryl and I would like to know how you feel about someone (an alopecian or non-alopecian) joining Alopecia World to look for the love of their life.
For the record, we do not have any problem with singles meeting and mingling in Alopecia World as long as they always bear in mind that this…Continue
Alopecia World member Willow recently wrote us and gave our beloved community a wonderful compliment. She wrote, "I think your web(site) is a miracle to some people, a helping hand to some, but it's an extended family to us all."
We are grateful beyond words that Alopecia World has come to mean so much to so many people. Not just the more than 1,200 amazing individuals who are now registered members, but also the thousands of…Continue
This year, I was honored to attend my first NAAF annual conference. Of course, I owe the privilege to the phenomenal woman of my dreams, my lovely fiancée Cheryl Carvery. She has attended and participated in the conference for 17 years, and this was the first time she asked her mate to accompany her. I'm delighted that I did because, not only was the conference itself great, but it simply made each of my days there to meet and…Continue
Members of Alopecia World now have the ability to rearrange the different sections of their profiles.
Simply login to Alopecia World, go to your profile (or click the MyPage tab), click and hold the title bar of the section of your profile that you wish to move, drag it to a new location on the page, and click again to release it.
That's all, folk!
Please leave comments on this blog letting us know how you like the new feature or whether you have problems with…Continue
Added by Alopecia World on June 6, 2008 at 1:30am — No Comments
Each member's positive contributions to Alopecia World are appreciated and encouraged because our beloved community could never be what it is without your contributions.
Nonetheless, we ask that members refrain from creating duplicate posts. For example, do not post duplicate blog and forum discussions even if you use different titles. Post content as often as you like, but please avoid spamming Alopecia World.
We also ask that you use capital letters only when it's appropriate…Continue
Alopecia World has grown to 1,000 members, and many of you have written Cheryl and I to tell us just how much Alopecia World means to you.
You shared with us how interacting with members of our beloved community has changed your life in positive and powerful ways.
You have also told us how every alopecian and their loved ones and friends could benefit from being part of Alopecia World.
We believe and appreciate what you have said, and encourage you to continue spreading…Continue