Cheryl, Co-founder's Blog (119)

I May Not Love How I Look... But

What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.

Where do you go from there?

How do still develop a sense of self even if you do not believe that you are beautiful?

A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled:  “I may not love how I…

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Added by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments

Winning the Emotional Game of Alopecia

Are You Stuck In A Metaphorical Tug Of War?

My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?

I am convinced that this is more an emotional battle than a physical one.

Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me?  How do I tell my new date?  Will my spouse still be attracted to me? 

My thought is, if it was just physical then “slapping on” a new wig would…

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Added by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments

FDA Approves New Drug, Olumiant, for Alopecia Areata

I recently came across an article that mentioned a new pill for alopecia. 

"FDA greenlights 1st treatment for sudden hair loss caused by autoimmune disease"

"The drug — part of a class of medicines known as JAK inhibitors — is the first approved treatment for alopecia areata.…
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Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments

Five Lessons from the Jada and Will Situation

*Please note that these points apply to adults, not children.

As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of us. …

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Added by Cheryl, Co-founder on May 1, 2022 at 10:00pm — 4 Comments

I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles

Hi Everyone, 

This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.

I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN

(Monday, March 28th, 2022)

If you get a chance to tune in that would be…

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Added by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment

12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia

This is tragic, but I think it is important that we all share this story.  What can we do individually or as a community to help our brothers and sisters?

"Candlelight vigil for 12-year-old North Side Middle School student"

"Nicole Ball claims her daughter was bullied…

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Added by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments

12 Celebrities Who Have Spoken Openly About Hair Loss

"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"

"Even some of the celebrities you know and love have experienced it, and thankfully for…

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Added by Cheryl, Co-founder on March 17, 2022 at 9:42pm — 1 Comment

In Memory of Vicki Kalabokes

Victoria (Vicki) Kalabokes, former President & CEO of the National Alopecia Areata Foundation (NAAF), died on Saturday, January 22, 2022, in San Rafael, California.

If you have been to a National Alopecia Areata Conference you know who Vicki is and all that she has done for the Alopecian…

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Added by Cheryl, Co-founder on January 25, 2022 at 4:30pm — 1 Comment

My bald head is my victory dance. And you?

Things have changed so much for me that most of the time I forget I even have alopecia. But I can assure you it has not always been that way.

I lost my hair 30 years ago. I have now lived my life more without my hair than with it. But at the same time, I clearly remember leaving the dermatologist's office and him telling me that I have alopecia and I…

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Added by Cheryl, Co-founder on September 3, 2021 at 12:30pm — 1 Comment

STUDY: Identification of stigmatization and psychosocial stress in people with Alopecia areata or androgenetic Alopecia

                                                               ------------------------------------

Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss.  This is an anonymous,…

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Added by Cheryl, Co-founder on May 24, 2021 at 10:41pm — No Comments

"Change is hard at first, messy in the middle, and gorgeous at the end"

Did you know that we are not only the owner of AlopeciaWorld.com, but we are also photographers?

I met Michelle online and immediately connected with her.  This session started as a boudoir shoot and ended as a self-journey.  It was very touching and real as the photographs reveal a story of entering into self-acceptance.

Michelle wrote:

"Change is hard at first, messy in the middle, and gorgeous at the end.   Four years…

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Added by Cheryl, Co-founder on May 24, 2021 at 9:31pm — No Comments

REGISTER TODAY - Adulting 101 with Alopecia Webinar

Join me and a group of incredible women with alopecia in a Let's Talk webinar!

Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.

We invite all who identify…
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Added by Cheryl, Co-founder on January 15, 2021 at 1:30am — 2 Comments

Got Instagram? Link to us!

Follow us on Instagram @alopeciaworld and we will follow…
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Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments

Did you submit your photo?

Added by Cheryl, Co-founder on August 13, 2020 at 2:56pm — 1 Comment

Happy International Alopecia Day!

BE PROUD AND BE VISIBLE by flooding social media

with your International Alopecia Day photos and greetings!

 

IAD is a way to raise public awareness, AND to…

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Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments

International Alopecia Day 2020!

SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.

This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.

But, even if you can't have the…

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Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments

Alopecia and Covid-19 (Coronavirus)

A few people have asked about the new Coronavirus (Covid-19) and if we are at more risk because we have alopecia.  I did a search and found this:



Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:



“Alopecia Areata itself does not compromise the…

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Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — No Comments

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 12 Comments

Women with alopecia pose in stunning photo series to show that bald is beautiful

"Models removed their wigs to embrace their hairlessness to pose in a photoshoot which raises awareness of the condition."

Excerpts from an article on Metro.co.uk:

"Photographer Chrissy Sparks, 35, from Birmingham, has photographed thousands of women, of all shapes and sizes, since opening…

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Added by Cheryl, Co-founder on December 30, 2019 at 9:30pm — 4 Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — No Comments

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