Mary's Blog (63)

Thoughts on being a bald science fiction icon at Comic-Con

I want to share my thoughts about wearing my Ilia costume at Comic-Con. Attached is a photo of the original character, played by Persis Khambatta in 1979's Star Trek - The Movie.

For my two days in the costume, when people looked at me, they DIDN'T see a woman with cancer, or a masculine-looking female. They saw me as normal and healthy - more than that, they saw me as beautiful and sexy! (I apologize if this sounds boastful, but the character is much-loved and I nailed the…

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Added by Mary on July 28, 2014 at 1:30pm — 28 Comments

San Diego area International Alopecia Day event on August 2

If you're in Southern California, join us for an International Alopecia Day luncheon in San Diego on Saturday, August 2. Bonus: I'm planning on going on a Bald Mannequin Project photo shoot in the nearby mall after our lunch for those who would like! Celebrate the 5th annual IAD with us from 11:30am - about 1:30pm at Cozymel's in the north part of San Diego near I-805. Private room, party! Please RSVP to me if you would like to come. Family, Kids, Friends are welcome. Bald is optional -…

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Added by Mary on July 20, 2014 at 1:52pm — 4 Comments

The Fifth Annual International Alopecia Day is Coming Soon!

What are you going to do to celebrate International Alopecia Day this year?

Be a part of the fun as people all around the world celebrate and raise awareness.  Wherever you live, plan a party, an event, or just take a photo of your beautiful self on the first Saturday in August - August 2, 2014.  

Last year we had over 105 people from 22 countries - will your hometown be represented in the annual YouTube video?

Here's all you need to know:…

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Added by Mary on July 11, 2014 at 11:18pm — No Comments

International Alopecia Day is Saturday, August 3, 2013!

International Alopecia Day ® is – Saturday, August 3, 2013! Be a part of this year’s YouTube video slide show of International Alopecia Day around the world!

International Alopecia Day began several years ago. My idea was for there to be a day when people with Alopecia Areata could celebrate who we are, and perhaps try going out in public bald for the first time in the company of others with Alopecia. The more cities and countries we have participating each year, the more IAD will…

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Added by Mary on August 2, 2013 at 12:00pm — 24 Comments

Being a bald goddess at Comic-Con

A friend offered me a 4-day ticket to Comic-Con this year, so I decided to make a costume I've thought about doing ever since I lost my hair in 2008 - the bald and sexy "Ilia" from the 1979 Star Trek movie. She spent most of the movie in a skimpy costume and is the only bald leading lady I think Hollywood has ever featured. For those who haven't seen the movie, here's a nifty 10-minute version of the whole movie SPOILER ALERT...this gives it all away:…



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Added by Mary on July 23, 2013 at 5:00pm — 8 Comments

Who's attending NAAF 2013 conference?

I don't know if anyone has started a blog about this, but since I just registered to attend my first NAAF conference in St. Louis June 27-30, I'm curious which of my AW friends are attending.

Who's going?

Added by Mary on May 20, 2013 at 6:30pm — 49 Comments

Outrageous alopecia "joke" by Jay Leno on Tonight Show. Anybody else want to write to NBC?

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. He showed a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents.

The doll only had long hair around the outline of its scalp, and was otherwise bald. He joked perhaps one could do a Donald Trump comb over...the usual yuks.

Then he stated "Maybe its an Alopecia doll I don't know".

I found this incredibly insensitive and insulting. I…

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Added by Mary on May 4, 2013 at 2:00pm — 7 Comments

The Office episode where character shaves her head

Did anyone see the January 10 episode of "The Office", entitled "Lice"? If not - you can watch the whole thing here:

http://www.nbc.com/the-office/video/lice/n31399/

If you do not want SPOILERS, STOP READING this until after you've watched the episode. I'm about to tell what happens....

The office floozy, Meredith, is discovered to have head lice. It actually was likely brought to the office by Pam via her…

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Added by Mary on January 15, 2013 at 11:20pm — 1 Comment

The Bald Mannequin Project!

Tired of seeing all those bald mannequins in the clothing stores and windows and thinking "Why do the fashion world and advertising media think FAKE bald women are so beautiful, but never use REAL bald women?" Maybe we can change that.

THIS IS THE START OF A REVOLUTION!

Step 1: Go to the mall to one of the many stores featuring bald mannequins. BE BALD (very important step).

Step 2: Put on the same outfit that the mannequin is wearing, or stay in your own fashionable…

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Added by Mary on January 15, 2013 at 5:55pm — 7 Comments

My 5th anniversary of the woman I am now - thanks to being bald!

January 30 will be 5 years since the day I took control of my fast-departing hair, and shaved my head. Universalis followed shortly. I'd like to share what I've learned, and how being bald has affected me. Here's a photo taken on January 30, 2008, shortly after I shaved my head.

I began going out in public bald only a few months after shaving. I took "baby steps" to…

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Added by Mary on January 15, 2013 at 2:00pm — 15 Comments

So you think we have it tough having no hair?

Please read this and watch the video in the story, then take a look in the mirror.

http://shine.yahoo.com/women-who-shine/tisha-unarmeds-inspiring-everyday-life-no-arms-no-152100526.html

This is not to deny our very real, life-impacting, and serious issues associated with our hair loss. But, this sure puts my baldness in perspective for me.

Added by Mary on September 17, 2012 at 9:00pm — 1 Comment

"Stop staring and start learning!"

Take a look at this article about a woman with a rare medical condition that only two people in the world are known to have. Once dubbed "The World's Ugliest Woman", she has risen above her challenges and has become a motivational speaker and author. I think this story has a lot of relevance for those of us who feel like freaks due to our hair loss, particularly if we're bald in public.…

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Added by Mary on September 13, 2012 at 8:30pm — 3 Comments

Kinda gross - but could this be a cure for alopecia areata?

I just saw this news story. It doesn't mention AA, but this new treatment is being tested in clinical trials on Crohn's Disease. I wonder if NAAF is aware of this. Here's the story, with the link below:

If you had a chronic and potentially debilitating condition such as rheumatoid arthritis or Crohn's disease, and swallowing the eggs of a pig parasite could help, would you do it?

The team at Coronado Biosciences Inc is betting you would.

The Burlington, Massachusetts,…

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Added by Mary on August 31, 2012 at 12:00am — 1 Comment

International Alopecia Day 2012 - Saturday, August 4!

WHAT ARE YOU GOING TO DO ON INTERNATIONAL ALOPECIA DAY THIS YEAR?

A small get-together with friends? Lunch? Picnic in the park? Walk/run? Info table at a mall? Party? Check out the previous years' videos for ideas. Plan something small or large.

It's our day to raise public awareness and celebrate with friends. For those of you who've been wanting to try going out in public bald for the first time, THIS is the perfect day!

Be a part of this year's YouTube video slideshow…

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Added by Mary on June 15, 2012 at 1:50pm — 51 Comments

As a Bald Woman . . .

I stand up straight and proud

I feel elegant and unique

I'm cool when other people are hot

I rock my large collection of earrings

I sometimes wear jewels or decorations on my head

I feel special

I feel ME

If you haven't tried going OUT in public bald and would like to, an opportunity is coming up soon. 2012's International Alopecia Day is Saturday, August 4! Join the…

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Added by Mary on May 20, 2012 at 6:30pm — 15 Comments

"...I don't give a damn how it looks." - Michael J. Fox

Three years ago (wow, time flies!) I posted a blog about Michael J. Fox, his Parkinson's disease, and how his words are great inspiration for us Alopecians:

http://www.alopeciaworld.com/profiles/blogs/inspirational-words-from

In today's Parade Magazine (which comes with our local paper, and also around the country), there's an interview with him. I have to share a couple of his…

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Added by Mary on April 1, 2012 at 7:19pm — 10 Comments

New short film about AA - "Beauty Queen"

Has anyone heard anything about this project?

http://mi-cfa.com/

There are several YouTubes about the making of it at Michigan State University. Here's one that shows one of the screenwriters who is apparently a woman with AA:

https://www.youtube.com/watch?v=qf-FPa-LzsY

Added by Mary on March 26, 2012 at 7:15pm — 9 Comments

Happy 4th Anniversary to me!

Four years ago today I took back my life by shaving my head smooth. In my first photos on my page, you can see what my hair looked like the night before, and what I looked like right after shaving.

Four years. I wish I knew on January 30, 2008 what I know now:

1. I am still me.

2. It's okay to be bald in public - people don't run away screaming at the sight of a bald woman.

3. I can still feel beautiful and feminine without any hair.

4. Life will go on and…

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Added by Mary on January 30, 2012 at 7:11pm — 8 Comments

Where I'm buying my Turkish scarves (as seen in my YouTube video) these days

Women have asked me where I get the Turkish scarves that are lightweight cotton and have handmade edging. I demonstrated these in my video "Alternatives to Wearing a Wig". The person I bought the scarves in that video from in 2008 is no longer in business.

There are a number of sellers online, and I recently found a new supplier on eBay. She's a woman in Istanbul, Turkey, so the scarves took a little longer to reach me. But, the price was very reasonable compared to others I've bought…

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Added by Mary on January 30, 2012 at 1:30pm — 1 Comment

Cynthia Nixon goes bald for role - and looks YOUNGER!

Here's a link to an interview with the newly-bald actress(for a play about a cancer patient, of course):

https://www.youtube.com/watch?v=1iJDLOwFIV4

I've been told before that I look younger as a bald woman. This confirms that possibility to me. I think she looks WAY younger.

She looks so "normal" to me....too bad she doesn't to most people. We just need more of us bald ladies OUT there.

Added by Mary on January 25, 2012 at 12:00pm — 3 Comments

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