Lionel's Blog (13)

Back online again

It's been a long time since my last visit here, and a long time since my last blog post. A lot of other things have kept me very busy; my study at uni (which I am almost done with already), work, projects, friends and moving to Sydney and back.

In my last blog post back in 2011 I mentioned that my bald spots were returning again which could be confronting at times in a society and age where everybody is focused on looks. Fortunately, after a while my hair started growing back again…

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Added by Lionel on January 9, 2014 at 7:00pm — No Comments

People looking and talking

Hey all,



It has been a while since my last blog post, so I thought it was time to share my story with you again. If you don't care, just read it!



Well, in my last blog I mentioned my bald spots which appeared again. Since then it has gotten worse, the spots have expanded and I look like a dalmatian again.

I have no idea why it has gotten worse that fast, but I guess nobody does.

I don't wear a wig anymore because I just feel that I would be hiding who I am that… Continue

Added by Lionel on September 20, 2011 at 5:00pm — 1 Comment

Stressssss

Heyhey,



It's been quite some time since my last blog post, but that has a reason!

Since last summer my hair has been growing back!

I didn't wear my wig anymore and after some time I had a full head of hair again :)

I was (and am) so happy with my hair!

BUT... since last month or so the bald spots have come back, return of the bald spots! Grrr

I don't mind it too much but still, it sucks.

And I've been thinking, i've been getting bald spots mainly every… Continue

Added by Lionel on March 27, 2011 at 5:36pm — 9 Comments

Hair!

So lately my hair has been growing back as you may have read in one of my previous blogs, and it's been getting better and better. I hadn't really paid so much attention to my hair when it was growing back at first (not so much that I was obsessed with growing it back), but lately I have been paying more attention to it because now I can visibly keep track on the regrowth, and that's fun!

I have a hair-line again at the front of my head again, and I've produced myself a milimetered mohawk.… Continue

Added by Lionel on August 29, 2010 at 11:35am — 1 Comment

Not so bald anymore

Hello all,



It's been a while since my last blog post so I thought I'd give you another update.

And it's not just any update, no no no... It's an update about my hair.

'Huh, hair?' you may think but yes you read 'hair' allright.



So lately I've been doing my best to push some hair out of my head, and I've done well.

For the last couple of weeks more and more hair has been growing back, and I'm pretty excited about it actually. Well, I don't think it's strange… Continue

Added by Lionel on July 19, 2010 at 3:00pm — 7 Comments

Breakthrough!

Hey all,



I got an email from the NAAF which had some interesting news I wanted to share with you!

Here is what it said:





Lionel -



Because of your commitment to the National Alopecia Areata Foundation, we wanted to alert you to the most exciting news about NAAF funded genetics research to date!



On Thursday, July 1, 2010 this research will be published in the prestigious scientific journal Nature. Various media outlets will begin covering the… Continue

Added by Lionel on July 1, 2010 at 5:11am — 1 Comment

Who knows?

Hey everybody,



I'm watching True Life 'I'm losing my hair' at the moment, and I've been thinking about it some time now, and I have a question.



How many people know you have alopecia and/or have a wig?

I'm seventeen years old now and I have a wig, quite some friends know that I have a wig and have alopecia. I haven't gone to school, or the town where most of my friends live and a lot of people who know me live, bald. And I don't really know if I should tell people… Continue

Added by Lionel on June 17, 2010 at 8:01am — 4 Comments

Regrowing?

Spring has brought some seeds back into my head too I guess, suddenly some blonde feathery hairs have sprouted out of my head!

Not everywhere on my head, not on the sides but it's better than nothing, right?

But not only are they making a comeback on top of my head, my sideburns might be coming back too! Now I can maybe finally grow my beard and walk around with a beard and (maybe) bald head, that's cool ;D hehe



And it doesn't stop there, no no.. I feel some stubbles on my… Continue

Added by Lionel on May 7, 2010 at 6:30pm — 6 Comments

Stable times

Well, it's been a while since I posted my last blog. I've been busy with school and not so busy with my hair... or without my hair, haha.



I'm still bald and my legs are still becoming smoother, as well as my arms.

In general, I don't really care for my almost hairless arms and legs. What I do care about are my eyebrows. Those I don't want to lose, and I'm taking measures to prevent to let them.

I still use the fluid 'DPCP' on my eyebrows, and it works! Sometimes they fall… Continue

Added by Lionel on April 20, 2010 at 4:54pm — 3 Comments

Hairless

Well, here's another blog, this one is going to be a little bit shorter I guess.



A month or so ago I got my wig, which already mentioned in other blogs, and I still got my real hair beneath it.

A week after I got my wig I got a feeling that I would feel even better if I would shave my hair.

So I told my dad, and he got a trimmer the next day. That evening we just trimmed it.



I must say it wasn't too easy to see all the hair I had falling before my eyes. But I… Continue

Added by Lionel on December 18, 2009 at 4:30pm — 3 Comments

Telling people

Well, since I got my wig I've become more open with AA, I accept it more and I don't really care what people think of it, everyone I've told it reacted well to it.

Now that I know that I thought it was time to tell my class about it. So last Thursday we had gymnastics. I told the teacher (who's also my mentor guy, do he already knew about everything) and he put the class together on the bench.

He told them that we thought we could trust them and hoped that they wouldn't react in a… Continue

Added by Lionel on December 5, 2009 at 6:40pm — 8 Comments

Wig

This morning I went to the hairspecialist, because he had wig I ordered.

Me and my dad got in the car and drove up to Utrecht which is 50 km away from here.

The roads here in this small country are a disaster.. 2 lanes that become 3 lanes and then go back to 2 lanes again 3km further ahead. That causes a lot of accidents and causes a sort of queue on the road..(dont really know the english term, file maybe?) So we drove up there, the one file after the other.

I was pretty excited… Continue

Added by Lionel on November 26, 2009 at 1:22pm — 6 Comments

Becoming worse

I am a boy, 17 years of age and I also have Alopecia Areata, as many of you on this website.

I have had it since I was 12/13 years old. In the beginning I only had one or two little bald spots on the back of my head. I had no idea what it was, until my hairdresser told me what it was, even the doctor didn't know what it was which is strange. Then the hairdressers gave me 'Nioxin' which helped and the bald spots dissapeared.



Then when I was just 15 it came back on both sides of… Continue

Added by Lionel on November 24, 2009 at 10:57am — 4 Comments

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