Brenda kay's Blog (10)

A happy new year and 4 eyelashes!

a very happy and prosperous new year to all my friends here!!!!!!! may 2010 be fantabulous for all of you!!!!! this morning i awoke putting on my 'face'....and lo and behold!!!!!! 4 eyelashes on my lower right eye lid!!!!! i know it may be a fluke.....i know my AU might never reverse.......but to find a hair....any hair on my shiny bald body is just plain exhilerating! it gives me a shred of hope.......so......HERE is to HOPE!!!!!!!!!! and to ALL of you for the new year!

Added by brenda kay on January 3, 2010 at 11:27am — 1 Comment

Please, your prayers...please

i have been out of site for a few months, I guess when my son's girlfriend developed some horrific neurological problems due to a malfunctioning shunt, I totally forgot about my own issues (AU). Right now, sweet Jenae is spending her fourth week in the hospital; she is having complication after complication due to a replacement of a shunt she has had since childhood. Just when things start looking up, the shunt clogs and she is rushed into surgery. The last surgery has really knocked her bad. I… Continue

Added by brenda kay on November 10, 2009 at 10:00pm — 4 Comments

Skin feels weird, like a plucked chicken

as our chicago weather is starting to cool off, i am wearing a bit more clothes that i have during summer. I guess since my molting in the spring had progressed to full blown AU, i realize that my skin has gotten soooo terribly sensitive as fabric rubs against it. has anybody else felt this strange sensation? It is almost like my body down layed a cushion between my skin and my clothes and now it is all gone!!!!!!!! EGADSSSSSSSS!!!!!!!!!! I really feel like a plucked chicken!

Added by brenda kay on August 31, 2009 at 5:49pm — 2 Comments

Now according to Dr. Oz.....I have a brain tumor?????????

I know today's Oprah show was a rerun, God knows I had several people tell me months ago the revelation that my hair loss was caused by a brain tumor!!!!!!! I finally caught the episode where the infamous Dr. Oz scared the livin' crap outta this poor lady, telling her that her hairloss (oh, by the way, I'd give the world to have what she had) that she could possibly have a brain tumor causing it...........NOW....anything is possible in this crazy world, but he highly recommended her having a… Continue

Added by brenda kay on July 21, 2009 at 11:08am — 16 Comments

I AM NOT SICK... I AM BALD!!!!!!!!!!!

Once again, being a hairdresser who hasn't any hair....just wearing a variety of cute wigs. I have an issue with people who think I am totally devastated by this disorder, devastated or hiding a terminal disease. I really think some of my clients would rather me be telling them that I lost my hair from cancer treatment, than to accept the fact that I, with hardly an explanation, just lost all my body hair. Today, a dear client of mine who hasnt seen me for a couple months, proceeded to sadly… Continue

Added by brenda kay on June 17, 2009 at 9:58pm — 1 Comment

coincidence or not?????

I am a 57 year old bald hairdresser. I recently have come "out of the closet" with my disorder. I have been fortunate enought to find a collection of realistic wigs and to master the art of glueing and painting on my facial hair. I can't say that i am thrilled about having no hair, but i have always tried to find the bright side to a bad situation, so you could say that i am coping.



Today, I totally by chance came upon 2 new clients who both were suffering the affects directly and… Continue

Added by brenda kay on May 26, 2009 at 10:20pm — No Comments

plants and pets

might sound silly, but the only time i don't feel affected by this horrible thing, is when i have my hands in the dirt planting something......or when i am talking to my sons' fish in the pond while i am feeding them(a chore which i usually dread because when he goes out of town, i take over animal chores) .......or scooping crap from the 4 litter boxes from the 7 cats his deceased father left him........or walking my grand dog, who cares little whether i have on eyebrows or a wig. even tending… Continue

Added by brenda kay on May 21, 2009 at 10:42am — 3 Comments

day three....sister stand-off

since my unpleasant incedent on sunday with my little sister seeing my new short wig...and totally freaking out....we still haven't made communication. we usually talk every morning or at least once a day. we are both stubborn scorpios and i have cooled down conciderably after being told i look like Farrah Fawcett on chemo. now gosh darn...what if i took off the wig and showed her the barren plains of my cranium????? I'd have to have 911 on speed dial cause for surely she would have a stroke… Continue

Added by brenda kay on May 20, 2009 at 8:59am — 5 Comments

thank you, friends

I joined up here less than a week ago and have been blessed to get to know that there are so many wonderful people out there who belong to our "hidden society" who can give me some comfort, some ideas, some advice....because up until last week, I have felt so totally alone, scared, embarrassed, and sad, not really having anyone to confide in who really understands what I am going through. I only wish that I can also contribute the same to all of you in the future. Thankyou. bk

Added by brenda kay on May 18, 2009 at 10:27pm — 2 Comments

upsetting morning

came to my little sister's house (49 yrs. old, not so little) to of course, do my bushy haired niece's hair.....i was wearing a new wig....much shorter and spikey, got good feedback at work and from friends. Upon seeing my new "do"...my sister gasped and put on such a theatrical scene of how she hated it and i looked like Farrah Fawcett on chemo.....she kept on telling me that she couldnt look at me and to get away from her......I couldn't believe how she carried on, i still had to stay and do… Continue

Added by brenda kay on May 17, 2009 at 5:55pm — 6 Comments

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