Where acceptance is all there is
There are people lives that I believe I have touched because I was not afraid to show my “scars”.
Below is a song that the words ring so true to me and I wanted to share the lyrics with you.
Don’t Hide the Scars
(Michael Puryear/Cheryl Rogers/Jeff Silvey)
From CD: Sisters–The Story Goes On -1995
Vocals: Beverly Crawford/Cindy Morgan
I wept alone
Suffered on my own
I didn’t think that anyone would understand
I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:
“Kylie Bamberger looks every bit the blushing bride in her wedding photos. She’s wearing a white ball gown, clutching a bouquet of…
Source: CNN/ By Alexandra Larkin
I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.
Added by Cheryl, Co-founder on April 27, 2017 at 3:13am — No Comments
I love stories of triumph!
March 2016: I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.
Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and…Continue
According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia.
Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.
I have alopecia universalis.
I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.
Please do reply.
I recently came across the below article in the New York Times:
"Four Women Bond Over the Beauty in Their Baldness"
A few Excerpts from the article:…Continue
Hi, I am based in London and am now looking to wear a wig. I cannot stand to see my sorry face in the mirror anymore without hair. Have looked at wigs before in various shops, but have left in tears. Anyone who knows of a good wig shop or supplier, I would love to hear from you.
"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.
My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.
To vote go to once…Continue
Added by Cheryl, Co-founder on October 3, 2015 at 1:30am — No Comments
If there is one belief that I would really like to see us alopecian challenge, is when we start referring to our inner beauty as if our outer beauty couldn’t exist anymore.
I think that the thing that brings me the most joy is when an alopecian can truly start to see their beauty again. But, over and over again, I see us making comments like, “it’s our inner beauty, not our outer beauty that counts”, as if we have forfeit our rights to be beautiful the moment we lost our…
Hello everyone, I just wanted to introduce myself. I am very happy I found this group so I have people to talk to who actually knows what it is like to talk to people with alopecia and the way it effects you mentally and physically. Lots of beautiful people on the sight and I look forward to meeting everyone.
I have had AA for 2 months now. I have lost a lot of hair but by the grace of God he gave me a head full so it still looks like I have a ton of hair. I can cover my spots with my remaining hair but I have to zig zag my part and hair spray it like a helmet so the wind doesn't blow it to reveal my spots. The spots on top are coin size so "it isn't that bad" but I hate fixing my hair. It is torture. I do have a spot as big as my palm in the very back...and growing but that is covered. So do I…Continue
When I think of the word Alopecia, I feel an intense feeling of loss. It’s more than a loss of hair; it’s a loss of self-worth. The discouragement it brings takes every breath of courage and suffocates it. I wanted to write about this disease so people will grasp the severity of what’s happening to over 5 million people in this world.
I started losing patches of hair when I was six. At this time I lived in a different country, Wales. I remember the kids teasing me, saying that a dog had…
Today at my blog, I wrote all about the Cabbage Patch Kid I got as a child and how, 30 years later, it's helped me to come to terms with my Alopecia.
I'd be so thrilled if it helped someone to read this.
I have wondered if a study has been done into what conditions Alopecia sufferers develop in later life, as Alopecia may be an early indication of something going awry. And how many Alopecia sufferers take vitamin and mineral supplements? I have been taking zinc, chromium and Vit D for a few years. I have just discontinued these but it is too early to see if it improves things. I know accumulation of certain vitamins and minerals can be toxic.
Added by Sweet Pea on September 6, 2013 at 4:30am — No Comments
Hi everyone! hope this blog find you all ok, maybe confuse or a litlte bit frustrated but ok...! I'm writing, because i've some good news that I want toshare with you... I was diagnosed with alopecia on May, by June i shaved my head, by end of July my lost was about 70%, i lost some parts of my eyebrows and the grow was instable on my pubic area. I decided not to do the corticoinjecions, i decided not to continue with the quimical medication. I began acupuncture, meditation, yoga and began…Continue
Small mirror in a case for the purse or backpack
Sharpener for eyebrow pencils and liner pencils
Eyebrow pencil and/or brow powder (get demo at fine cosmetics counter)
Wig salon appointment to try on styles, see colors indoors and in sunlight with hand-mirror, find wig with ear-tabs that work with glasses
Hat store trip to try on styles (bring favorite outfit and coat to match)
Make-up appointment at mall or home party to see how to enhance…Continue
Added by Tallgirl on September 3, 2013 at 9:00pm — No Comments
Okay so after reading a vast amount of your blogs I have come to a conclusion. It seems there is no simple answer as to what works best for people suffering with FFA. I started using Rogaine back in February 2013. This was before my doctor started treating me for FFA. Once I had seen my doctor she put me on Clobetasol cream. I know Rogaine take about 5 to 6 months too see any results. I just noticed a few days ago that I started getting very small hairs growing mostly on the sides of my…Continue