All Blog Posts (5,807)


I just found out that I have FFA.  I'm really hoping someone with tell me a success story and what they did to keep their hair from falling out.  It's really hard to have something like this happening.

Added by WandaRussell on September 23, 2017 at 7:29pm — 2 Comments

Social media

I deactivated my Facebook account. Not forever just until I’m in a good place mentally. I was spending too much time looking at my forehead in pictures trying to gauge when my hairline first began receding. I also found myself looking at everyone else’s hair and forehead thinking she has beautiful hair and a perfect hairline. Facebook was hurting me. I could feel myself slipping into a deeper depression. I look forward to one of these two things in the future: the feeling of relief because I…


Added by Adie503 on September 21, 2017 at 4:39pm — 2 Comments


My son first developed AU within 3 months of starting Pre-Kindergarten at our elementary school.  it continued through the 4th grade.  In 5th grade they go to another school and that school had mobile classrooms that were built in 2000.  His hair started coming back and by the time he entered the Middle School for 6th grade he had all of his hair back.  for 6th, 7th, and 8th grades in the middle school he never had a problem.  The middle school was built in 1997. 



Added by Cory on September 21, 2017 at 9:41am — No Comments


When you have as little as I did, and after twelve years, this feels like a bit of an afterthought.

I don't look quite as objectively good like this as I had hoped - and to top it off, I greatly prefer one side of my face/head to the other! - but, eh. It's mainly an attitude anyways XD…


Added by OnlyChild1213 on September 20, 2017 at 8:25pm — No Comments

My wig experience

Hi everyone!! I just want to take a moment and talk about my experience with Joli Chameleon. I wear the Joli Dancer Wig almost everyday of my life. I also workout almost everyday of my life, so that is a lot of sweating and washing done to my hair. I am so thankful that my Joli Dancer has been able to withstand my lifestyle and I've been able to live comfortably and confidently.  Joli Chameleon is a company that truly puts you first and wants to make sure you are able to live your best life.…


Added by Franchesca Bass on September 16, 2017 at 12:56pm — No Comments

Ya think?

I have had Alopecia Universalis for 45+ years. While anything is possible, I have heard more so called cure claims than I can remember. The only thing predictable about this condition is its complete unpredictability, unless you have it to my extreme. I took Prednisone, as prescribed by a dermatologist not an endrocronologist, way back the late 60's and almost all my hair came back, for about a month. When I stopped taking it, like our standard doctor told me to, because of all its side…


Added by Mark S. Hansen on September 13, 2017 at 3:36pm — No Comments

Raw Food Lifestyle

Hello....has anyone converted to a raw food lifestyle?

Has you seen any significant changes in your hair or alopecia?

I would love to hear your thoughts.



Added by vickie0707 on September 13, 2017 at 12:46pm — 1 Comment

Regrowth ... again

So I have more growth than I have had since I lost the last of my hair spring of 2012. Still patchy but more coverage than before. I also have eyebrows and eyelashes that are long enough to wear mascera.

In addition to Alopecia Universalis I have Rheumatoid Arthritis and Autoimmune thyroiditis. The RA was diagnosed 13 years ago. Dec 2016 my Rheumatologist and I finally called it quits on Remicaid. I had been on that for about 10 years when it started to fail. In Feb 2017 I started… Continue

Added by ASRN on September 10, 2017 at 11:49pm — No Comments

Strand of my hair

When I see a strand of my hair, I pick it up right away and check to see if it has the root attached. If the root is attached my heart hurts for it. If it’s broken then I’m a little relieved because it means the other half with the root is still on my head.  This is a never ending emotional roller coaster. It’s really a nightmare I want to wake up from but the truth smacks me in the face several times a day when I see a strand on my desk, floor, bed, chair, counter, etc. I have lichen…


Added by Adie503 on September 8, 2017 at 1:29pm — 2 Comments

the VDR (vitamin D receptor gene) inflammation and keratin (hair and nail) production

I personally have 3 SNP's on my VDR gene which makes is harder for me to convert sunlight into Vitamin D..I also have a gene that make me prone to skin cancer...hence my dilemma

Vitamin D receptor regulates intestinal proteins…


Added by Mike Staffieri RHN on September 7, 2017 at 11:30am — No Comments

Debut After 5 Dormant Years

Hello Alopecia World Community, 

It has been over 5 years since I've been active and here I am again. I was reading through some of my old blog posts and it was at a time when I was lonely, not feeling accepted, and losing most of my hair for the first time. Since then, I found love and got married! He doesn't have AA, but he did lose half of his hair from regular male pattern baldness at some point in our marriage so now he shaves his head bald too =p

I even had my…


Added by Jessi on August 16, 2017 at 9:02pm — 1 Comment


Hello, everyone I am pretty new to this site but I do have one question if anyone can help me out.. so about a month ago I found out I had alopecia areata. I have a rather large bald top on the top front part of my head. Over the past few days I have noticed that the bald spot and the area surrounding it has become flaky with the skin just flaking off. I can take my finger nail to it and peel it off. I was wondering if anyone else has experienced this? it might just be two separate things…


Added by emsween93 on August 14, 2017 at 2:01pm — 1 Comment

Three men talk about hair, masculinity and the stereotype of the hairy 'manly man'

Having body hair is loaded with social judgement for women. For men, it's a sign of traditional masculinity that is still alive and kicking. These days, more and more men are trimming or completely getting rid of their body hair but for some guys, not having that choice is a big influence on how they feel as men.…


Added by rj, Co-founder on August 3, 2017 at 2:30am — 1 Comment

A Lifetime of Doing Things the Hard Way.

(Repost from 7/22 as I accidentally deleted it before… also, update follows)

I’m pretty much the queen of being matter-of-fact about difficult things. My alopecia is no exception. Maybe I always had a lot of other stuff going on, but I viewed it as one thing among many. I’ve probably been guilty of the kind of minimizing a lot of alopecians hate, of the “It’s just hair” variety.

In romantic relationships, though, I never put my money where my mouth was, preferring to leave… Continue

Added by OnlyChild1213 on July 31, 2017 at 1:00am — 1 Comment

Pregnant and just diagnosed with Alopecia

Hello all!

I was 31 weeks pregnant when I was diagnosed with alopecia. It was small 4 bald spots (forehead, sideburn, behind my ear, and on the top of my head). That was exactly 5 weeks ago and now I am 36 weeks pregnant. And they have all gotten bigger and just recently noticed a new bald spot. I cry all the time when I shower seeing how much hair falls off. My doctor prescribed me a very oily ointment called Betamethasone Valerate since the day she diagnosed me with alopecia. It doesn't… Continue

Added by anabelv2 on July 29, 2017 at 6:25pm — 1 Comment

Off the Xelganz

I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.

My dilemma is I have a two year old beautiful baby girl. I love the way this drug…


Added by BrianH1972 on July 25, 2017 at 1:00am — 56 Comments

FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.

Hi there,

I'm not sure if you are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”

The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment.

Could you please help…


Added by gra on July 18, 2017 at 6:17pm — 2 Comments

Well I'll Be. (A chronicle for other curly girls out there.)

My first attempt at reclaiming my nearly-black 3B hair: Valentina by Outre. Extremely high density, despite how it might photograph. Has a different curl pattern in the underneath layer that is very thick and sort of boosts up the rest of it. Great looking but a little too Afro to pass off as my bio hair.

Second attempt: HH Brazilian Curl by It's a Wig. Very long, needs trimming, rough lace and lousy severe hairline right out of the box, but texture pretty soft for a synthetic…


Added by OnlyChild1213 on July 17, 2017 at 10:30pm — No Comments

10 years of Alopecia

Hi Friends and All,

It's official, Ten years and counting since I found that little patch on the left side of my head.

Whirlwind of activity since my discovery of Alopecia Aerata.... The online chat here on Alopecia World and attending the Conferences every year!

I'm happy to say that i've made peace with my disease!

Best of luck to all!

Shout out if you want to!

I've got great ears!!!…


Added by JeffreySF on July 17, 2017 at 10:00pm — 1 Comment

hi, i'm new here^^

finally i've found a site where i can know people with my same problem,i'm so happy(sorry if i miss a few words^^;).

now i can tell my experience to someone who can undestand me.

i'm living with alopecia areata for about three years.

When my mother noticed the hair fall on a part of the head i didn't care much about it.I realized the problem when i had to cut off all the hair because the remaining ones were few and all tangled.

I've spend that summer with a foulard on…


Added by White_44 on July 12, 2017 at 7:39pm — 1 Comment

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