All Blog Posts (5,826)

Eye Make-up for Alopecia Universalis

I love this community. It is helping me to accept my Alopecia Universalis. While I strive to get healthier in hopes of regrowing hair, I've found so many wonderful and caring people on this website who have helped me to accept the condition. I still hope that the autoimmune disease cures itself, but I'm not stressing out over it anymore. 

Today, I created a vlog on doing my make-up and getting ready in the morning. I don't bother with fake eyelashes. I don't have real ones to…


Added by Melinda on June 2, 2018 at 5:00pm — 2 Comments

Autoimmune disorders and deficiencies—Hypothyroid and iron

Also, looking at auto-immune disorders, I have had excema since I was 12 and had rheumatoid arthritis from 1998-2004 (6 years).  

Added by Kathryn on May 26, 2018 at 12:23am — 2 Comments

I found my answer to my alopecia areata- my hair is completely back

Like the title said this is my answer and I came back to write about it so that maybe it could help at least one person. Everybody's answers going to be different but this is what I found out was the reason that I was losing hair. So I went and had an allergy test ran and my whole life I didn't know that I was allergic to anything. Well it turns out that I had an egg white intolerance so it is causing inflammation on my scalp and causing my hair to fall out. I went to about 20 different…


Added by michellelc23 on May 22, 2018 at 8:39am — 6 Comments


I read in today's paper that someone who had alopecia claims that Watermans Grow me shampoo cured their Alopecia. Before I go rushing to buy some I thought I check with you on here to see if anyone has tried it. It could have just been a story to increase sales!!



Added by Sue on May 16, 2018 at 3:43pm — 1 Comment

Dating was already hard, and then all my hair fell out in 1 year

  I am basically 6 feet tall (5' 11 1/2").  Dating was already hard because of my height.  Most guys are attracted to average height women.  I was shy and a very late bloomer--didn't start dating seriously until age 30. Over 10 years, I had one crappy or bad relationship after another.  Nothing lasted very long, was cheated on, etc. 

  2 years ago, I finally figured out the kind of man I really wanted.  I broke up…


Added by Kathryn on May 15, 2018 at 11:04pm — 19 Comments

Disapointing Hair Piece

Hello my fellow Alopecians!

I want to share a story with you.  I ordered a hair piece with a grant I rcvd.  The vendor is located in North Texas and I am in Ga.  Took 5 weeks, no big deal it was custom.  I was so excited but when it came I was so dissapointed, wrong length, not quite the right color, wrong size (too big) and definetly the wrong texture!  I sent emails and phone calls with my complaints.  When I finally rcvd a reply they told me essentially the order was correct and…


Added by Shelly on May 8, 2018 at 8:41pm — 2 Comments

Bald Woman Problems

I have lived with alopecia universalis for 9 years now. Yikes! All of my thirties were bald! In this video, I share some of the challenges that being bald can have that most people don't know about or even think about. 

First and foremost, let's talk about wigs. If you have more than one, people will notice,…


Added by Melinda on May 8, 2018 at 9:30am — No Comments

Hot and tired

I am so so tired of wearing my wigs.  some days I'm over heated other days I am self conscious.  Other days I am depressed and embarrassed. Yesterday I went out to get my nails done, when I got home and took off my lace wig my head was soaking wet.  This morning I didn't even have the desire to put a wig on and go to work.  I just stayed home.  it's been many years but I still miss the days when I could get up and pull my hair back in a pony tail.  It's been over 20 yrs and I am still in…


Added by Shelly on May 7, 2018 at 7:24pm — No Comments

What's Behind the Veil

Alopecia: What’s Behind the Veil

When I look in the mirror, I see my brother.

Now, nothing wrong with that - he’s quite a good looking guy.

But he’s a guy!

None of the men in my family have hair. Nothing on the head, no eyebrows, eyelashes; nothing on the, arms, legs or other unmentionable places. My dad lost all at the age of 8 after two successive bouts of scarlet and rheumatic fever. My oldest brother lost…


Added by Sherrie Saadeh on May 7, 2018 at 2:27pm — No Comments

I Quit My Job Because of My Alopecia

I loved swimming. I was a swimmer and as an adult, I taught swimming classes. I was great at it. Then I started losing my hair. I went bald really quickly. I have Alopecia Universalis. For about a year, I taught swimming with a wig on. Most of the instruction was simple enough that I didn't have to demonstrate for the kids. I chose a stellar student and had him demonstrate.

I wore a really cheap artificial wig. It fooled everyone. I didn't have to deal with comments on my health. I…


Added by Melinda on May 7, 2018 at 5:00am — 26 Comments

To Wig or Not To Wig .... That is the question?

for me wig it! 

Added by kimk on April 29, 2018 at 4:59pm — No Comments

Musicians and lyricists!

So, at our Sacramento, California support group meeting, we kicked around an idea about a Northern California Alopecia mini-conference or weekend workshop, with part of it's being a song-writing session for attendees. The lyrics created could be set to well-known melodies, but would need actual guitar (or other) players for presentation. Are any of you musicians on the West Coast able to fill that roll? Let me know...and attach a link to a YouTube of you and your playing ability. We are…


Added by Tallgirl on April 19, 2018 at 5:35pm — 2 Comments

I've got some hairs!

I'm going on my 9th year with Alopecia Universalis. I struggled with this for years. I decided that I was going to heal it naturally with diet and exercise because the medications that were being prescribed for me were interacting with my epilepsy medication. 

I started out with a raw vegan diet and lots of juicing. It really didn't do much for me. I loved fresh juices and they tasted great, but I lost weight. That was about it. I also looked a bit too thin. 

The next diet I…


Added by Melinda on April 6, 2018 at 2:21pm — 4 Comments

Caught Off Guard

Since I haven't shaved my head in several days, I was able to notice that my alopecia is active and I have several new spots that are completely bald and a large patch on top that is almost gone. I have to admit that I'm a little bit more upset than I probably should be, mainly because it caught me off guard.

After 36 years of living with alopecia, you would think I'd know better than to get upset when my hair starts falling out again. After 36 years, you would think that I…


Added by kastababy on April 1, 2018 at 8:43pm — 11 Comments

My Alopecia

I'm new here, and I'd like to start out my introducing myself my name Pamela and I'm 26 yrs old. Honestly dont know how I came across this page. But I've read up on some of the types of alopecia there is. And I've never been to a dermatologist for mine. But all the ppl I've talked to that knows someone that has it has never heard of it. I've had mine since birth, and my hair has never grown in, it's like a babies hair. Nor is full neither. I dont know much about any of this and have always…


Added by Pamela F. on March 30, 2018 at 12:42am — 2 Comments

10 years later...

Hi everyone, its me Merari who has Alopecia, typing this blog post right now after years and years of this page being inactive...

As you see the past posts, my aunt Jennifer was the main person active on here. She found my first coin sized ball spot on my head one day doing my hair. She created this page for me to get help, and more information about this disease. My mom has also been a part of this page, posting once…


Added by Merari's Page on March 29, 2018 at 1:00am — 2 Comments

People who don't know you have Alopecia

I would like to get some of the comments about how you deal with people who don't know about your Alopecia case but keep asking questions or even try to touch your hair.

Added by Milena on March 28, 2018 at 12:34pm — 1 Comment

Alopecia Is Fashion Campaign


Has anyone seen the #alopeciaisfashion Hashtag?

We are doing a campaign to talk about issues in the fashion industry with Alopecia and also to say yes we can be whatever we want to be in the fashion industry with Hair Loss. Please hashtag #alopeciaisfashion in all your Instagram posts, twitter, facebook. The campaign is a brainstorm of hair Heals Organisation who support all affected by Hair Loss with buying wigs, beauty…


Added by sClaire on March 28, 2018 at 9:44am — 3 Comments

Chat on Alopecia World

Hello All,

There is a Chat function on Alopecia World that seems to be underutilized for direct communication and support.

I would be happy to be a host on a weekly basis. Lets chat and get to know each other.

Anyone interested?

Ideas or suggestions are welcome!

I've found this sort of communication to be quite helpful in the past. It can be fun too!

All the best to all!


Added by JeffreySF on March 28, 2018 at 1:30am — 10 Comments

Reimbursement for wigs

If those who have cancer can get a prothesis for breast cancer, why can't wigs be reimbursemented?  I don't feel there is any difference.

Added by Claudia Lewis on March 28, 2018 at 1:20am — 1 Comment

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