December 2009 Blog Posts (67)

Dont Cry For Me Alopecia

Hello Friends,

Just a little Holiday Cheer to all of you...

Dont cry for me alopecia
The truth is I now embrace you
Dont forget the NAAF Conference
Coming up next year
If I dont see you
Just know I'm with you

Sending Happy Holiday Greetings to All

Jeffrey

PS If you would like to add another verse to the song I would love it!

Added by JeffreySF on December 14, 2009 at 12:30am — 9 Comments

Irked by the medical community

I'm taking a trial migraine drug; or was, until I found a bald spot on my head. My neurologist removed me from the trial drug -- which was working amazingly well -- but swore she didn't think there was any correlation between the drug and the alopecia.



I did some research and found out that alopecia is a side-effect in a few migraine drugs. As high as 7%! I also found that since alopecia is so "prevalent" a condition (around 0.1% of the world) that it isn't really ever considered a… Continue

Added by Paige B on December 13, 2009 at 1:26am — 2 Comments

A special present

I have the very best friend that anyone could ask for. My best friend ,Jennifer, has been there for me during my whole hair loss she was even one of the friends that offered to shave my head when I was ready. We have a friend ,Robert, that is in theater make-up and makes wigs and she asked him to make me a wig for my birthday/xmas. She talked to him first about being able to make one for me and when he said he could she had to say something to me about it because he needed to know the colour,… Continue

Added by Trixie on December 12, 2009 at 7:25pm — 4 Comments

2009 - A Year In Reflection...

Hello all my AW friends! As the year starts winding down to a close, I always get a little reflective of the year's passings. For me, I think 2009 can be summed up in the phrase "It's been a BUGGER of a year". There's no doubt in my mind that I'll be happy to see the end of '09!



Many of my close friends on AW know that in '09, not only did Alopecia Areata rear it's ugly head in July, but I also found out this year that my Blood Pressure is high. If that wasn't bad enough, the stress… Continue

Added by John M. on December 12, 2009 at 12:30pm — 10 Comments

First Post - Hooray!

If you have a huge head like I do, it is SO hard to find hats. And especially if you're looking for regular hats in Winter. Everything we saw was either too small, or too wintery.

It seems that since I've been diagnosed with AA, everyone in my family is treaating me differently. Sometimes I just want to be treated like someone that isn't losing their hair. My friends are being super-cool about it, and they actually treat me better than my family. Its a little strange, but once everyone… Continue

Added by Leah Turlo on December 12, 2009 at 11:15am — 3 Comments

Look ma, hair!

I have wigs! My amazing friend and I went wig shopping yesterday and, since they were so cheap for stuff that felt not half bad (they're both made from Kanekalon and are oh, so so shiny), I got two. One sleek asymmetric crop/bob and one shoulder length layered style with a fringe. They both need to be trimmed, which I'm having done on Friday by a salon I found through Trevor Sorbie's My New Hair project. The fringe on the longer one reaches somewhere near my nose when I wear it right and… Continue

Added by Cal on December 12, 2009 at 5:55am — 9 Comments

Head tattoo

iv been thinking of geting a tatto on my head just as a way to make me proud to show my head more or justify others looks when i do but at the same time hate the nigitive stereo types i allready get



was wandering others opions on this or if you have it done lets see thanks, marcus

Added by Marcus on December 11, 2009 at 9:36pm — 6 Comments

Writing about Alopecia

Right now I am a film major at the University of Michigan. I am taking a screenwriting class where I have to write a full 90 page screenplay. My professor told us to write about what you know so it's simple but also make it interesting. I've decided to write about a 17 year old girl named Alex who has just be diagnosed with Alopecia as she goes into her senior year of high school. I would like to thank everyone who I have met with Alopecia for helping me through this writing process and being… Continue

Added by Kelci on December 11, 2009 at 1:22am — 3 Comments

Sleeping in wigs?

I have recently bought a revlon, synthetic, monotop wig. does anybody have the experience of sleeping in wig. its so difficult to remove the tape everyday. so i m planning of sleeping in the wig. Does anyone have idea about how long the wig is going to last?
looking forward for replies............
thanks

Added by Anji chh on December 9, 2009 at 12:48am — 9 Comments

Attempting to date again - did I make a mistake?

For the past 3 years I went all the emotions that go with having alopecia--sadness, anger, depression, finally acceptance. With that acceptance came a new found feeling of self worth so I decided a couple months ago to attempt dating again though I wasn't sure how I would tell people about my alopecia. After talking with several people who gave me good advise on this topic I entered the dating scene again. Well I am 0-4 when it comes to dating. After several conversations with men and/or…

Continue

Added by Stephanie on December 8, 2009 at 7:00pm — 12 Comments

No Hat, No Wig, No Problem

So this weekend I went to DC and stayed at the Gaylord National Resort. My mother had a conference there for continuing education, and I went along for the ride and the free vacation, since I'm afraid to be alone should I have another attack like the one that almost required a tracheotomy. Anyway, this resort is VERY ritzy. You know the scene in Pretty Woman where Julia Roberts first enters the hotel and goes "Wow!" Like that.



I'd had pain on the drive down. What should have… Continue

Added by Andrea on December 8, 2009 at 7:46am — 6 Comments

What he said today

I like to write about my boyfriend because I think it's important for women to know that there are some really great men out there...and you shouldn't let alopecia stop you from snagging a good one ; )



My bio hair was blonde...thats how my boyfriend met me years ago...as a blonde. Last 2 yrs, I have had brown hair (wigs)...and Im contemplating blonde again. I asked John which hair color he likes best. He said " I like you best with no hair...you are so cute with no hair"



;… Continue

Added by Lee on December 8, 2009 at 2:20am — 8 Comments

If you talk about Truth you should follow it.

Some close to me always said he didnt like liars! And the ball is in his court. I found out from here (internet) that He and I spilt up , He let me buy his meds, groc, and pay his van now I have no money left. Why would he not tell me ? Now he is paid up and not me.. I ALWAYS put him frist! What is wrong with me??

Added by shirley gray on December 8, 2009 at 2:06am — 3 Comments

Painful alopecia or cicatricial alopecia?

So my spots hurt so bad. The pain ranges from a feeling of tight skin to sore/bruis-ie sensation to can't sleep on my pillow, to straight up pain like someone is poking a needles in my head. Is this a part of alopecia areata or do I possibly have Cicatricial alopecia? Any thoughts?

Added by Margeaux on December 7, 2009 at 11:51pm — 3 Comments

A little scared today

so the battle continues, I'm loosing a lot of hair and not sure what to do, I'm trying not to stress like I did the last time it all happened!!
I just don't want to wake up one morning and not be able to hide the thinning (have no new patches). I don't know if I should go back to the dermatologist, don't know if it is really worth as he wont be able to do anything.

Added by Bel on December 7, 2009 at 4:06pm — 3 Comments

Dilemma

I had planned to buy a wig, not a pricey one or anything that I'd wear every day, just one to get me through a week at home over Christmas. I'm mostly OK with being bald in public where I live now; it's a pretty laid back city and I work in a very bohemian shop. But my family live in a very small insular little town (from whence I gleefully escaped earlier this year) and the thought of going out bald there gives me a whole body shudder. I'm pretty confident, but not that confident and I… Continue

Added by Cal on December 6, 2009 at 1:05pm — 7 Comments

Telling people

Well, since I got my wig I've become more open with AA, I accept it more and I don't really care what people think of it, everyone I've told it reacted well to it.

Now that I know that I thought it was time to tell my class about it. So last Thursday we had gymnastics. I told the teacher (who's also my mentor guy, do he already knew about everything) and he put the class together on the bench.

He told them that we thought we could trust them and hoped that they wouldn't react in a… Continue

Added by Lionel on December 5, 2009 at 6:40pm — 8 Comments

Moving forward, always bring about a time of reflection for me

On November 30, I was accepted as an US permanent resident. Although it was great news to know that I could now really start my life here. It also bought feelings of missing my family and friends back in Canada. It was as if it was a realization, even though I have been here for months!



Yesterday, my sister left me a phone message, asking for a…

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Added by Cheryl, Co-founder on December 4, 2009 at 6:00pm — 5 Comments

Interested in vacumm wigs

I think I would like too try a vacuum wig, I understand they are expensive......something I could save for......any info out there on them from someone who uses them

Added by charlene lewis on December 4, 2009 at 4:45am — 4 Comments

Life

So, at the beginging of November I was laid off from my job. It has been a wonderful oppurtunity because now I have to do what I planned on doing in a few months. The problem is I know what I want but, I have to take all these baby steps to get it. I wish it would come quicker than what it's coming. As for my future in Wisconsin, I don't plan on staying here much longer after I finish my degree but, I don't know where I want to go. I haven't be able to travel much since I was fifteen and I am… Continue

Added by Rob Scoville on December 3, 2009 at 3:11pm — 1 Comment

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