November 2011 Blog Posts (80)

shaved

well thats it iv done it finally my hair is now been shaved off,i feel so much beter now that im not finding hair all over my house....my wigs sit beter and my scarfs dont slip off.

i think the thing that helped me was doing it nice and slowly,as soon as my bald patch arrived i wore a thick lycra hairband and then started wearing scarfs with a little hair hanging out,then started tucking the hair up the back of the scarf......slowly i got used to my new appearance and then when i shaved…

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Added by laura on November 19, 2011 at 4:29am — 1 Comment

Out of pain comes glory

I think out every pain and struggle there is something waiting to be birthed. This is even more so with the pains of life that we endure. Hair loss is one them. In life we are confronted with so many things, but how you look at them will determine your reaction.

Out of pain I found comes joy, if you allow it to spring forth. Over the years I have gradually lost my hair. Although I did not endure the pain of losing my hair, I've endured other pains. It can be excruciating.

I know…

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Added by Jacqui on November 18, 2011 at 11:04pm — 2 Comments

Tired of walking this road alone

i am reaching outto anyone out there with alopecia[ESPECIALLY ALOPECIA UNIVERALIS,iam 57 years old and have this terrible condition for 38 years now, is thereanyone out there who would like to get in touch with by way of email, i do feel so al alone, god bless you all.

Added by janetparsons on November 17, 2011 at 10:00pm — 9 Comments

Wig-a-holic

Let's face it, I'm addicted to wigs.

Before I shaved my head, I had hair of all colors and have used different methods of extensions (don't do clip in, they put too much stress on the hair and eventually leave bald spots) and anything to morph my hair into art.

I've been feeling like I bought all the wigs I like in my area, and was wondering if anyone had specific brands or sites they've had luck with. I'm going to include a wig site I love, and it's full of…

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Added by Tiffany Marie on November 17, 2011 at 8:30am — 7 Comments

WIGS AND HAIR PIECES FOR WOMEN IN MENOPAUSE

Does anyone know where to purchase good wigs or hairpieces that are good for women who are going through menopause and having hot flashes? Also, does wearing synthetic wigs verses human hair wigs make a difference with how badly you sweat when wearing a wig? Meaning, are the human hair wigs cooler to wear? I’ve just recently had surgery for a total hysterectomy and almost immediately the hot flashes started hot and heavy. I currently wear a Synthetic topper wig which makes me sweat something…

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Added by FANCY1024 on November 17, 2011 at 12:01am — 3 Comments

Stress-related. Really?

Just curious...what, in your opinion, was the cause of the beginning of your hair loss?

For me...I was under a tremendous amount of stress. One thing came after the other for a number of years (including a strenuous marriage and owning a hair salon/spa...a whole other story). Towards the end, things became quietly unbearable for me...from getting a divorce to buying a house and moving into the house on the same weekend as switching jobs.

I met my boyfriend…

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Added by Deana on November 16, 2011 at 11:00pm — 18 Comments

I have never been outside without a wig :/ Nobody knows the real me

So I have had Alopecia Universalis since I was 14 and I have been wearing a wig since I was 14 dealing with the torture of others and being the laughter of all the other kids at school. People always thought I had cancer that's why I wore a wig some girls even tried to pull it off of my head.I am currently 18 and college student. Nobody has seen me without a wig except my mom my sister & my boyfriend. I am finally beginning to accept myself and love myself without the hair. I want to go…

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Added by Angela Francisco on November 16, 2011 at 3:00pm — 15 Comments

The new me

So about 3 weeks ago I received my new Freedom wig. I was really scared at first because I didn't want to get my hopes up about it. I didn't want to get it, put it on, and hate it! I didn't want to find out that after all the time, effort and money that went into getting it, it wasn't for me.

Well my fears were quickly put aside...I LOVE IT!! It is so comfortable and realistic. I have found that it makes me more satisfied with me. What I mean is that having been bald for as long as I…

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Added by Kris Fenchel on November 16, 2011 at 6:30am — 18 Comments

If only I had my hair

Every day i think if only???? If only i had hair

If only, would my life be different

If only, i would be treated different in this society

If only, I could have normal relationships

This constant thought of if only..... brings this aching pain that i am unable to shake

I have felt over the past few months out of it, i wish i had my hair.... i ask my mum why wont my hair grow, i ask my mum in a playful yet sad way.... and considering i am now 24..... i understand why…

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Added by Natalie Martin on November 16, 2011 at 3:00am — 7 Comments

Hair Up Treatment?

Im about to try this Hair Up treatment and I wanted to know if anyone had any success stories, or is it just a scam? Im really nervous but so excited I want my hair back so bad. I havent been on this website in so long, I am not a sophomore in highschool and If I could have hair atleast once during school id be so SO happy. Please give me some feed back on this "Hair Up" by Dr. Gonen.

Added by Ashley on November 15, 2011 at 7:41pm — 4 Comments

About me

My hair loss started almost 5 years ago. Initially they were small patches.I immediately consulted a dermatologist, who didn´t pay too much attention to the issue.As patches were becoming bigger and bigger, treatments also were modifying (I started with rogaine and local creams with corticoids, then I went with diphenciprone, and finally were corticoid pills, at increasingly high doses)But my hair went on falling more and more. As side effects were so annoying, I decided to suspend all kinds…

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Added by rosamosqueta on November 15, 2011 at 6:12pm — 1 Comment

Where to get a second unit for a "spare"?

I order my units custom made and pay for them over the year (2 per year). I am going to be moving in with friends temporarily, and I would like a spare unit to wear while my other one is drying, I'm styling it, etc. I have long hair so I do most everything to it while it's off my head. Any ideas that are relatively inexpensive and quick to get? Thanks!!

Karyn

Added by KJ on November 14, 2011 at 3:32pm — 1 Comment

Need wig advice!

Hey everyone!:)
I've been looking for a good wig store. Well most of you are from the countries with a lot of wig shops, unfortunately, I'm not... There is only a couple and from what I have seen it's terrible quality and very high prices. So where I am going with this is maybe you know some good budget online wig shops witch actually ship internationally? Pleas help out a fellow eastern European alopecian:)

Added by Calipso on November 14, 2011 at 3:09pm — 5 Comments

Vote for Kayla Martell to win America's Top Bride

I know Kayla would never ask you all to do this. But we appreciated all those that supported her when she was at Miss America.

With her wedding coming up on May 19, she has entered to win $5,000 towards her wedding cost.

We would greatly appreciate your daily votes of support for her as she tries to win Americas Top Bride.

http://www.getmarried.com/americas-top-bride/vote/480/

-----

AW:…

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Added by Rhonda on November 13, 2011 at 12:00pm — 23 Comments

First support group

Went to my first support group today! I drove out to Chino and heard Dr. Richard Strick, who was fantastic. This was only my third day out of the house since shaving my head. Yesterday I ran into an acquaintance who told me that I looked younger! LOL That didn't bother me a bit!

Thanks to Patricia for doing such a great job today.

Ironically, I stopped to get take-out from a favorite restaurant tonite where I was sure the manager was an Alopecian. I had not seen him since my…

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Added by Bruce on November 12, 2011 at 10:00pm — 4 Comments

Eyebrows

I started using Rogaine a few years back because i thought that my eyelashes were falling out. my doctor suggested i put it on my eyebrow area every night and blood flow would supposedly bring it to my eyelashes and hopefully stop them from falling out. Within a few weeks my eyelashes stopped shedding and in a few months they had mostly grown back. Maybe six months to a year later, I noticed that I had eyebrow hairs coming in. I used temporary eyebrow tattoos at the time so I had to shave my…

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Added by Rosie on November 12, 2011 at 5:00am — 22 Comments

So maybe not as great as I thought......why is this such a roller coaster????

Does everyone feel this way, so uncertain and insecure???

Added by Dana on November 11, 2011 at 9:52pm — 2 Comments

Today is a better day.....I think???

There is so much support out there for Alopecia. I had no idea and I just want to scream it from my house-top. I felt so lost (still do for the most part) but I feel there is hope. Life will go on whether my hair chooses to join in or not. I think I may even be able to go back to church and not fear for the person sitting behind me to look at the back of my balding head. (Of course I will have my "fabulous, perfect hair on).....I think I can do this....maybe :/

Added by Dana on November 11, 2011 at 1:02pm — No Comments

11/11/11

Coming soon to a time zone near you...THE MOST EPIC WISH EVER on 11:11 on 11/11/11! Sponsored by cellphones and alarm clocks everywhere. Make it a good one, people.

Added by peachfuzz on November 11, 2011 at 11:00am — 4 Comments

Becoming a monster

So my eyebrows are beginning to fall out really bad now. I'm going to the dermatologist on Tuesday to learn my fate and see weather or not I have Alopecia or some type of other condition that could be cured. No bald spots on my head, but I fear that will eventually change. My eyelashes are beginning to thin as well, and I'm Trying to prepare myself for the inevitable. None of my friends know that I'm facing this condition, I'm to embarrassed to say anything plus I know a lot of people will…

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Added by Danielle Pace on November 11, 2011 at 10:30am — 12 Comments

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