September 2013 Blog Posts (39)

Love is the engine of life

We can live happily without hair if you have someone you love, love is the engine of life, without it we are unhappy even if you have the beauty of Venus and silver Crésus.

Added by Le sage on September 30, 2013 at 8:00am — 2 Comments

Been a good one this year

Well, one day left in September. Alopecia Awareness Month. Been a good one this year, the Liverpool Alopecia Flashmob went up on Youtube and now over 23K views! Yay!

Added by Laura Adams on September 29, 2013 at 8:30pm — 1 Comment

I'm getting married!

So im getting married and I'm super nervous about my hair. Does anyone have any suggestions about how to style it how to add a veil and a tiara? Im nervous that the lace on my unit will rip during the wedding. Any suggestions? Help!

Added by VanillaPlum01 on September 29, 2013 at 8:28pm — 6 Comments


Hey, I was just wondering what are some of your favorite sports to watch/play? I myself enjoy playing softball, soccer, volleyball, and football. (With my cousins not legitimate football!!!) I enjoy watching football, wrestling, and baseball.

Added by Jessica Hoschouer on September 29, 2013 at 5:30pm — 5 Comments

What's happening?

Hi There,

I haven't been on hear for ages. What's happening?

Added by Natalie Young on September 28, 2013 at 4:30am — 3 Comments


I wanted to write my own thoughts here about choices about wearing supplemental hair/wigs/hairpieces.

My first point is if your choice is not to wear hair that is a personal and empowering decision that I fully support.

If you choose to wear hair there is a confusing melange of information to work through.

My advice to anyone who is starting this journey and feeling often vulnerable and alone...take a will find something that suits your… Continue

Added by Rose Marie' on September 28, 2013 at 12:07am — 9 Comments

How do you explain alopecia to a 3yr old?

My daughter is 3yrs old and she has AT, recently she started putting pants on her head pretending its hair and she's telling me that she wants hair- what should I tell her and what is the best way to approach this? I've always told her that some kids have hair and some don't and would show her pictures and videos of kids with Alopecia. I need advice! Help me..

Added by MychildhasAT on September 25, 2013 at 5:30am — 5 Comments

AA & celiac's?

So a few months ago while reading a passage from a gastroenterology textbook, I came across mention of an association between alopecia areata and Celiac's disease. I have had undiagnosed gastrointestinal issues (primarily chronic abdominal pain episodes) and found this interesting. Does anyone here have GI issues as well? Anyone with confirmed diagnosis of Celiac's disease? I just wondered what the actual prevalence of patients with both conditions was.

In my other readings there is…


Added by Sofia on September 25, 2013 at 1:30am — 2 Comments

A statement

I was in the Marine Corps when my first spot appeared it was 1994 so than I thought no big deal I will just shave my head and I did for 18 years I got diagnosed with alopecia in the 90s went through the shots and creams etc. I just recently retired and decided it was time for me to look like a civilian but it wasn't that easy my hair at this point is not falling out yet I just don't have much form the result of being shaved everyday, but my beard on the other hand has patches and circles all…


Added by mac on September 24, 2013 at 2:55pm — 4 Comments

1 year anniversary AA

My title is actually misleading. My one year anniversary of diagnosis with AA was on Sept 17. But I've stopped letting AA control my life and have been TOO BUSY to post anything! :-) That feels really great to say. A few months ago I would not have been able to say that about myself. I thank the Lord above for giving me strength and confidence to get through this. I don't remember the day I decided to shave my head, but it was the best decision I have made so far. I am hopeful that my hair…


Added by Sierra D on September 24, 2013 at 12:00pm — No Comments

Where to order wigs online?

I thought I would try to order a wig online since I don't have many options for purchasing one at a store in my area. I placed an order with a website and never received the wig. I have been looking at other sites but am hesitant. I am not ready to go for the custom wig yet...still holding out hope that I am going to regrow. Any suggestions for a reputable site where I can find human hair full lace wigs at reasonable prices? Thanks.


Added by Stephanie on September 23, 2013 at 10:37pm — 5 Comments

Coloring the white regrowth?

I am having trouble with posting in the forums section and thought I would try here instead.

My question: Is it possible to successfully color the white regrowth?

In the past I have only tried Henna and it made my white hairs turn yellow, hence looking more obvious than the white regrowth. I have a large patch at the top of my head up front which has been preventing me from cutting bangs since I need every hair on my head to cover up missing patches at the moment. I use…


Added by Georgie on September 21, 2013 at 2:51pm — 6 Comments

GAPS diet

Hi everyone,

I know there's been talk of the GAPS diet on this site but I have not seen if anyone has actually trialled it (religiously) and found any benefits. Dr Natasha Campbell-Mcbride (the founder- authour of GAPS) explains why gluten free and dairy free is not enough to heal your gut completely. My daughter 2 &1/2, with gut issues and AA is currently on GF and dairy free diet (it's only been three weeks and although I've seen improvement in her poo no change yet in AA- I… Continue

Added by Mayo on September 20, 2013 at 1:39am — 17 Comments

Finding your "LOOK"

I have "worn" hair for many years. My pieces are custom made and I use tape to secure them. I take it off every 7-10 days to clean and put on new tape. I want the freedom to wear pretty scarves and to feel the wind on my head again. I went several weeks without wearing hair and was shocked how many people asked me if I was battling cancer. I have not had eye leashes or eyebrows for many years, I suppose this makes me look like I am going through chemo to some folks. I wear trendy clothes,…


Added by Vicki V on September 18, 2013 at 5:02pm — 2 Comments

New chapter in my life

First of all i wanna say that this is my first post on alopeciaworld. I am a part of this community only a few weeks now and while reading lots of posts and responses for the first time i felt like i am not alone.

Since i never met a person with alopecia i always thought than no one can know how i feel and how hard and sometimes frustrating it is to go out in the world with alopecia. Lots of times in these 6 years of battle with alopecia my family and friends told me that it is only…


Added by Jack Sparrow on September 17, 2013 at 6:30pm — 13 Comments

It was so simple!

today I woke up with so much more confidence. I went to school and at lunch someone asked me why I don't wear my hair down anymore. I told them the honest reason. After I told them I felt 10 times better. if they have to say something they can this is me and this is who I am nobody can every change that.

Added by Ashley ingordino on September 17, 2013 at 3:00pm — 3 Comments

I want my hair back

Having this disease sucks im only 15 years old. I just started 10th grade. People found out that i had this andyhey laughed and made fun of me. It sucks. I wear my hair up every single day. Im gettig treated. Thank god theres something to help. I feel embrassed of it. I just wish it will go away

Added by Ashley ingordino on September 15, 2013 at 6:19pm — 7 Comments

GAPS diet and alopecia and wellness by Molly Vazquez

Hi everyone,

My daughter has been diagnosed with AA aged 2 years. As you all appreciate it is very confronting and I have been through sooo many emotions. She's had it for 6 months now and continues to develop new patches ( she now has about 5 patches on her head- 4 of which I can cover). I feel I'm Now ready to begin talking about it on this website and I have to say... My hat goes off to all of you. You are all such inspirational souls and if my daughters AA continues or gets…


Added by Mayo on September 13, 2013 at 11:30pm — 19 Comments

Where is the play button!

I've been trying to handle my hair loss, taking the bull by the horns so to speak. Telling my self "I can handle this", "I'm going to be fine" (fine as in all right not as in it's going to grow back). Pragmatic, realistic, positive. It's very typical me.

But I'm fed up, tired, like i got the wind knocked out of me. I'm not fine, I'm sad.

It's been a year since I lost my hair and I feel like my life hit a wall. Someone pressed the pause button that day, and I can't find play. I…


Added by Marinetta on September 12, 2013 at 12:00pm — 2 Comments

Get on with life

I also think that since this is an autoimmune disease it is better to live with it not change it. Good food, healthy lifestyle ,meditation and de-stressing activities will help .

I lost all my hair in my twenties(I'm now 56 ),got it back at 30 due to a combination of Ayurvedic treatment and just old-fashioned grace of God and parents' blessings. However, the good times are slowly ebbing as there are huge patches all over and postmenopausal period is not conducive for hair growth.…


Added by shaila on September 12, 2013 at 8:00am — 1 Comment

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