so as i scroll through the blogs i notice some of us are still having trouble coping with what we have, u people do not need to be ashamed and let it effect your life, maybe in a cancer situation but we are not dying from this, yes it could be worst but it is not, i know it is traumatic for some of us but as humans we learn to adapt to things, we may feel uncomfortable sometimes but it will not be forever, for u married alopecians i can tell u that the man/woman fell in love with u for u and no…
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Added by Paul on September 18, 2010 at 2:52am —
5 Comments
I would like to start a support group in Indianapolis, IN. I do have the support of NAAF. However, I would like to get all the insight and advice I can get from experienced support group leaders. Help me to have a great support group from the very beginning. Tell me things that you had to learn along the way that you wish you would have known from the beginning. Tell me about your mistakes that you would want me to learn from. I'm planning to launch the support group in Sept for Alopecia…
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Added by Carmen Dayhoff on September 17, 2010 at 3:18pm —
6 Comments
I'm sure I am one of hundreds of you that want to say this but, thank you Alopecia World.
With out this wonderful site my alopecian days would be a little harder, the looks in the supermarket would sting a little stronger, the windy days on the soccer field with 18 girls would never happen, my confidence to walk on a tennis court in just a scarf would not be there, I would not have these wonderful friends that I feel so safe sharing my feelings that I never had before AA, I wouldn't have…
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Added by margaret staib on September 17, 2010 at 8:26am —
18 Comments
So what. No hair. Once you are no longer relating to the world like high school, wanting a model or wanting validation about your own looks, you know you will be looking for some human qualities in others that please you and make you comfortable.
We all know that silly list that goes on dating sites about eye color, hair, body type etc. They never ask the real questions.
Likewise, when caught up in alopecia fears, maybe we lose sight of what it is WE have to give…
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Added by Tallgirl on September 17, 2010 at 2:00am —
8 Comments
So this is going to be pretty short and random. Its 2 weeks ago today that I shaved my head, and the first day since then that it has rained. I was told rain feels really good on a bald head by like 4 different people. I asked if it was like taking a shower...but I was told no, its different, LOL I don't see how, but soon, I will find out. I feel like a dork, but I cannot wait for work to be over so I can walk to my car and feel rain on my bald head, LOL. Oh the little things in life that bring…
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Added by Tamara on September 16, 2010 at 3:00pm —
10 Comments
Today is day 4 of Bald life. Today is defiantly tough for me. First my daughter asked me to wear a scarf to her school. I agreed. When I got to the train station I decided I was not comfortable with it. So I took it off while she wasn’t looking. She did not notice for 2 minutes as we were talking about a picture and walking. The train came and she looked up at me and tears ran down her face. She asked , you’re not going to my school like that are you? I explained to her that I did not feel…
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Added by Sam Sam on September 16, 2010 at 9:30am —
12 Comments
Hi Everyone,
I hope everyone had a great summer!
With the changing of seasons, I find myself with harmony.
Many of us went to Indianapolis in June for the annual NAAF Conference and had our chance to get together with old friends and meet new ones. It was exillerating!!!
Tonight we had our local NAAF Support Group Meeting and it was so nice to get back together with fellow alopecians. It always feels so good for me!
It's been quite the journey. Good days with a few bad…
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Added by JeffreySF on September 16, 2010 at 2:30am —
5 Comments
How would you respond to the following quote by Gail Porter?
I've just come back from Vietnam where I did a trek for the Children's Trust, a charity for children with brain injuries and life-threatening injuries. So it does help you put things in perspective. Some magazine, which I won't name, put me up for bravery awards. What's so brave about being bald?…
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Added by rj, Co-founder on September 15, 2010 at 10:00pm —
9 Comments
So I went on Saturday and had my eyebrows tattooed on! I LOVE THEM!! Best thing I have done for myself in a while (besides shaving my head)!! It hurt, I'm not going to lie about that. I have 2 tattoos on my back and those sort of hurt, well the eyebrows, THEY HURT!! I had half of my left eyebrow missing (the tail as the tattoo artist called it) and on the right, a huge chunk of the thick part is missing. Well for some reason the area where the huge chunk is missing did NOT want to take the ink.…
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Added by Tamara on September 14, 2010 at 7:48am —
3 Comments
Since I started shaving my head I have not only fallen in love with the look and feel, but I have become increadibly anal with getting the "perfect" shave. The first few times were kind of iffy, but from those experiences I have learned what works. Some of these tips may or may not help you, but it will put you on the right track.
My current routine consists of showering first thing in the morning. Using a loofa i lightly clean my scalp. I then let the warm water rinse my scalp for a…
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Added by Aaron on September 13, 2010 at 10:08am —
7 Comments
Well its been a full week since the BIG Day. The day I shaved my head September 3. I must admit I never did feel the overwhelming sense of freedom that I heard about. The first couple of days I was still in shock but now I have a sense of comfort. I am comfortable wearing my wig, comfortable wearing scarfs and comfortable wearing nothing at all. Although I must admit I havent yet gone out in full public without something on my head yet. But I did sit getting my tatt done on the back of my neck…
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Added by Bald and Fabulous AKA Terri on September 11, 2010 at 1:00pm —
7 Comments
Fourteen years ago this Fall I shaved what was left of my hair and went out to dinner with two of my closest friends. It was a chilly night to be walking outside bald, but I didn't notice the cold. I felt so anxious to be seen in public for the first time without my hair that I couldn't think about much else. Fourteen years later, I still have Alopecia Areata and a bald head. I am happily married to a bald man (male pattern) and don't think as much about my hair. I am proud that I have the…
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Added by Lynn on September 11, 2010 at 11:30am —
3 Comments
September is Alopecia Awareness Month and, as it gets underway, I must confess that I still haven't found a better way to promote alopecia awareness and acceptance than by showing my love for
my alopecic and adorable wife everywhere we go.…
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Added by rj, Co-founder on September 11, 2010 at 1:00am —
3 Comments
Hi all,
I haven't been on AW or online much lately. I need to get into the habit of checking in at least once a week or so; it seems such a waste of a good resource and lovely people to NOT do so.
I was recently called back in to the radiologist's office because of a suspicious mammogram (TMI? Sorry.) After more imaging, an ultrasound, and finally a biopsy, I rec'd the good news that I don't have cancer. My first thought was "losing my hair wouldn't be so bad; I can handle…
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Added by Lori on September 10, 2010 at 4:03pm —
5 Comments
I am so heart broken Is there anyone else in Michigan that have Alopecia? I dont feel so. I live with alopecia and so does my son He is fiveteen and in high school. I just feel so alone and i also feel really bad for my son. Please send me encouraging words my way
Added by Tonya Jaehnig on September 9, 2010 at 10:15pm —
5 Comments
Do you find it easier or harder having alopecia and this job?
Do you wear a wig or scarf to work. or go bald?
Do you wish you could find a different job that was more supportive of AA?
Does your employer support you or do they even know?
Just curious...I guess over time it gets easier to wear a wig everyday once you get used to it.
Added by Elizabeth on September 9, 2010 at 9:53pm —
8 Comments
I can't beleive it's been three years already! I remember when I lost all of my hair, the depression, anger, and sorrow I felt. I cried and cried for weeks. I didn't think I deserved it, I even questioned if there was a god. How could god let this happen? This group and another have helped so much! I am back to my old self. Of course I get down in the dumps sometimes, but I have a guy that loves me, a family that loves me, my music and my friends, thats all I really need!
Moving to another…
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Added by Lee on September 9, 2010 at 3:35am —
3 Comments
I finally added this photo to my facebook page, i have nothing to hide anymore...now to share with all you beautiful people.
Added by Mjay on September 8, 2010 at 10:57pm —
5 Comments
Not only did I post my pic on my facebook page last night but I went to work bald today!!!!!!! I went out to lunch with co-workers and even renewed my drivers license all without hair. I felt so good about myself today.
Added by Roslyn on September 8, 2010 at 5:53pm —
12 Comments
...Now to continue with my previous post, No big deal - hair is just an accessory in life
I took my daughter to the doctor last week and she confirmed that the thinning on the back of her head is too symetrical to be anything other than alopecia. She has a 1.5 inch band of hair missing at the nape of her neck, which looks like it might extend up towards her temple area on both sides of her head - this would be similar to when I had this stage and the dermatologist called it 'ophasis'…
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Added by Sandi Walmsley on September 7, 2010 at 11:17pm —
1 Comment