August 2011 Blog Posts (43)

Recommend a stylist for a cut for a new Freedom wig for a boy

My 13 year old son is getting a freedom wig in a few weeks and I need an expereinced stylist , any suggestions? We are in Arkansas but do not care to travel( not Extremely far) to someone who can give us that great cut! Spending this large amount of money I can't afford any mistakes!!! Help!!

Added by Laura on August 15, 2011 at 4:54pm — 2 Comments

Off to college

My daughter is starting her sophomore year and changing to a large university. We moved her down to her new apartment today because she is "rushing" this week. I really don't understand the whole sorority thing because I went to nursing school but it is important to her so, I support her. She has a new friend staying with her and she pulled me aside today to tell me this girl's dad is dying of cancer. I asked her if she had shared her condition with this new friend and she said no. I said, "you… Continue

Added by Karen Smith on August 14, 2011 at 10:54pm — 3 Comments

Just Saying Hello!:)

Hello My Fellow Alopecians!
It has been awhile since I have been on here, but I just wanted to say hello & that I wish everyone the best & hope all is well!:) Would love to meet & chat with some more people soon!
Lindsay:)

Added by Lindsay Walter on August 13, 2011 at 11:38pm — No Comments

God gave me this for a reason

It sucks that I have alopecia but God has given this to me for some reason. I'm ready to turn this thing around and use it as a blessing to someone else. Can anyone tell me how I can plug in and help others who are going through this? I would really like to work with kids. I worked as a preschool teacher for years and then decided to get out of childcare because I thought I was done with kids after I had my second one. I then started selling insurance, you know..... trying to create my own… Continue

Added by Michelle on August 13, 2011 at 8:00pm — 5 Comments

trying on hats in dept. stores

Hi all,

I only have one human hair wig and yesterday I had to take it to be cleaned. The place I take it is so far away, I leave it there on a Thursday and pick it up the next day. That means I called in sick yesterday and today. So I am a little early to pick it up and I decide to stop at this little mall nearby. It has a big winners I want to check out. There are two really nice fall hats I want to try on. The place is packed, I am wearing a fedora with my very few wisps of hair hanging… Continue

Added by Sophie M on August 12, 2011 at 8:14pm — 3 Comments

Any new treatment?

Hi Everyone,



I am new to this site. Actually this is the first time blogging.

I have been dealing with alopecia areata for the last 20 years of my life on and off. I am 34 years of age. I was wondering if anyone knows of any new treatments that might work or any news of any in the near future?

I am currently just using a topical cortisone cream. I recently shaved my head because of hair loss almost 50%. I have tried in the past injections, acupuncture, and every home remedy… Continue

Added by BBD77 on August 11, 2011 at 1:30pm — 3 Comments

Update!

So I haven't written in a while, so I thought I would do a update. My vertigo is GONE, but the migraines still come and go. But I'm happy I'm back to work and going about my "normal" life again...



My Alopecia isn't quite sure what it wants to do. It was all growing in, then I had huge bald spots, then it all grew in, then I had more huge bald spots. So I have stuck with shaving it really low every 3-4 days, and using on-scalp bleach to become a blonde. It hides my bald spots really… Continue

Added by Tamara on August 11, 2011 at 8:00am — 4 Comments

My headscarf was mistaken for a hijab!

So, yesterday was my first day of wearing my headscarf out in public. I spent days agonizing over buying a nice purple scarf and a beautiful lace cap to wear underneath it. After feeling confident enough with the look, I went out and did some shopping and errands at the shopping centre.

A Muslim woman at the post office complimented me on my scarf and asked where I had purchased it. Which was really nice :)

Then when I went to the bakery, the woman who served me spoke to me in… Continue

Added by Dee on August 10, 2011 at 8:00pm — 4 Comments

Something I wrote when I was 22 and thought my world was coming to an end

Alopecia



I am 22 yo female, I am losing my identity as each day passes. This horrible condition Alopecia is an Auto Immune Disease that can be caused by stress and worrying or a significant event which has occurred.

At this current point of time I am not coping at all, I struggle with the day to day habits of making my hair look beautiful. Each day I worry that I will wake up from this nightmare with no hair. I feel ugly every morning I look in the mirror. I break down at times… Continue

Added by Natalie Martin on August 10, 2011 at 6:00am — 11 Comments

Balance

I have been thinking a lot about balance lately. As I look back on my life the things that seem to work the best and flow naturally were the areas that I found a balance.



When I concentrated on doing what was right for my body and indulged on occasion, it worked. When I tried to be too strict, I would white knuckle it for a few weeks and then fall off the “wagon”… Continue

Added by Cheryl, Co-founder on August 10, 2011 at 12:36am — 9 Comments

Just added some music from my band

Some of you have read my descriptions of going to a Balkan music and dance camp, or seen photos on my page of me drumming with bands. If you'd like to hear what the music is like, I just put up 4 tracks from one of the two bands I play with, "Dromia", on my profile page. This is all traditional dance music, some of it in uneven rhythms.



The first (Kalamatiano) is from Greece. I'm playing doumbek (goblet-shaped hand drum). This is in 7/8.



The second (Coceks) is from… Continue

Added by Mary on August 8, 2011 at 11:59pm — 4 Comments

Contest on Cityline...I've been entered.

Hi all,

I have been entered into a contest (thanks mom!) on Cityline (Toronto morning show). The contest is for women and is about sharing their stories of "I can achieve." You can go to the link http://contests.citytv.com/icanachieve/story.aspx?sid=599 , read my story and vote if you like.

My story I think is like many of yours (told from my mom's eyes). You can vote daily and what is even better is that each… Continue

Added by Jennifer Krahn on August 8, 2011 at 11:53am — 5 Comments

Hi all.

Just painted my nails sapphire blue. Will post pics later.

Added by Laura Adams on August 7, 2011 at 9:44pm — 1 Comment

Ughh totally frustrated!

Hello Friends,



Sorry I have not been able to check in for a while..I have been busy with life trying to figure things out and make sense of things..So I am guessing I had a good run for about 3 months where my hair did not fall out and now it is back to its ugly self...My hair is starting to fall out again..Seems like it may either be in the same area or damn near close to that area. I now have 3 new small bald spots instead of just the one I had...I also now discovered that I have… Continue

Added by Trish on August 7, 2011 at 8:00pm — 9 Comments

Children with Alopecia

This segment on the Colorado news, says it all. Yes, having alopecia at Any point in life is extremely difficult. But children are just starting out in their lives. I am grateful for having alopecia in my adult life; I was already "me" and secure, thankfully. How much more difficult it is for children. This is why I organized my event "Musicians for Children's Alopecia Project Benefit" to be held at World Cafe Live in Philadelphia, 9/16/2011, 7p-11p. An excellent night of music, awareness which… Continue

Added by Lili Añel (aka Eulalia) on August 7, 2011 at 12:49pm — 2 Comments

Found out my daughter has a severe milk/egg allergy

For those of you who don't know our story... my 3 year old daughter was diagnosed with AA in the middle of April and initially lost about 80% of her hair. We shaved her head and now with all the regrowth, she has about 70% so I would say that is quite significant... just praying it sticks. We took her to see a homeopathic doctor a month ago and did an allergy test as well as an absorption test and we found out that she has a severe allergy to milk and casein as well as moderate allergies to egg… Continue

Added by Jules1984 on August 6, 2011 at 3:15pm — 7 Comments

Am I perpetuating the fear of being discovered?

Have you ever walked down the road, sat in a restaurant, or been in Safeway and seen someone who's wearing a wig? Most of us are hard to spot because we have spent years trying to make ourselves look like everyone else... but much like LGBT (lesbian, gay, bi-sexual, transgendered) have "Gay-dar" I think those of us with Alopecia have "wig-dar". What I'm worried about is that I'm perpetuating the fear of being discovered.

I know for me personally I prefer to tell my story than be outed… Continue

Added by Kate anderson on August 5, 2011 at 9:00pm — 11 Comments

My 11 year old son was just diagnosed with alopecia. What to expect next?

At this point his Alopecia is limited to one eyebrow. Even with it being his eyebrow he is having a difficult time talking about it and does not like to hear me discuss it. Is this limited to just this area, will it continue to his other, his head.. What can be expected as anything I have read or seen it seems it does not just limit itself to an area for long. Am I wrong, am I missing something?



I would just like to chat with people whom can give real life experience answers for a… Continue

Added by Garfield on August 4, 2011 at 1:00pm — 6 Comments

Indiscreet best friends

So I just opened an account on facebook, which I'm starting to regret. On my profile picture I'm wearing my wig, and I love that picture so much because it was so hard to get a good picture with it. On my camera, my hair came out too shiny, and it look really fake. So I finally took one on my phone and loved it.



Before I got a wig, I asked my best friend to go with me to a wig shop because I didn't know what to look for. At the time, she was dating some guy and I guess mentioned that… Continue

Added by Trixie on August 3, 2011 at 3:00pm — 5 Comments

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