August 2009 Blog Posts (112)

It's hard to hold it together sometimes

A few weeks ago I went to a neighborhood Bunco. I was excited. It would be nice to hang out with everyone all in one place since we were all scattered during the summer. I tried to fix my hair as best as I could. I've come to peace with wearing barrettes, even though at the age of 37, I wish I didn't have to. I'm not trying to be younger than my age....but lately I've been having less confidence in looking the way I do and how my peers view it. Only a few know. OK, none really. If I go without… Continue

Added by Georgie on August 5, 2009 at 3:34pm — 8 Comments

HOSPITAL

I'm going to have major surgey this month. They send me some paper work what i could take with me one item on the list say i cant have a wig on. I dont go no where with out my wig its my confort blanket to outside world. I ask the doctor about the problem he said nobody will realy pay attention whats on or off my head. but i will its like back in school i still worry what people will say.

Added by Tamika Joseph on August 5, 2009 at 2:19pm — 7 Comments

Early morning encouragement!

I really like working in the hotel industry, because there's never a dull moment on my job -- and sometimes I get inspired and encouragement from the most unlikely sources.



For example, my hotel houses layover crews from Delta Airlines. A lot of the pilots and flight attendants come in on the same flights pretty regularly, so the opportunity is there to get to know them. And as always, the opportunity is always there to educate them about alopecia.



The past three mornings,… Continue

Added by kastababy on August 4, 2009 at 9:35am — 3 Comments

Annoyed at my head right now

So I am heading to a music festival in BC this weekend, which is very exciting! It's a very open and accepting environment, people wear crazy costumes, go naked or whatever...



I had mentioned long ago that I would go bald the whole weekend because it would be easier and people would probably not blink an eye at a bald chick there. My friends are not going to let me take my wig (except my bright pink one!)



Which is all good and well, except that I have a lot of regrowth on… Continue

Added by Karina Louise on August 3, 2009 at 11:50pm — 2 Comments

Need Help With Wig Alternatives, Please :)

So I was diagnosed with Alopecia Aerata this month. My hair is falling out pretty fast. Every time I shower, I get 1/2 a weeks hair in the drain and on the comb. It's falling out in plugs and clumps. I'm a nurse and I wear my hair in a short pony all the time. I'm having a hard time hiding the bald spots. I'm low maintenance and I've never "dressed" my head before, but now I need some quick solutions! Can you please lead the way....thank you!

p.s. I love looking at all your pictures! It… Continue

Added by Karen on August 3, 2009 at 11:24pm — 8 Comments

montreal or toronto

can anyone suggest a place that sells wigs that 'don't itch'.
i tried what they called a lace...it was coarse and itchy!

Added by dinainmtl on August 3, 2009 at 9:21pm — 1 Comment

ANY & ALL HELP ACCEPTED, IT'S ADMINISTRATIVE LAW JUDGE PRESENTATION TIME

Monday, August 10th I go before Medicare's Administrative Law Judge, the hearing I requested was for a cranial prosthesis/wig coverage. The initial request for a wig/cranial prosthesis from my Dermatologist in January was denied.

Medicare, (shame on them & their neanderthal attitudes regarding cranial prosthesis) I am so frustrated, with them, according to one denial letter, in order for a wig to be covered it must,

stand up to repeated use,

mainly be used to serve a medical… Continue

Added by Pamela Rosse on August 3, 2009 at 9:03pm — 8 Comments

If I Had a Million Dollars

Baby fuzz. Say the words and hearts start melting. See that soft, fine hair on an infant’s head and your hand automatically reaches out to touch, pat, or pet. Oohs and ahhs and a drawn-out “aw” spontaneously slip from your mouth.



Now imagine that same soft, fine hair on the balding head of a grown woman. On me.



In my world, talks of baby fuzz mean I have a spot of new hair growth. My baby fuzz is soft, but not cute. Certainly not ooh-and-ahh inspiring or aw-worthy. More… Continue

Added by panuelo girl on August 3, 2009 at 4:26pm — 2 Comments

Alopecia in "major" motion picture?

I refer to it as "major" because I don't know who any of the people mentioned in the article are (other than Richard Jenkins.) It appears though it will be a film for regular theatrical release.

http://www.newsinfilm.com/?p=19497

I do wonder though what "Alopecia Universales" as it is referred to is. It sounds like the name of a company that sells alopecia related products not just here on Earth but at outposts throughout the galaxy.

Added by Donna on August 3, 2009 at 1:37am — 3 Comments

how and when it all falls out...

So I've been having a difficult time with my Alopecia as of late. Started with one patch in Oct 08 and now it was 3.. the first of the ones i noticed has a lot of regrowth, but the hair seems to be falling out from all over.. more of a difussed state.. is this normal?? I know i may lose all my hair but what of the regrowth in one area... is that just false hope? also, does anyone ever get painful areas on their scalps? not just tingling but an area when you press down it feels… Continue

Added by JenNy on August 2, 2009 at 5:41pm — 5 Comments

Getting used to things....

Well, so in the past 3 months, I've discovered that wearing a wig is not too traumatic an experience. I screwed up the courage to start wearing the first one I've bought (the bob cut one) to work at the end of April, and I was just absolutely bowled over by all the compliments and comments everyone had! I think I had the biggest ego of my life that day! (Which honestly, I very much enjoyed as I have not had an overabundance of self-esteem in the last many years).



However, I had a… Continue

Added by Jenn on August 1, 2009 at 5:56pm — 11 Comments

Olivia's Story Hit Newsstands!

Olivia's story hit newsstands in "atgeist.com" today. If you have not seen it, you can view it online:

http://atgeist.com/blog/fishers-girl-with-hair-loss-creates-video-to-inspire-others/

Thank you,
Sandy Rusk

Added by Olivia Rusk on August 1, 2009 at 3:00pm — 1 Comment

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