July 2017 Blog Posts (12)

A Lifetime of Doing Things the Hard Way.

(Repost from 7/22 as I accidentally deleted it before… also, update follows)

I’m pretty much the queen of being matter-of-fact about difficult things. My alopecia is no exception. Maybe I always had a lot of other stuff going on, but I viewed it as one thing among many. I’ve probably been guilty of the kind of minimizing a lot of alopecians hate, of the “It’s just hair” variety.

In romantic relationships, though, I never put my money where my mouth was, preferring to leave… Continue

Added by OnlyChild1213 on July 31, 2017 at 1:00am — 1 Comment

Pregnant and just diagnosed with Alopecia

Hello all!

I was 31 weeks pregnant when I was diagnosed with alopecia. It was small 4 bald spots (forehead, sideburn, behind my ear, and on the top of my head). That was exactly 5 weeks ago and now I am 36 weeks pregnant. And they have all gotten bigger and just recently noticed a new bald spot. I cry all the time when I shower seeing how much hair falls off. My doctor prescribed me a very oily ointment called Betamethasone Valerate since the day she diagnosed me with alopecia. It doesn't… Continue

Added by anabelv2 on July 29, 2017 at 6:25pm — 1 Comment

Off the Xelganz

I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.

My dilemma is I have a two year old beautiful baby girl. I love the way this drug…


Added by BrianH1972 on July 25, 2017 at 1:00am — 56 Comments

FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.

Hi there,

I'm not sure if you are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”

The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment.

Could you please help…


Added by gra on July 18, 2017 at 6:17pm — 2 Comments

Well I'll Be. (A chronicle for other curly girls out there.)

My first attempt at reclaiming my nearly-black 3B hair: Valentina by Outre. Extremely high density, despite how it might photograph. Has a different curl pattern in the underneath layer that is very thick and sort of boosts up the rest of it. Great looking but a little too Afro to pass off as my bio hair.

Second attempt: HH Brazilian Curl by It's a Wig. Very long, needs trimming, rough lace and lousy severe hairline right out of the box, but texture pretty soft for a synthetic…


Added by OnlyChild1213 on July 17, 2017 at 10:30pm — No Comments

10 years of Alopecia

Hi Friends and All,

It's official, Ten years and counting since I found that little patch on the left side of my head.

Whirlwind of activity since my discovery of Alopecia Aerata.... The online chat here on Alopecia World and attending the www.naaf.org Conferences every year!

I'm happy to say that i've made peace with my disease!

Best of luck to all!

Shout out if you want to!

I've got great ears!!!…


Added by JeffreySF on July 17, 2017 at 10:00pm — 1 Comment

hi, i'm new here^^

finally i've found a site where i can know people with my same problem,i'm so happy(sorry if i miss a few words^^;).

now i can tell my experience to someone who can undestand me.

i'm living with alopecia areata for about three years.

When my mother noticed the hair fall on a part of the head i didn't care much about it.I realized the problem when i had to cut off all the hair because the remaining ones were few and all tangled.

I've spend that summer with a foulard on…


Added by White_44 on July 12, 2017 at 7:39pm — 1 Comment

What's New with Me and Wigs

Abandoned the bonding idea for now and am working on embracing more changeable and less costly options. Found a nice homey wig boutique in Richmond and purchased two brunette Raquel Welch's there. In front of people I see all the time but am not super close with (which is most people ;-)) I am still clinging for dear life to the self-made helper hair I've been using for four years... which is familiar but pretty crappy right now since I've got next to no hair, particularly at the front, to…


Added by OnlyChild1213 on July 9, 2017 at 12:30pm — 3 Comments

Back with an update

I haven't been on  here in quite awhile, maybe a year or so.

The huge patch of hair loss on top of my head has since grown in with the help of  the needles I was given at the dermatology clinic.  I was also put on  a strong drug that I no longer take, it was doing more harm to my body than good.

I do however have a new patch of hair loss on the side of my head, and I still get small ones here and there.  I have to have another referral to get into the dermatologist so I just…


Added by carebear42 on July 9, 2017 at 9:17am — No Comments

I want my hair back.What should I do?

I am 20 years old and i have alopecia totalis.6 months back i lost my hair on the scalp completely.Before that I have patches on my scalp.These patches were first found whrn i was 5 yrs old.Since then after every medication the patches will be covered and new patches in another site of scalp will be founded.I was vexed with all the treatments and don't have energy to take new medications.I don't like to be bald.I want my hair back.What should i do?

Added by Vamsi on July 6, 2017 at 12:00pm — 5 Comments

Alopecia got me down

I'm 16, have alopecia but cover it with long hair. I need a haircut and don't like my hair, especially because my friends make fun of how long it is. The only people who know I have alopecia are my direct family members. I'm don't like going outside anymore and feel hopeless. I don't know if anyone will even read this, but if you are give me some advice.

Added by Mudman on July 5, 2017 at 2:00am — 2 Comments

Life Changing Skincare-Rodan and Fields!

Hello friends!  I'm Lina and I've had alopecia universalis now for almost 7 years.  The first 3 years where a period of shock, suffering, depression with some hope that I'd have regrowth.  That didn't happen but  with some support, love, great wigs, nice skin, and some make-up, I look and feel normal.  It does not define who I am but it is a part of me now.  I've accepted it.  It took years to learn the magic of make-up but now most people are SHOCKED when I tell them I'm bald :D.  I get a…


Added by lina on July 3, 2017 at 8:05pm — 2 Comments

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