July 2014 Blog Posts (40)

I'd like to offer support for anyone!

Anyways long story short AU since 96. So I've been through a whole lot. I found myself to be a strong person and AU has never really stopped me, the people I've met here tells me they wish they had my spirit.

Feel free to message me I do check this quite often.

 Remember you are not alone!

Added by Nammer on July 16, 2014 at 12:00am — No Comments

Can arthritis treatment trigger hair growth?

I have suffered from Alopecia since I was about 9 years old. It hasn't been easy for me. I am 35 years old and still am not comfortable with my appearance.

Well, I am currently being treated for Rheumatoid arthritis. My current medications are Plaquenil 200mg twice a day and Neurontin 300mg three times a day(For nerve pain). I've been taking medication for about 3 months. As per web MD, "Plaquenil is used, usually with other medications, to treat certain auto-immune diseases (Lupus,…

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Added by Vivian N on July 15, 2014 at 8:00pm — 2 Comments

Having a really hard time adjusting

Having a rough time adjusting after being diagnosed, I've been through so much that last couple of months I've kinda been a wreck. Just didn't know if there was any support groups out there, I've always been the type of person to give someone the short off my back if there in need. I'm trying to stay positive and make the best out of the situation but it seems impossible , I've never heard of it till now nor did my family have history of it, is it really hereditary ?? Or is it stress ?

Added by Travis Tirrell on July 13, 2014 at 1:28pm — 5 Comments

My first time blogging on here & I don't even know where to begin

Been going through a lot of emotions lately, with myself and the others around me. Comin' up on 7 years in the fall. Man, I hate saying that. Just so tired of saying that, tired of myself and the efforts I feel like I must put forth just to feel pretty, natural and comfortable with myself around other people. I've been so tired of my hair, my locks of love wig piece. I've seriously had the same hair style for my entire high school career. Feeling so deprived and degraded a bit. I just don't…

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Added by Lishah on July 12, 2014 at 12:17pm — 2 Comments

It happened for a reason?

Seven years ago I finished chemotherapy for breast cancer. I waited for my hair to grow back, waited some more and then some.

To my horror and disbelief I realised I was waiting in vain. I spent the next 7 years trying to discover the truth, why my world had been turned upside down. Actually not only my life but that of my family too. I finally discovered I have become part of a dirty little secret of the drug Taxotere.

By now I was desperate for closure on this nightmare so I…

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Added by wisteria on July 12, 2014 at 10:48am — 1 Comment

The Fifth Annual International Alopecia Day is Coming Soon!

What are you going to do to celebrate International Alopecia Day this year?

Be a part of the fun as people all around the world celebrate and raise awareness.  Wherever you live, plan a party, an event, or just take a photo of your beautiful self on the first Saturday in August - August 2, 2014.  

Last year we had over 105 people from 22 countries - will your hometown be represented in the annual YouTube video?

Here's all you need to know:…

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Added by Mary on July 11, 2014 at 11:18pm — No Comments

My 7th anniversary

I"m just a little late on this post but it's now year number seven. Going on eight.

How time goes by so quickly. It seems like it was just yesterday when my alopecia came into my life. 

So tough those first few years. 

It gets easier day by day. Year by year.

Hugs to all,

Jeff

Peace!

Added by JeffreySF on July 11, 2014 at 2:00am — 8 Comments

I believe (alopecia can...)

I believe that Alopecia can kill us on the inside and leave us a physical shell with a defeated spirit. It almost did that to me. We MUST nurture and pamper our emotional selves (well, too much pampering is bad of course, but go easy on yourself for at least three years) during the transition from possessing hair (and, no, I don't mean owning a wig lol) to not anymore - of course, that is, if we don't come up with a no-side-effects cure - which would be totally kick ass. Then, being bald…

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Added by Laura Adams on July 9, 2014 at 11:00pm — 1 Comment

An Alopecia Poem by Laura

I, myself, have just no time to spare,
To fret, mope, or worry over hair.
But WHY are some compelled to stare? -
It's JUST a scalp! So what, it's bare?

 

- Laura Adams 6-8-14

Added by Laura Adams on July 9, 2014 at 6:00pm — 1 Comment

Another spontaneous Laura poem

The year was 1995
I had long hair;
I felt alive.
The hair was lost-
I ceased to thrive.
To accept the loss
First failed but strived.
And in the end 
Well, I survived!

 

- Laura Adams, July 9, 2014

Added by Laura Adams on July 9, 2014 at 6:00pm — No Comments

Unhappy

I feel like I shouldn't be here. But I don't have any other people to talk to well I have friends but I don't feel that I can talk to them because they have the one thing I want more then anything in the world and wouldn't understand the way I feel about my appearance as they don't have the same problem as I do. I haven't been told I have alopica or any form of Hairloss because I haven't been to the doctors. I don't want to go because if I do have anything like that then that's me 'Natasha…

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Added by Natasha on July 8, 2014 at 12:30pm — 11 Comments

Where What country do you live in?

I want to go to China.
And I want to observe the wig factory.

And I want you to play with me of alopecia、、、

Added by Roka on July 7, 2014 at 11:29am — No Comments

Why why why

I know im not the one that has the alopecia, as its my little girl, but through out the whole process here in new zealand it seems like not one doctor can give you any real answer to what is causing it, its all just really guessing .of course there's all the steroid creams and things from overseas but its seems from what you read its a below 10% success rate.early on i made a connection between my daughter's asthma problems an medications she was on and alopecia ,but was shot down very heavily… Continue

Added by father of a girl with alopecia on July 7, 2014 at 6:48am — 2 Comments

Need support

Hello! My name is Bunty. I'm 32 year old male from India and I've had AU for the last 3 years. It's very hard to go on wihout hair. We don't have any kind of support or organization here, so that I'm feeling so alone here.

Thanks. Bunty

Added by bunty on July 7, 2014 at 3:10am — 1 Comment

Yo'Kasta Montonique Martinez, BS, MBA

The University of Phoenix 

announces that

Yo'Kasta Montonique Martinez

is a candidate for the degree of 

Master of Business Administration

Project Management

for the Commencement Ceremonies on Sunday,

the twenty-seventh day of July,

at three o'clock in the afternoon

Two thousand fourteen

Bridgestone Arena

Nashville, Tenessee

Added by kastababy on July 6, 2014 at 10:40pm — 1 Comment

Eyelashes

Hi
Has anyone looked into permanent or semi permanent eyelashes. Mine are gone I live in Eastern Ma USA

Added by Kat on July 6, 2014 at 11:23am — 7 Comments

Rob Ryan denied head coaching jobs because of his hair?

In January 2014, Foxsports.com reported:

"If you got it, flaunt it. But not when it comes to long hair for NFL coaches, apparently.

"According to ESPN's Chris Mortensen, Saints defensive coordinator Rob Ryan will have to cut his long locks before being considered for a head coaching gig in the NFL.

"After 'mistakenly'…

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Added by Cheryl, Co-founder on July 6, 2014 at 4:00am — No Comments

Alien

I'm awake at silly o'clock again and while awake I ended up taking a couple of selfies of my wigless face.

I'm never brave enough to face the world wigless, well brave maybe not the right word, I don't think people are weak to choose to wear a wig I'm just personally like to blend in rather than stand out.

But anyhow it was something about the bad lighting that made me like these photos almost making the hair loss artistic.

But I was still convinced my hair loss makes me…

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Added by KFlame on July 5, 2014 at 12:30am — 2 Comments

Past pessimist, future optimist

Okay, so most of you are familiar with my "alopecia story". The whole having AU since I was a youngster, getting my first Locks of Love hairpiece when I was in 4th grade, and now I'm trying to deal with alopecia in a positive way to keep myself from drowning in those terrible emotions that comes with having this disease. But I've never really spoken about my past experiences with cruel little children, and the typical harshness of having alopecia at such a young age. It was quite an…

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Added by Jackie on July 4, 2014 at 3:00am — 2 Comments

My 5year old girl has gotten teased in her first week at school

What should i do, ive asked her what happend an she told me three girls followed her around at lunchtime and kept taking her hat( she won't wear a wig ,as she does not like them at all) off to reveal her scalp.i dont know what they would have said, she did say she wasn't sad ,but she doe's act tough around me,i tell her she is beautiful everyday , but we all know that negative things will always dig deeper into your self esteem, what do i do with the school? And any other advice with my lil… Continue

Added by father of a girl with alopecia on July 3, 2014 at 3:59am — 2 Comments

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