July 2011 Blog Posts (96)

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Maybe it's about choice

lol I've got a few blog experiences but not one as special as this one, I'm 23 and I'm a Mexican girl who is finishing studying at college, I've got Alopecia Universalis since I was 11 and of course just like everyone that has this kind of experiences it's too difficult to find your way through life, when all the questions about life just start attacking your mind, when you don't know even why you are doing what you are doing at that very moment.



But I'm so sure that these kind of… Continue

Added by Gabby on July 16, 2011 at 10:00pm — 3 Comments

Any recommendations for a (sensitive) wig store in the west los angeles area?

Hi, Has anyone found a store in the West LA area that you feel comfortable going to and shopping for wigs? I've gone to a few and not had much luck so I've ended up buying online and have many wigs in boxes that I've not worn because they are not quite right. And the most recent one that I bought has hooks to use for adjusting the size, but I'm wondering if they are meant to just fasten on in a particular way. I'd appreciate any thoughts on how to use these hooks. And, has anyone trimmed the… Continue

Added by Hana Bunny Catsumi on July 16, 2011 at 5:05pm — No Comments

Beauty Queen up on Facebook

Hello everyone!
The Beauty Queen facebook page is up and running. It would mean so much to me if you could please 'like' it and support the film! Thanks!
<3
Kelci

http://www.facebook.com/mcfabeautyqueen

Added by Kelci on July 16, 2011 at 1:34pm — No Comments

More Valuable Than Hair

A friend just sent this to me, and I thought it could help us get a reality check on what is more important to our loved ones than our hair. This is especially important for those of us who are older, or who have children and grandchildren.



A young man learns what's most important in life from the guy next door.



Over the phone, his mother told him, "Mr. Belser died last night. The funeral is Wednesday." Memories flashed through his mind like an… Continue

Added by Tallgirl on July 16, 2011 at 12:02pm — 3 Comments

At Family Reunion

Family Reunion Picnic is tomorrow. This is the first time the extended family will see me without the weaves or wigs. I have already gotten questions about my bald head from one Uncle, I said it is a medical problem. I will see how many more questions I will receive on tomorrow. Level of anxiety-level 6.

Added by Ericka on July 16, 2011 at 5:03am — 4 Comments

My first experience!

Today here in Ontario it is very hot out! I haven't been wearing a wig for the last week at home just walking around my home and yard with my smooth baldie head :)

This afternoon I realized I had to go to the store and couldn't wait for my husband to get home so I had to go no matter what.

I bought a nice looking scarf early this week and thought I'm not wearing a wig in this heat, I put my scarf on and off I went to the store I did this for the very first time!!! I thought I don't… Continue

Added by Lisa-Lynn Marini on July 15, 2011 at 6:00pm — 5 Comments

Need advice plz!

I have to go to my sister's tomorrow I thought about wearing this new carf I bought but I changed my mind i'd much rather wear one of my long hair peices, does anyone know if I were to put my hair peice UP would it destroy the texture of it or shape???
Thnk-you:)

Added by Lisa-Lynn Marini on July 15, 2011 at 9:30am — 3 Comments

Runny nose

Does anyone else suffer from an extremely runny nose due to the lack of or no nose hair at all????

I have come to the conclusion that my nose is a never ending faucet due to the fact that I have no noise hair and it causes my nose to be sensitive to a lot of things and smells?


PLEASE let me know if any of you guys have experienced or are experiencing this right now.

Thanks!

Montoya!

Added by Montoya Grant on July 14, 2011 at 8:30pm — 7 Comments

Do I cut the hair I have or leave it???

Hello Everyone!! I sure would love some input from you guys. I have alopecia areata ophiasis. I do not have hair on the back of my head and it appears that the alopecia is going to continue up the middle of my head. The hair I have (sides and some on top) is a little longer then shoulder length. I kept it long to try and cover the balding areas, creative hair styling and pyschological reasons I guess. I'm sure you know what I'm talking about. ANYWAY....I digress...sorry. My question to ya all… Continue

Added by BT on July 14, 2011 at 5:28pm — 1 Comment

what to do?

Well it was happening again after 80% regrowth my hair is fallin out again, I am fed up and actually really depressed about it. I find it very hard now to talk about it and admit to people who dont know about my alopecia, I think people can change once they hear something like this. Not sure if i should seek counselling or just need to grow some balls and man up.

I hate synthetic wigs and as i get them from the nhs i asked if i could get a human hair wig as i can only get my natural colour… Continue

Added by lynne on July 14, 2011 at 4:14pm — 7 Comments

It's Not Our "Fault!"

Genes found for alopecia areata, a kind of hair loss

June 30, 2010 | 7:18 pmAfter a scanning the human genome for tiny DNA differences, researchers say they've uncovered clues to several genes involved in alopecia areata, in which patches of hair -- or all hair -- are lost from the scalp or full body.



Yes, yes, we hear you yawn, another day, another whole-genome scan, reporting genes-linked-to-something-we-already-knew-had-a-heritable-component. But to find out… Continue

Added by Tallgirl on July 14, 2011 at 9:35am — No Comments

Is it like normal?

Hey, my hair has started growing back but its taking aged so i was wandering if people who have had regrowth; it came back like ususal?
Please says it does :/

Added by Autumn Leaves on July 14, 2011 at 9:00am — 4 Comments

I don't know why I stay away:)

It has been awhile since I have visited, I don't know why I stay away, I love, love reading everyone's blogs. I am brought to tears, and inspired every single time:)

I have a question to pose to my fellow alopecian's...When interviewing for a job when do you bring up the subject of alopecia? I wear scarves and hats and know that many people take one look at me and assume cancer. So what about for a job interview? I look forward to hearing what you all think:)

Added by Kris Fenchel on July 13, 2011 at 6:25am — 6 Comments

Girl In The Mirror!

As the Tears Run Down… Continue

Added by MiNAH on July 13, 2011 at 4:19am — 11 Comments

I

My names Tina. I just turned 18, I was diagnosed with AA when I was 17. I really just want to talk to someone who is having the same struggles as I am. Its very hard not personally knowing anyone with this. I still have some of my hair, I just wish it was all of it. I'm so embarrassed to have to wear extensions, I try not to tell anyone. I will be honest: I completely HATE alopecia. Its been hard coming to terms with. I know I will eventually feel better about it. I see people on here that can… Continue

Added by tints on July 12, 2011 at 8:41pm — 12 Comments

sleep in wig?

I would not recommend sleeping in the wig. It stretches the elastic.

Added by youarebeautiful on July 12, 2011 at 9:10am — 2 Comments

You never know what you have until it's gone!

I'm talking about nose hairs. Really!! I never knew what the purpose was until I lost them. Now if my nose is runny, I better be really close to a box of tissues or it will drip right out of my nose. Not only that, I always have something in my darn eye now too. Good grief, if nothing else grows back..... please Lord give me my eye lashes and nose hairs. Amen.

Added by Michelle on July 11, 2011 at 10:30pm — 4 Comments

ARKANSAS MAN DISCOVERS ALOPECIAWORLD LOGO ON HIS TOAST

Added by R0BB on July 11, 2011 at 8:41pm — 5 Comments

Rea n Me...We are hoping... To meet any mums with youngsters, near london













Rea n Me...We are hoping... To meet any mums with youngsters, near london ;-)

For Catch-ups ,friendship,days out,n ol sorts

Would be lovely to have a lil friend for Rea, n me like-wise.…













Continue

Added by michelle webb on July 11, 2011 at 5:30pm — No Comments

Pampering & disaster

So this morning I decided it was time for me to not isolate myself which is what I been doing lately, and I decided it's time for a little pampering.
Went out got my nails done,timmies, shopping and bought a brow pencil to color in some brows and OMG what a disaster i made. I hate it and I have no clue how to color them in. I got the right color ( dark blond) as I normally like my blond wigs.
God sure didn't make things easy when he took away my hairs and brows :(

Added by Lisa-Lynn Marini on July 11, 2011 at 11:30am — 7 Comments

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