June 2017 Blog Posts (10)


Does anyone ever go to the bathroom at work simply to take off their wig for a moment? I find that when I feel overheated or if my scalp just needs to breathe, I go and take it off for a few minutes. Totally helps me! 

Added by Chenelle on June 29, 2017 at 1:00pm — 2 Comments

Quick post...

Just wanted to share this.

The other day I was on the train heading to work. It was no different than any other morning. I pressed snooze several times before finally getting ready and running out to grab the train. I probably should have taken more time to fix my wig, but I figured I'd go straight to the bathroom at my job if anything. I was standing for most of the train ride and when I finally got a seat, a young lady stood in front of me as her stop approached. She leaned…


Added by Chenelle on June 28, 2017 at 2:41pm — No Comments

New to the forum and looking for any advice!

Hi everyone, 

I found out three months ago that I have female pattern hair loss. My hair had been disintegrating for over a year but I didn't know what was causing it. I'm in my mid twenties and have a brother a year younger who's losing his hair too. I knew my dad went bald at a young age, but never in a million years would have guessed I could inherit the hair loss as a girl. 

My dermatologist has me taking 200mg spironolactone and using the 5% minoxidil foam. I'm still…


Added by JanieMH on June 20, 2017 at 10:11pm — 3 Comments

Prednisone for alopecia areata (possibly totalis)

Hi everyone,

I've never written on a blog before so I am hoping the I can learn from reading about other peoples experiences but also get some thoughts regarding my own.

In the last 3 months my hair has gone from having one small 10 cent piece patch missing behind the right ear to multiple patches across my scalp and hair loss on my arms and legs (patchy).  By the time I saw a dermatologist on April 18th (with a complete battery of blood tests having just been…


Added by David on June 19, 2017 at 1:49pm — 6 Comments

New to support group... looking for help and guidance

After exhausting all of my options and losing 95% of my hair I find myself here for the first time to get somebody answers. Any input would be great.

After 8 months on prednisone and seeing my entire body change BUT also seeing hair growth I slowly stopped. After just one week I lost huge amounts of hair that have yet to grow back and this marks a year with almost no hair.

First question- how to deal with wigs!!! I bought a very nice synthetic wig almost a year ago but I… Continue

Added by Brooklynfighter on June 18, 2017 at 4:42am — No Comments

My life with alopecia

When I think about it, when I actually stop and go deep into thought to try and sum this up, the word that often springs to mind is “challenge”. Yes a definite challenge, but whom am I challenging? I guess I’m challenging myself, challenging myself to be able to focus on other things, my children, my husband, my job and my life, which are all blessings that I couldn't do without. It is said that “Allah does not burden a soul beyond that it can bear” So who am I to question this? After all, I am… Continue

Added by AZ on June 16, 2017 at 3:17am — No Comments

I never imagined this for my 20s


I'm new to this so it feels weird to be typing my first blog post as an unidentified person but here we go...

I'm a natural blonde which people have told me is the weakest and thinnest hair type, but back in school my hair was thick and healthy like both my parents. It was only until around age 24 that I noticed how light weight my hair had become and before I knew it, my hair had definitely thinned to half of what it was. My part is much thinner now and my…


Added by HK on June 14, 2017 at 10:24am — 1 Comment

Grew it all back

- When I first found out

First time I found out I had alopecia was back in October, I would get my haircut every 2 weeks. While my barber was cutting my hair he noticed a little bald spot on the back of my head. He told me surprised " yo bro you got alopecia ", he shows me the bald spot and at first I thought he had just made a mistake. I head home and do some research and I find out, my heart dropped. It was an autoimmune disease. (Back in 2010 I was diagnosed with vitiligo and it… Continue

Added by Roggerc on June 8, 2017 at 10:29am — 3 Comments

A couple with autoimmune diseases

hi everyone 

Iam new here :) ,, I feel really very comfortable here.

I have alopecia near universalis ,, married & we love each other som much . Recently we discovered that my husband has Ulcerative Colitis which is an autoimmune disease affecting colon causing bleeding per rectum & diarrhea but his case is not that severe .

now we R consenrned about having kids. we R affraid that our kids would inheret one or both of these autoimmune diseases . I dont want to…


Added by PsPs on June 4, 2017 at 8:08pm — 3 Comments

Making up for it

This blog is only for those of you who have gotten past the shock, false meds and trials, mood swings and negativity. What do you all do to make up for this loss of hair to still present yourself well? What do you do before walking out the door for that interview, job, party, reunion, trip, etc.? Let's give the newbies our best POSITIVE tips. I will start:

Make-up, eyebrow powder, one of several wigs with bangs and two colors to look more real, jewelry, and smile all on me. Age-appropriate… Continue

Added by Tallgirl on June 1, 2017 at 5:13am — 6 Comments

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