June 2013 Blog Posts (53)

I'm really OK! Step by step but OK!

Hi everyone! After acept the ALOPECIA reality i decided shaved my head about 2 weeks ago! It was painfull and hard to identify myself with the image in the mirror, but now i'm getting stronger and being more ok with my "new look".

Yesterday i went to do a street performance on a place where anyone knew me... anyone knew that i used to have hair, anyone knew that i have alopecia or cancer ( like many people must thing that i have)... and yesterday for the first time i felt free to go…

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Added by Catia on June 17, 2013 at 7:00am — 3 Comments

Finally shared my story

check it out if you have time. :) I know you all can probably relate more than others.

http://huff.to/13LqMMy

Added by Brandy P. on June 14, 2013 at 3:00pm — No Comments

Bald Bride: My Alopecia Story, Part 4

While I continued to go about my stressful life as usual including breaking up with Jonathan (more on that in the book), I met Aaron* shortly after the New Year.  During our lunch hour, I happened to sit across from him in the courtyard at WMA.  We ended up chatting about surfing, yoga, and self-reflection of all things.  He told me that he believed in working on oneself and growing as a person.  I remember noting that I liked the way Aaron thought.  It also didn’t hurt that he was lean from…

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Added by Rosanna on June 13, 2013 at 9:13pm — 1 Comment

Wrong diagnosis

So last week Thursday my dermatologist stated that I had Alopecia Areata for sure but wanted to perform a biopsy just incase. So a week later, which is today, they removed 2 stitches that I received from last week. She came back with my results and I actually have Androgentic Alopecia and Demodex Folliculitis. Which in other terms I had human mites eating at my hair follicules which in turn was making me lose my hair. They issued me a prescription for Metrogel and would like to see the…

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Added by V.R.Alva on June 13, 2013 at 5:30pm — 4 Comments

No hair. No problem.

I'm still having fun! This summer has been a whirlwind of graduation, bachelorette parties and weddings. While I have had some hesitation about being in a lot of pictures with a quirky haircut and missing hair, the experience of enjoying my friends and my life has overpowered the hesitation and made me even more comfortable in my skin!

Here I am with my father after receiving my Masters in City and Regional Planning. He was rocking his "someone I <3 has alocepia" wrist band that…

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Added by HilEspi on June 12, 2013 at 1:38pm — No Comments

There it goes again

I've had AA for a few years now. I shaved my head 9/02/10 and since then I have been patchy, then full head of hair, then patchy again. I understand it will probably be like this for the rest of my life... I've come to terms with that. When I do have hair I color it, give myself a fohawk, whatever I think to do at the time. but WHY is it that when I have a FULL head of hair growing great like this...…

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Added by Tamara on June 12, 2013 at 11:30am — No Comments

My polka dot head!

I decided to share my story since everyone on here is so brave in sharing theirs! I am grateful for finding this site because outside of my family and few close friends noone knows that I have AA.



I'm 43 now and started early menopause at 38. My AA started 18 months ago. About a week after getting my hair highlighted (as I had been doing for years). I ran my fingers through my hair and felt smooth skin in the lower back side of my head! I have long hair which covered the spot and… Continue

Added by Shari on June 12, 2013 at 7:22am — No Comments

Photoshopped graduation picture!

My daughter just graduated from elementary school for handicapped children, but she has Down´s Syndrome and has had Alopecia Universalis for 5 years. And as a reward when the children got their diploma they also got a picture of the class and teachers.

I was stunned when I realized the picture of my daughter had been photoshopped. The photographer had put hair on her head and she looked like a boy. I was so sad, I found the photographer and the only explanation he gave me was this:…

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Added by Tinna Ros on June 12, 2013 at 6:30am — 32 Comments

Getting over you

It amazes me how much we've changed. I can still remember the day I first met you & Allie was all over you. I can still remember the day we began talking and you told Alana " Deja's the only girl I want". I remember the day you asked me out. I remember our first kiss. The first time you said I love you. I remember the happiness I felt. But, someone where along the lines all of that changed.

I opened up to you about things no one ever knew. And, I didn't have to worry about your…

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Added by Deja madden on June 11, 2013 at 11:00pm — 1 Comment

At least...

I'm not sure where to start with this. It could have been forever or it could have happened after I had my son it could have happened when I dyed my hair (doubtful) it could have been anything...I first started seeing hair loss when I was in my second trimester just spots at first. When I found them I had just dyed my hair, but I could have had them before and never noticed...went to the derm got a chemical profile and cream it a lot more fell out but some started coming back so whatever doc… Continue

Added by JessKa on June 10, 2013 at 8:17pm — No Comments

21 years old and recently diagnosed with alopecia areata

Hello out there!

My name is Violet, I'm 21 years old and was recently diagnosed with alopecia areata. I've noticed very little hair loss in 8th grade but thought nothing of it since I seen my little sister and brother had the same little situation on their head. Once I had my daughter in January of 2010 I immediately got the Mirena IUD and noticed a significant amount of hair loss on both sides of my head by my parietal bone. I thought their was no hope so I decided to do nothing about…

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Added by V.R.Alva on June 10, 2013 at 9:00am — 1 Comment

The angel who gave me my life back

I am 20 years old and was diagnosed with alopecia areata back in November. I've always had long hair so I was used to losing a lot of hair when I washed, styled or brushed it but then I noticed a bald spot. My alopecia had a fast time course, I noticed the spot in October, was diagnosed in November and by January, I was almost completely bald. I barely had any time to learn what alopecia was and accept it. Everything was happening so quick,I hid behind messy MESSY spray and powder cover-ups…

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Added by Carmen on June 9, 2013 at 9:51pm — 5 Comments

Swimming and sport

Hi all,

Can anyone give any advice on water wigs or any wigs they have used to play sport (in a pony tail under a cap for example).

I wear a Follea Gripper wig and don't really want to use it for swimming or sport. Am looking for the best options / alternatives.

Would really appreciate any advice on options you have actually used.

Thanks x

Added by els on June 9, 2013 at 3:00am — 3 Comments

I have AA

Developed and itchy scalp?

Added by Naomip on June 8, 2013 at 6:07pm — No Comments

Photo

I have never publicly been out without a wig or taken a photo to show people. I sometimes take them for myself to look at. I don't like how I look in photos.
I was just looking at the featured blogs and I had this urge to take a photo and share it on here to show people they are not alone.
I don't know at the moment if I am brave enough yet but well in words at least know that there are more like you out there.

Added by KFlame on June 8, 2013 at 2:40pm — No Comments

June 8th '13: Chaos

I've pulled more. Even the tiny hairs. My little brother left today to go back home in the west side of USA. And my other little brother here at home is stirring up trouble, but not as much family violence that my brother in the west had caused to my family. I used to be afraid of my brother from the west. He was sent away a few years ago because of all the mishap and violence he gave us. Now, its the littlest brother who is raging. I now have to wear my scarves more often around the house…

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Added by Bunny on June 8, 2013 at 11:37am — No Comments

Trying to suss out causes

Hi Everyone,
I was diagnosed with FFA six months ago after losing my eyebrows and having my hairline recede by about two inches. I also have other autoimmune symptoms. About four years ago I got silicone gel breast implants and wonder if anyone else with FFA has implants and wonders if they have triggered their autoimmune conditions including FFA. Just trying to figure all this out and trying to figure out the cause
Kathleen.

Added by Kathleen on June 7, 2013 at 8:30am — 2 Comments

Celebrating alopecia

All my life I was known for my beautiful red curls. My hair was my most unique and prized physical feature. Three years ago when my hair suddenly fell out, I was totally shocked. It turns out that I have an autoimmune condition called Alopecia, where the immune system mistakenly attacks the hair and causes it to fall out. I was devastated. I had never even heard of Alopecia before. I was uncomfortable in my own skin and confused about who I was without my hair. I knew deep down that the loss…

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Added by Erin Leach on June 7, 2013 at 1:00am — 3 Comments

Mom and I do not agree on how to deal with my daughter's alopecia! Am I wrong?

My daughter is only 5 yrs old dealing with this and is in early stages of alopecia. I was secretly hoping it was areata however as of this week her eyebrows n lashes are falling off. I have done all home remedies that has so far allowed her to keep bout 30% of her hair. Still falling off but at a slower rate, i dont know if thats a good or bad thing. My mom had alopecia Universales since she was 15, bak in the 70s wen no one knew about it. She was tortured everyday to a point she moved out…

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Added by JEANETTE on June 6, 2013 at 10:30am — 7 Comments

Recurring alopecia

im 18 and just found a new patch on my crown size of two finger tips. I had alopecia from the age of 11-15 the size of my hand on the top of my head im terrified it will get that big again my scalp is tingling and itching is this A sign of more hair loss to come? please help :)

Added by pop on June 5, 2013 at 9:00pm — No Comments

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