June 2013 Blog Posts (54)

Cytokines and alopecia

All Autoimmune disorders(Alopecia etc) have a dysfunctional cytokine reaction component to it

For the purposes of inhibiting ACE and reducing cytokines, the following foods and compounds seem to be the best choices:

• Green tea (ACE inhibitor, reduces cytokines)

• Black tea (ACE inhibitor, reduces cytokines)

• Quercetin (possible ACE inhibitor, reduces cytokines)

• Pomegranate juice (ACE inhibitor)

• Red wine (ACE inhibitor)

• Turmeric (reduces…


Added by Mike Staffieri RHN on June 28, 2013 at 11:00am — No Comments

Good doctor in the USA?

Hi everybody,
I live in Italy, but I will go to the USA in september to attend a conference (I am a PhD candidate in anthropology).
I have gone to many doctors here, but nothing worked except a corisonic treatment that intoxicated me, many years ago. Do you know if there is any GOOD doctor I could go to in the USA? An expert in Alopecia, obviously.
I will go to Dallas, Washington DC and NYC... Thank you

Added by Cat on June 26, 2013 at 3:30am — 2 Comments

NAAF 2013 St Louis

Hello Friends,

Another year has passed. We're on on are way to St Louis for NAAF 2013.
This is my 6th Conference since my diagnosis of alopecia in 2007. I am so grateful for all the support from all of you!!!

Hope to see and meet many of you in person!!!


Added by JeffreySF on June 26, 2013 at 2:50am — 2 Comments


So, I'm tired putting myself out there when it comes to dating! Men in LA are so shallow, you know in life somebody should like me for who I am! it just makes me sick how this guy I met he asked me, and I told him on third date and showed him my head, and he ran but the funny thing he said it didn't matter, its what's in the inside. Sorry Jermey you are shallow and think you are perfect when all you are is fake!

Added by Toni on June 25, 2013 at 12:31pm — 4 Comments


Started steroid injection last Tuesday. For first time in 15 that I have been on and off them, I slept for 2 days, I feel panicy and emotional. Anyone else had this after only one treatment?? Feel like I am going crazy. This had never happened before

Added by Jo-Anne on June 25, 2013 at 11:28am — 2 Comments

My alopecia story!


In 1998, when I was in 4th grade, my mom noticed a small patch of hair loss while she was brushing my hair one morning. She told my dad (a physician) about it, and he decided to take me to a dermatologist. The doctor told my parents that I had alopecia areata, gave me the steroid injections (every 8 year old's nightmare), told me to apply a cream (looking back, I believe it was an irritant) and come back every few weeks.

I don't remember my initial…


Added by okiegal on June 25, 2013 at 4:00am — 4 Comments

Tired of the roller coaster ride

I was diagnosed with Alopecia Areata in September of 2012, 3 weeks after I transferred to a new college with a grueling schedule. I had only loosely heard the term "alopecia" but never paid attention to what it was. My hair was my favorite feature, and I have been happily dying it an array of colors for over 10 years. I had been behaving myself and had only highlighted the crown once in the year leading up to my hair loss. I don't heat style. I don't pull my hair out in my sleep or anything.…


Added by Sierra D on June 24, 2013 at 5:00pm — 4 Comments

Newbie feeling very sad

Hi I was told about this wonderful site by my friend who's cousin has AA, I have 4 boys and my youngest daughter is 3 has been confirmed as having AA ..... I'm so sad for her she on the other hand is totally unaware of anything !! But I feel like I need to get rid of her repunzal dolls DVDs anything that's going to make her feel that she needs to have long hair to be beautiful :( the thing I'm struggling with the most is the not knowing how bad it will get ? Will she loose everything or forever… Continue

Added by Claire Eadie on June 24, 2013 at 4:34pm — 30 Comments


Hello everyone i was wondering if anyone on here has lupus as well. I've been gettinf lots of tests done and doctors have mentioned lupus but since there's not specific test for it there's no way of being sure. The symptom questions have been asked many times and i don't seem to br experiencing many. But now when i feel some of the things i'm not sure if it's all just in my heas now. What were your early symptoms?

Added by Vane on June 24, 2013 at 1:32pm — 9 Comments


Hello. I am new to the community. I sought out the support group because I am letting this alopecia consume me! I'm thinking of going bald : / but I'm battling with this tremendously! I feel like a freak. I'm a woman in my early 30s. Just looking for someone one like me...I suffer from traction alopecia. I have a 10 month old son and this seemed to get worse after giving birth to him HOWEVER I admit I've had some degree of thinning and balding for 10 or more years I know I should be used to… Continue

Added by Simone on June 24, 2013 at 12:32pm — No Comments

Loss and growth (how I grew it back)

I have had alopecia areata since this February and in this time I have lost all of the hair on my head. I remember at the beginning the smallest dime sized patched being the biggest deal and freaking out. Looking back I realize how lucky I was to have 95% of my hair at the time. I am 18 and this is my first wave of it. I have had an extremely stressful year and attest my initial hair loss to excessive stress. I now have over an inch of hair all over my head and have little to no shedding…


Added by tree on June 23, 2013 at 9:30pm — 11 Comments

First regrowth sprouting!

After about a year of having lost my hair (all of my head, my eyebrows, eyelashes, legs) I have lots of little hairs popping up. I am trying hard not to get too excited because I don't want to be disappointed. For anyone who has had regrowth, is there something I can do to encourage and hang onto the growth? Keeping my fingers crossed.....

Added by k9helper on June 23, 2013 at 6:30pm — 2 Comments

Topical Immunitherapy treatment

Has anyone had Topical Immunotheraphy treatment using the chemicals DPCP or DNCB or SADBE?
If they have I wonder if they have been left with a very sensitive scalp and painful eyebrows when they have been getting them tattooed?

Added by Roslyn Brown on June 23, 2013 at 5:28am — No Comments

Redness and irritation on scalp

Does anyone have suggestions to help the redness and irritation on my head? I am just about totally bald now and I typically cover my head with a wig during the day and then a bandanna or buff around the house. My head gets very irritated and has red patches. I recently got those headliners and put two of them in the wig, which makes them much more comfortable, but I could use ideas for topical creams or other protection that might help. Do any others find that their head is very sensitive? If… Continue

Added by Barbara on June 22, 2013 at 9:58am — 1 Comment

Most dermatologists...suck

I have honestly come to the conclusion that most dermatologists.... suck. No, seriously they are horrible and don't know what to prescribe they just give any type of drugs and hope it will work. Not cool! Today, I actually had to tell me new dermatologist that no, you cannot give me cortisone shampoo while on squaric acid because it defeats to whole purpose of the acid. So, I have come to the conclusion that in college I will study pharmaceutical science and either become a dermatologist…


Added by Sara on June 20, 2013 at 10:30am — 10 Comments

Which shampoo or conditioner should I use on hair from Hair Club?

Does anyone have hair from the Hair Club? i'm just curious if you ever use reg shampoo/ conditoner or only there stuff....

Added by jewels on June 20, 2013 at 12:00am — No Comments


Had steroid jags for the first time in a long time yesterday. Don't know if it's because it's been so long since my patches were as bad or what but slept for almost 24 hours and today still feel woozy and sleepy and very emotional :-(

Added by Jo-Anne on June 19, 2013 at 3:18pm — No Comments

Here we go again

I feel really bad that I didn't keep up with stuff after my regrowth. In fairness I have been in and out of hospital for 18 months with bi-polar and that time was awful, strangely I had a full head of hair throughout all that. But about a week after finishing my uni exams for my second year, which had been deferred whilst I had been ill, my hair has started falling out again. It's been happening for about a week but it's pretty fast like usual.

Luckily I'm pretty ok with it. This is the…


Added by Lyndsey Pitchford on June 19, 2013 at 2:35pm — 4 Comments

Keeping hope without getting too hopeful

I've had alopecia for about 5 months now, not even sure exactly what kind yet ( i'm seeing a rheumatologist soon).

I lost about 40% of my hair, but the last month or so most of it started growing back, i couldn't help but get excited. I had little fuzz covering nearly all my head again. Well the past few days i started noticing smooth spots on my regrowth.

How can i keep from getting too excited when i see regrowth? I don't want to get my hopes crushed, but i also don't want to…


Added by Vane on June 18, 2013 at 1:00am — 4 Comments


I've been on this site for a few weeks and reading things here and there... Stuff gets real for a lot of you folks out there, kind do puts my life in perspective. I'm going through something but it could be so much worse. Thanks for staying strong.

Added by JessKa on June 17, 2013 at 9:00pm — No Comments

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